My step-daughter is a rigorously trained natureopath, with an ND from Bastyr University. Though she can’t treat her own father, she has been immensely helpful when it comes to advice about quality...
Late, late late to seeing this. When we are in what I call the "lulls" of low PSA or an HT holiday, I find it best to check in on the boards every couple of weeks. We are in Gualala today for Art in...
Following you every day. If you ever need a walk in the redwoods, come down the peninsula to our corner of the world. Hope you can remember to take care of yourself with the same dedication you take...
Live your life, live your life. Thinking of you every day....
Well, hello Beth, Its been a long time since I have been on the boards. So so sorry to hear of your turn of events. I know our turn in the box is coming. Your willingness to share your experiences in...
Haven't posted much. We have just been doubling up on fun and travel. We are 4 years into this journey of Stage 4 and feeling lucky. My signature tells the story. Nick's attitude continues to amaze...
Definite shrinkage from Lupron/casodex. But Viagara still works and there's plenty left to get the job done. HTholidays mean a return to orgasms for him-it is like he is in 7th grade all over again....
Moon, Sorry for my delayed response. Work has been all-consuming. I Agree with Beth. Princess is the way to see Alaska. I met a fair number of single older women. With opportunities for gently...
I predict a new cruise addict. There is nothing like the ocean and complete autonomy over how you spend your day to relax and contemplate life. I have 20 of them under my belt. If you'd like to share...
Great news. Thanks!...
Quiet thread for a few weeks now. Just checking in. We are back from our South American cruise. Nick's PSA has popped up to 8.6 so it is back to Casodex and Lupron. The HT holiday was nice while it...
With PSA jumping from 4 to 8.6, Nick is back on Casodex and Lupron. But the holiday lasted for 6 months. Chest hair and energy and the all-important mojo returned. Glad we did it. South America...
After HT holiday of 9 months, nick's PSA jumped to 4. We went on cruise to forget about it for a while. He had another blood test today. Awaiting results but we figure it is back to Lupron/Casodex...
Oh so quiet, sitting here, grieving with you three. And feeling a little grim myself tonight. Nick's PSA jumped to 4 after a 7-month HT holiday. Doc sez, go on the cruise and we will do another blood...
Timely question for us. Nick has been on HT holiday (18 months on, last shot last April). But his blood test today revealed PSA rise from undetectable to 4 in last three months. Sigh. Doc wants to do...
Just back from NC and saw the news. You have been a part of my posse since I joined this site over two years ago. Your news is so distressing--just hurts my heart. I certainly hope, as I say to all...
Ah, Moon, thinking of you two....
Hello all you dear women, I have not posted recently and have just caught up with this thread. We have been in a hormone-therapy lull. And grabbing each day, knowing our turn in the box will come...
A little hope for all the stage 4, hormone therapy folks. 5 months after last Lupron shot (he is on intermittent protocol). Functioning WITHOUT vitamin V. Beginning, middle and end were pretty close...
Oh Deanna, Just saw this sad news. I feel like we started on this site at about the same time and have read many of each others posts. My deepest condolences. Please take care of yourself with the...
Our doc says to wait until it hits 4....
As a frequent reader (but infrequent poster) on this thread, I am so, so sorry for your loss, Carol. My heart breaks for you. I gain such strength from all of you as, though, we are in a lovely lull...
Undetectable. 6 months since last Lupron/casodex dose. HT holiday continues....
Here is an update. PSA still undetectable. A couple of friendly wake-up calls from Mr. Wood. And chest air and underarm hair have made an appearance. Nick is still steuggling with weight and the hot...
Thanks so much. Because we entered our second marriage with a policy of 100% honesty, we have all of this covered. And we laugh about his wish to have his ashes scattered on a st. thomas golf course...
I can't explain how important this thread is to me. I don't post on it because we are in the calm before the castrate-resistant bone mets storm. But reading the posts by those of you further down the...
From Day 1, Nick's approach has been to focus on living. I took the lead on researching, asking questions and taking copious notes. And being on three PC forums. Newly married, we committed ourselves...
Thanks all. . .keep on keepin' on. The psychological lift is great. Though we know changes will come slowly, if at all....
After 18 monhs on HT with an undetectable PSA and no change in spinal tumor, our doc supports an HT holiday. Happy dance. He suggested a PSA test in three months. Plan to go back on Casodex/Lupron...
Oh Sal, I haven't been checking in recently. I am so sorry to hear your news. Please take as good of care of yourself as you did for Ted....
I just told my husband he is my "human sexual novelty". He laughed and said he is happy to be my sex toy. After 18 months on casodex and Lupron, the viagara works without fail (even though the doctor...
Happy birthday Susan and Don! Sorry i havent been around. Just caught up with everyone. whew. We are still in the calm before the storm. After 18 months on Lupron, nick is going to take a holiday...
So good to hear from all the "regulars" and the newly vocal lurkers. Even if the news isn't the best, the stories, the experiences all matter so much to me. To see where you all have been, where you...
Dear Sal, I read your post with great sadness on this late Friday afternoon. I so admire your keeping quality of life uppermost in your mind. We all need to make our own choices and be our own...
Welcome teenie, Breathe. It IS overwhelming. Butnonce you have a handle on the plethora of tratment options and the control YOU and your dad has to make choices, it settles out. I found this list of...
Nick's bone scans came back with no change in bone mets. And bone density holding up so no additional meds recommended. Zero club plus Viagra working--AND POSSIBILITY of HT holiday after next shot?...
Hello all. Yes, Hawaii was wonderful. Now we are paying the price by watching our weight. Nick continues on his bucket list buying spree. Several unwrapped gifts under tree from Santa. Guitar, a...
My husband hasn't had orgasms since starting the Casodex and Lupron. Viagra still working well after over 1 year of the HT so that is wonderful for me. He says it feels good. He just doesn't climax....
147 for my husband. First PSA test ever at age 65. One year on Lupron and Casodex and it sits at .01....
Hello, lisa and Frank, Wishing you all the best in this next leg of your journey. We head home from HI tomorrow after three glorious weeks of mostly PCa-free fun. Next rounds of scans in January. We...
Hello all, Thanks for all the news and despair and venting and ups and downs. I must admit to living more in moment while we are in the lull of successful HT. Plus, on the good news front, we leave...
Enjoy enjoy enjoy. Glad to hear the smile in your words....
I don't worry because my husband isn't and never has been a worrier. It is a remarkable thing to experience. As my first husband worried about everything and he didn't have a stage 4 cancer. I think...
Welcome fnp256 Long walks and screaming at the wildlife is good therapy. I live on a mountain and scare rabbits and California Quail often. And who knows what the coyotes think? Hope you and your...
Tough when it is your mother. . . To nip this in the bud, we set up a caringbridge.org account and simply told our close friends and family that we were limiting TALKING about the medical details. If...
Good news but mixed blessing for sure. Were you off HT long enuf to enjoy some reversals of side-effects I hope?...
Breathe. Keep reading. Keep asking questions. You have time, really. You have time. My husband was diagnosed in August--we spent time on second opinions, researching, had tests, had more tests, came...
As previously noted. Nick had Lupron shot #4 and <.1 PSA!...