I apologize for not being on the forum lately. For those who have asked or wonder, here is the scoop. April 23rd went to ER, had severe leg weakness, to the point of needing crutches, and some...
Thanks Todd!!! I truly look forward to this opportunity!...
Anxiety is part of the new normal...but you wear it like a badge of courage... Congrats on your new even lower than normal PSA!...
It's always so cool to see guys getting together over a common "bond"...but not letting that dictate the meeting.... It truly is a "family"....we have some black sheep, and we can bicker and bitch at...
Plan for mass screening???? Setup a $20 bill on the floor in the pharmaceutical aisle? Preferably around the Vaseline? Yeah...we might have gone a bit off topic here......
I think sharing your experience is beneficial, and helps spread the word. To your point Sheepguy, there are some that push incomplete information or push a personal opinion and can end up doing more...
It's uncomfortable...but over soon. Worst part for me was the going pee right afterwards...that was like trying to pee razor blades...but within a couple hours of procedure even that was fine, no ill...
The 21 days is because of blood counts. That is the "average" recovery team for the blood counts (white and red) and the body "strong enough" to do the next cycle....
CAD....actually, the half life is only around 11-16 hours...so the actuall drugs only stays in your system for a day or two.... That's why water is most important the first day or two after treatment...
great news on the zero!!! Take stock in that...cut back on working all day and enjoy the little things!! Here is to many more zeros for you!...
Hey Bob....just out of curiosity, what are the significant side effects you are having? For some side effects, there are some trips and tricks and even some drugs to help alleviate them....
Imagine that...two individuals hijack a thread, to push a personal agenda or patronize other members for personal reasons and distract from the point. Neither have added a single thing to what could...
Hi Nick! White Blood cell count is good. PLT is a bit low...but that can be bolstered. Crit is still ok, no need for alarm, just keep monitoring. Hair is a funny thing. Mine started falling out...
Way to add to the thread...very informative, reflective, intelligent and a great post for newbies that are looking for recommendations. (yes, I understand the irony of me wasting a post to call this...
Congrats Andrew.... Poetry is always better after wine....all the good artists are alcoholic or crazy....or both...
Why now.... You are in a great place for advice. It is natural to have the fears you are experiencing, trust me! But there are so many success stories here to draw inspiration from. There has also...
That is a nice initial reaction to the drub. I haven't heard that the hormone therapy doesn't stop the aggression in the liver. We have some on here that have liver mets and other knowledge that may...
great news Mel...that's one fewer thing to worry about for you!...
Susie, Welcome, and sorry you have to be here. Your father is lucky to have you being an advocate for him. As JNF said, some basic information can help, PSA, age etc... We have many member here with...
At Allen stated... if your oncologist is making that statement, it sounds like he isn't up on the studies. First, Chemo should be given when they are stronger. It can weaken you some, but it's more...
Not to dismiss your diet...but this is a perfect example of the being hard to prove. PSA has been proven to fluctuate, independent of cancer. So is the rise and drop cancer related, or just PSA test...
Todd, You are an inspiration to so many....I know to a degree what you mean, as this week I questioned the why of the entire situation. Why me? Why so young and so advanced? Why did he send me...
First I said "basically", so maybe I wasn't as verbose in my conditioning of the statement as you. . Meaning he needs to monitor the situation. Funny, I suggested he basically monitor the situation,...
I hope he ignores you...how you like that??? You can have your opinion, and you certainly do know a lot, but your arrogance in this case is uncalled for. To tell him to check his PSA in a year or...
drink some wine and celebrate..... Then, go back to your urologist in 6 months or so for another PSA test...basically, you're on AS now I would think...at least that's how I'd deal with it....
Water every day....especially that first week. Chemo dehydrates the body...so have him drink as much as he can. You can mix it up, Gatorade is good...any look for flavoring without sugars you can add...
Nick.... the side effects will effect those at different times. For me, I took Dexamethasone, The night before, the day of and then for 3 days after chemo. During those days I was great. My wall,...
As always....and inspiring and heartfelt post. Best of luck on your hopefully permanent HT vacation!! Hope your T levels recover quickly for you...and as you said, just go out and enjoy every day...
crap...and I just sent him a case of wine...guess i'll have to call UPS and cancel the delivery...
well...that just sucks.... PSA skyrocketed up to 78.... Stopping Casodex immediately...another round of CT and Bone scans next week...and Xtandi is waiting in the wings to start. Ok...well, be...
Thank you everyone for the kind words... Mel you are exactly right....when I'm coaching, be it practice or a game, that is two hours I'm not thinking of PCa. It's my release. My reset. Glad to hear...
Congrats to all those good numbers...Dan, congrats in the continues zeros. I will celebrate with you going off diet and having a huge cheeseburger and fries tonight!!! Hang in there Mel...I'm sure...
Great news Hitch..,thanks for the update and the chronicle. Best of luck to you going forward....
I'm currently sitting on a bus, with 18 high school girls....going to play our first soccer game of the year. This is my fourth year coaching, so the seniors this year were my first group I coached...
great news Mel...continued thoughts and prayers for your friend in his fight!...
Great news Yoop,...congrats to you and many more zeros for you....
just another inspirational story... To you and all others, please never be hesitant to share your good news, no matter what is happening with me, where I am in treatment, i NEED to hear those stories...
Tim... With those results, I would look to just doing AS, as long as you can mentally handle that. Please make sure to read the stickies at the top, and send off your biopsy for a second opinion with...
Exactly right...let's quit hijacking threads to promote personal opinions...All the AS drum thumping on irrelevant threads is making me want to be here less and less. No where should AS or over...
Wings....it's an amazing story for sure. And you spoke very eloquently about it... Here is a video of Rory speaking at her service....such a beautiful display of true unconditional love.....
IT....congrats to you!! The coincidence....i just had my "first" in some time...i recently had a new gf, we've been taking care of her, but I've had ED issues, being on Lupron of course...but finely...
I see nothing to really be greatly concerned about...that's a doubling time of 3 years based on the 2013 number... even using the May 2015 as the baseline, that's still 20 months doubling...
My MO expects the list of questions I have at every appointment, and encourages them. I'll say, hey I heard this drug is doing this now....and he will go through and explain why it may or may not...
Well...let's focus on the positive... the involvement is unchanged and the liver is smaller which i know was your biggest concern, the liver. Glad he was able to get the fluid drained. I hope the new...
wow...that seems backwards. Why pay for a bone scan, but not the CT Scan? The CT scan will show the lymph, prostate, and all the other organs in the abdomen (gall bladder, liver, etc)....seems a...
It is incredibly unlikely that you have any mets to the bones, especially enough to cause that pain. The scans have never been bad for me...other than the 1st time, where it was hard to lay still for...
Why the venomous reaction to Zeddy? Seems to me to be some unfair treatment, and to psychoanalyze someone over a post on the internet seems a bit arrogant and harsh? Where is the love for our...
What a great thread...and an amazing group of men. I commend all for your battles, the bravery and the willingness to share... Sonny, as you can see, every experience is different...the one thing I...
Thanks for the story...try to get him to join us here....feel free to pass him on my name/email if he wants to talk with someone walking close in his shoes... Thanks again for this...this is exactly...
TeamChris....sorry to hear of this. The PSA roller coaster is not a fun ride, especially when you start the climb. Keep the faith, there are so many treatments out there that can help. Xofigo might...