Hi Friends, I read this and had to post. The comfort I got from this site and all you made me face my trial with strength and courrage. I hope many more caregivers join as it is such a help. I am...
Hi I lost my husband two weeks ago and we both felt hospice was wounderful. The relief Steve felt when the nurse talked to us was seen on his face. He knew not having to wait for return Dr calls or...
Hi Deanna I was the one who did not want to hear hospice. I felt like I never saw the end of the tunnel till they said time for hospice. I signed Steve on and that night he passed away 9-14-2015 so I...
Hi Friends a few times I thought I am going to delete this forum as I do not want to see the words "prostate cancer" ever again, but every morning I get up and look to see how everyone is doing. Just...
Thank you all for your kind words and hugs. I just did the hardest thing I have done I picked up Steves remains and carried them in the house. Please be prepared if you ever have to get them. Carol...
Hi Friends Steve passed away last night. It was so awful. Pray that I find some strength to make it thru this. Carol...
Hi Friends, went to U of m Wed and they said Steve should go on hospice. I asked how long and he said days maybe weeks and the thought through my head was for Steve that means months. He has done so...
Hi Sue and Friends I hope you are able to take your own advice and take some time for you. I just hate all we are going through. Today we are in a bad place. Steve has no hope. He just wants to lie...
Hi friends, I am so glad to see posting continue. The reason Sue kept this going is for us to be able to release our feeling and encourage others. Deanna please keep posting. I am one step behind you...
Hi Friends Beth the clinical trial is Alisertib. We never got the biopsy because of Steves high labs liver bilibrubin 12.0 Ast 194 Alt 148 alk Phos 386 ldh 1472 GGTP 856 had to look that one up and...
Almost 10-- thanks for the tips. I am not sure if Steve should apply for disability now because we have 12 weeks of work disability that has full insurance too. If we got the SSD we loose the work...
Hi Friends jpenn44 Psa is 5620 Wow bones and lung mets wow how scary. How r u feeling any pain. Do u have a great support group? Hi susan I hate waiting for scans and even more the results, but can...
Hi Friends It has been a long month. We were told we could start a clinical trial, than the kidneys started acting up. We were told we could enter another clinical trial and his bilirubin went from 2...
Last month I had to give up being president of a club I had been president for over 25 years. Last week was my last day at work. Yesterday I rode my harley to the club and it was a mistake I was so...
From 1 to 6 years From .3 to 5,000 psa From A to Z in treatments From one symptom to all of them Even today I do not see the end yet, but having more days of feelling like it is around the corner!...
Sue so sorry. Find comfort that Dave has no more pain/ tears or sorrow after having so much for so long. My condolences to you and your family. Please continue to let us know how you are and how you...
My husband got some skin burns when going through radiation so be sure to keep your skin clean and ask what kind of cream to use. Eat your protein so your skin can heal or ask if a protein supplement...
Sue through your words I have come to know a strong, kind, loving wife. I hope when I need to I am able to live and support Steve like you are supporting Dave. Please forget the past, have no regrets...
Hi Friends today I had the most greatful / wounderful day. I just had a sister's day. I have seven sisters and they are part of my support team. Considering that it was so hard to talk about Steve....
Hi when Steve had radiation to prostate and lymph nodes he got diarrhea he took Imodium three times a day and that took care of it. He had to take it for about 10 weeks. Has Don tried it? Steve has...
Good morning friends. Hope you all got some much needed down time as I did. Now for a full week. Steve was told by our oncologist because of his liver mets being so extensive and symptomatic he did...
Hi friend i know totally where you are. I am so sorry you and Dave have to hear that. We were told end of July " You have made it six years that is good" and " you have used every treatment from a to...
Hi he has tried some other nausea meds and this seems to work the best even if he is still sick it is less than before. It is different vomiting more liquids and bile and dr is sure it is the liver...
Hi Friends I have decided if every time we go to the oncologist he gives us more bad news we just will not go anymore. /community/emoticons/cry.gif Steve takes Zolfran and steroids for nausea and...
Hi Friends, just got home from work and I am doing something I thought I would never do. Eating Butter Pecan ice cream right from the carten. Yep--comfort food for me tonight and I feel better...
What other field but medical can we pay someone alot of money and than wonder if we can question the service we get? Carol...
Everyone is having so much go on I do not know where to start--so for every friend I am praying for strength to get through the days of trouble. If you are the husband please just live as good as you...
Hi will you read "sue saddened wife" in this forum it has helped me alot to read what other are going through and I am sure it will help you. Join the conversation if you want. Carol...
Hi friends day 3 for medical appointments. Just got home from getting a transfusion. Steves feelings go up and down all the time. But we hear good news in the am than bad news in pm. When he feels...
Hi friends, I feel like I have had the most frustrating two days. Someone has turned the page and I have found out I am on the last chapter of the book. We went to U of Michigan on Tue and saw the...
In Jan he did Taxotere than went to Jevtana than did one dose of Carboplatin which was July 2. He has so many other labs abnormal and I am trying to digest all of it. Extensive liver mets found July...
Hi good friends. What is your hubsands PSA? Got the call about Steves this am went from 596 to 4,961 in six weeks. I am not even putting that on the chart!!! Carol...
Good afternoon friends I need some advice. For the last 5 days Steve has vomitted once everyday. He has ran a temp of 99.2 to 99.8. He has not had chemo for almost six weeks. He takes Zofran. Do you...
Hi Susan some of the info I am digesting in small form is when the host cancer cell spreads and lands and starts growing other cancer cells it can change the dna sequence. Such as it is a psa cancer...
LOL I am sorry but when I read "live inside a chocolate cake" and "asked me if I was going to work early this morning. ...WTH I haven't worked in almost 2 years" and "Have you ever tried to reason...
How can something that is in front of your face every moment not consume your life. I have to move it out and put something in front just so I do not go crazy. When Steve was on Jevtana they reduced...
Good Morning Friends We went to U of Michigan for clinical trial consult. They had two things to offer one- SEA CD40 which 'using the basic info' turns on the immune system to fight cancer cells. It...
Sue I work second shift and get home at 11 pm. Steve will not go to bed until I am there too. In the middle of the night I feel and touch Steve just to make sure he is warm and breathing. Is that...
Good morning friends. Steve had his oncologist appointment yesterday and had to get two units of blood as hgb was 7.1 and platlets was 87 and he had several bruises due to low counts. The good news...
Hi friends, not much news coming from some of you. Hope that means you are having fun. Steve now has several bruises so he called oncologist this am and they said his platelet count is probably low...
The appointment for radiologist is Aug 11 we are trying to get an earlier appointment but we had to be put on a call list. I will let you know as soon as it is over. We also got called today for the...
Hi Friends Do / did you ever get to a point where you do not care what his PSA number is. When the cancer went to Steve's liver the oncologist said he expects the psa to go up high and fast and we do...
I have to let you know about further treatment. We are going to u of m to talk to a radiologist who specializes in liver mets biopsy and than radiation to the mets. I am not sure how it works but...
thanks friends, I remember an oncologist told me terminal cancer effects people two ways one gets sick for along time and than dies,the other is healthly for a long time than gets sick for short time...
It seems like our husbands are getting tired of trying treatments that might not work. Steve says "no more chemo" He feels so much better and able to function with out all the side effects. I guess...
WOW the emotions that come through all the words printed on these pages is amazing. With tears on my face I am feeling pain in my heart that we have to deal with everything but I am sure I can say we...
Unanswered questions--"kept in the dark" ---more sensitive--- angry--tired---frustrated I wonder if our doctors ever feel that way. If they did could they maybe help us with feelings and emotions...
Good Morning Everyone. It sure sounds like you are having long nights with all the complications from the cancer. It helps to read your experiences and be able to think "o that is what I will do if...
Hi friends five stages of grief 1 denial 2 anger 3 bargining 4 depression 5 acceptance. I am having such a hard time with number five acceptance. Steve has decided to stay with his oncologist and not...
Five stages of grief 1 denial 2 anger 3 barganing 4 depression 5 acceptance. For over 6 years I have been doing number 5 I accepted I have cancer / treatments/ changes in life/ the list goes on and...