NewspaperLover, I share your birth year and desire to put off ADT as long as possible. I am going the oligo mets treatment route having had one lymph node and one bone met zapped by SBRT since March...
Sr Sailor You are correct, so far so good. I had the lymph node treated by SBRT at Tulane University in New Orleans and the lesion in the right ischium by SBRT here in my home town of Foley AL, at...
This is my OLIGO journey if anyone is interested. Sept 2016, PSMA scan at NIH in Bethesda Md showed focal intense DCBFB uptake in a left common iliac lymph node, and a subtle DCFBC-avid focus in a...
Tarhoosier, While I can't recommend an oncologist in the DC area I can vouch for the oligo treatment route by SBRT. It is presently working for me with one lymph node and one lesion on the ischium...
Mel, Thanks for this timely post. I too will likely be on one of these drugs soon and would like to see some answers to your question. Are you a vetran? I saw on a previous thread where a vet was...
German researchers have been working with LU177 for several years and they presently use it for palliative care. It still holds lots of promise in becoming a huge tool in the fight against prostate...
As for me, I have won some battles with prostate cancer but fear I am losing the war. Woody...
Good luck John, we are all pulling for a successful outcome. Please keep us informed. Woody...
Many of us were aware of a generic form of Zytiga due to be released in October 2018. What happened? Here is the story as I understand it. You are welcome to add to it or make corrections if I am in...
A timely question for several of us that are approaching the time for the expensive drugs to begin. I have no idea how I would pay for a drug like Zytiga so the question for me is am I willing to...
Hi Redwing....Thanks for posting this information. I am in the middle of the oligo process and have no idea how it will work out so would have to be considered on the fence as to it's effectiveness....
Bumping this forward. Looks like two trials are about to begin. One at Urology Clinics of North Texas for advanced stage and another at Harvard for early stage. I read somewhere their first trial...
Nice work Sonny, keep it up! You are a help to us all....
So sorry for your loss Faustmann. Many thanks for the discussion around Lupron side effects. I am avoiding ADT side effects as long as possible. Quality of life is very important to me....
Hi Our local pharmacy ( a large national chain ) changed from Amneal to Sandoz for their Metformin and four people I know have developed a case of diarrhea causing them to change to another...
tomhw, I also faced some of the same decisions as you but my MO went along with my wish to have one of the latest PSMA scans at the National Instatutes of Health, in fact he helped by contacting one...
Thanks Prat, this helps puts some things we all struggle with in perspective. Woody...
Beth Please share what you can about the journey. Several of us will be at this same point in the future and your comments will help light our way during our personal passage to end of life. Thank...
Two month PSA number post SBRT to one hot lymph node is in at 1.4 at Quest Labs. The same lab measured PSA at 3.5 prior to treatment. To me, this is good news. Cancer cells of all stripes are getting...
Well put Bob, we are not eager to wreck our good health and give up feeling well based on the TOAD study. My oncologist is not convinced by the study but At the same time, I very much respect the...
Thanks TA for this thread. It is helping to keep me grounded in reality while hoping for some additional quality time on planet earth by having SBRT to a hot pelvic iliac lymph node. This may not...
Very sad to hear this news. RIP Jim. Woody...
Have you considered consulting with Eugene Kwon at Mayo Clinic? He treats oligo mets on a daily basis and I would want to hear his opinion before giving up on treatment. The odds may not be great for...
Positive thoughts and prayers coming your way. Woody...
Annie I did not answer all your questions, sorry......PSA is 3.5, I will receive four treatments. Best regards Woody...
Annie Tulane performed an MRI with and without contrast, a full body bone scan, and a CT scan with contrast, all in one day since I live three hours away, prior to treatment. These followed an MRI...
First SBRT treatment to common iliac lymph node started yesterday, 3/8/17, and was washed out five hours later. Anyone else experience this after one treatment? Feel better this morning but was...
Just my two cents.....Got serious about diet in June last year and decided to cut out all sugar possible, eat more fruits and vegetables, started metformin 500 mg twice daily at the same time (had...
3.42 for me on Jan. 3rd at Tulane in New Orleans during visit with oncologist. Doesn't mean much since previous results were from Quest. Don't know why he did it. Woody...
Not after a three year climb, but mine did the same, dropped from 2.2 to 0.9 in one month. Best wishes for the holidays! Woody...
Fantastic news Jim....And PT3B too Have a great thanksgiving! Woody...
The University of Florida proton therapy institute is conducting a clinical trial NCTO1859221 "radiotherapy for oligometastatic prostate cancer" that I would like to participate in but would like to...
Folks, Thanks for the responses. I am now 73 and in very good health, play golf 3 to 5 time per week, fish, and quite active at many other things here in LA (lower Alabama), only fly in the ointment...
Had a consultation with a new (to me) radiation oncologist at a university cancer center last Friday and during our discussion of my case I asked if we were successful in getting it into remission...
Can anyone here explain what early ADT means. Is it before any mets are found? At what point does "early" no longer apply? Some of us happen to be at the point of making a decision concerning when to...
Many thanks to all that responded. I am aware my case is considered systemic with odds of a durable remission very low....but..... this is my last shot at remission and to delay the start of hormones...
I just consulted with my radiation oncologist following a successful trip to the National Institutes of Health to participate in their PSMA trial. They found two locations with abnormal uptake,...
I too would like to thank compiler and tall Allen plus all the others with input on this thread. I am facing the same decisions as compiler. I hag the PSMA scan at NIH in Bethesda, MD and they found...
I just got back from having the same scan and MRI last week. They found mine, they will likely do the same for you. Say hello to Yolanda. Woody...
I just returned home from participating in the 18F-DCFBC/PSMA PET/CT Trial at The National Institutes of Health in Bethesda MD. and am a little rattled by the information I picked up there. First let...
August PSA number is in............... 1.4, up about 50% from 0.9 in July, which was down from 2.2 in June. These numbers make no sense at all. No meds except Metformin involved. Anyone else...
CT results are in and I find them to be quite confusing. When taking PSA history into consideration, there seems to be too many potential problems found. Any input is appreciated. The results are: 1....
PSA dropped by almost 2/3 in one month, from 2.2 to 0.9 after steadily increasing at a very fast pace for months. I increased Metformin from one to two 500mg per day plus added a second multivitamin,...
I went to a "rock star" prostate cancer oncologist and was told basically the same as you, do nothing until your PSA reaches somewhere between 5 and 8. They did mention in passing a heart healthy...
Almost a 10..........Fantastic!! How did you reduce your PSA from 23 to <.1? Woody...
Thanks to all that took time to respond, the support from this group is amazing. Purgatory, I would like to take the same route you are considering but do not have the courage to do so. PSA velocity...
Systemic and incurable is not what I wanted to hear, but, I would rather know the truth than have someone blow smoke at me. I went to New Orleans yesterday to see Dr Oliver Sartor and came away from...
Sounds like Snuffy Myers time for me. Not ready to recommend him yet; but you might want take a look at him too. Woody...
I'm in the same boat as you and hoping it is PSA bounce, only time will tell. Hoping for the best for you. Woody...
Hi folks I am two years down the road from surgery and SRT with my last PSA result of 0.2 and free PSA of 0.07 for a ratio of 33.83. My question is; does the ratio mean much at this point? From what...