Thank you! Yes, reaching 70 years old in June 2023 was not on my radar. But now it will have much more meaning to me and others close to me. Heck, I may even tear up!...
Posting to give hope to new T3Bs. I just hit 10 years since my Gleason 9, T3B diagnosis where I was given a slightly over 50% chance of living 5 years. I'm still here and currently on Lupron and...
I'm into my 3rd month on generic Zytiga. I met with oncologist yesterday and all blood work is great. I had thyroid issues after 8 months on Erleada and had to stop. Now 4 months later thyroid is...
I'm going on 2 months. I quit Erleada back in October after 8 months. The fatigue it gave me was just too much and my mental state was in a spiral down. I was prescribed Zytiga by my new oncologist,...
Hi Sparky9, I had a fast rise in 2020/21. I had been undetected after surgery in 2013 and radiation in 2014, along with 2 years of Lupron, until mid-2018. My PSA slowly rose for 2 years and then at...
Well I found out the answer to my question, "Why Erleada?". My recent PSA came in at <0.1. First time I've been undetected since early 2018. Also sides aren't as bad as I anticipated. Still have hot...
Hi Paul, I quit doing them for a number of years but recently went to a new Uro at University of Arizona in Tucson to see what he suggested for my stress incontinence. He said to start kegels again...
Very happy for you Steve! Also, glad there is more ammo for us stage 4 guys in the future! Thank you for updating us! Don...
I had my PSA checked on Feb 15th and it was down to 0.12, My liver is handling the Erleada with no issues so far. I was experiencing some heavy fatigue by late morning due to taking the pills at...
Thanks again for the replies. Yes, I have Medicare and it is covering all but $75/month of the $3,000 co-payment. I picked up my 1st month supply last Friday and started the 4 pills, once per day...
I just had Erleada (Apalutamide) added to standard ADT (Lupron) by my oncologist at U of AZ. I read that the TITAN trial showed it is effective for metastatic hormone sensitive prostate cancer and...
Mumbo, Yes I am on Medicare and have a BCBS supplement. Sounds like that will help considerably. I haven't heard anything from the coordinator. Apparently getting through the process can take several...
Thanks for the replies everyone. Jack64 - I'll be happy to help if I can. Mattam - I appreciate knowing that Dr. Gelmann is open to discussion on drug options. I'll see how the nurse coordinator does...
So I've just started with a new oncologist at the University of Arizona cancer center here in Tucson. I was at Mayo Clinic in Phoenix last May where my CT and Bone scans showed my L4 had a spot and...
Just noticed your post Cyclone. Thanks for checking up on me. Halbert- you are right. The Eligard is hitting it hard! My PSA came in at 0.3 at the end of June. I haven't had it checked again yet. I...
I had my pelvic CT and total body bone scans on Thursday at Mayo. Today I met with the oncologist who said both scans confirmed a met to my L3 vertebra and some lymph nodes were showing abnormal...
Jim, Thank you for your encouraging report. It is helpful to know that there can be breaks from treatment in my future. I hope to respond as well as you did. I will update after I get my scan results...
Thought I should provide an update. Over the last 5 month PSA rate has been increasing slowly at first but now seems to be faster. Dec 17th 2.7,Dec 30th 2.8, March 5th 3.1, May 5th 4.5. The...
Randy, my heart goes out to you. What an experience to go through! Since you mentioned that you "prayed" in your recent post, I guess I can say I'll be "praying" for you too! Hopefully you will...
NPLover, Thanks for posting. I'm right there with you knowing it's time to fight. We've both enjoyed "time-off" so to speak. Arm C does sound like overkill. I don't want to be so burdened by SE's...
Tomson, thank you for posting. It is so helpful to hear from someone that was in the trial. I hadn't done that math on the PSA doubling time but your example shows me how quickly my PCa could grow...
Thank you all for taking the time to respond. I realize that I needed a reality check. Gleason 9/10 cancer can get out of control quickly and if I let it do that to soon I may look back and wish I'd...
Hi again, So I am at a decision point on treatment. After 4.5 years after surgery(2013), 2yrs of ADT (ended 2015) and 62gy of radiation (2014) my PSA started to rise in July 2018. It has now reached...
Thank you for your answers. I contacted the Mayo Clinic here in Phoenix and was told they are not doing 2nd opinions until after the COVID-19 crisis is over. So with that news and what I read here, I...
I haven't posted in awhile but have been reading posts. I was hoping to get some advice about my treatment path. In summary, I was undetected for 4 years but in July 2017 my PSA showed at 0.2....
So after 4.5 years of being undetected my PSA in July was 0.07. It has slowly climbed to .2 as of end of November. My oncologist here in Arizona has put me on Dutasteride (Avodart) @ 0.5mg 1/day. He...
Thank you for your responses. I will continue with the plan for a retest in September. Since the PSA is so low hopefully it will stay that way for a long time. I was afraid that this meant I was in...
After over four years of being undetected my PSA came in at 0.07 when I was tested in July. I was visiting in Colorado so went to see my MO that I liked at the University of Colorado (UCH) His...
Very happy for you Gunner! We need this kind of encouragement!!!!...
Hi, I wanted to provide an update from a fellow G9'r. I am undetected as of Oct 2017! I'm coming up on 4 years since surgery and I've been off of Lupron since June of 2015. With all my positive...
Hi, We just moved to Sun City West, AZ and I was wondering if anyone has a recommendation for a medical oncologist in the area? I have been treated at the University of Colorado in Aurora by Dr....
Just met with my MO and the results are good. PSA <.01, T-393. Annual Bone and CT scans clear! He said "cancer free". Not too bad for a T3B, GL9 with all the positive margins etc. Gives me a lot of...
Hello Everyone, I just had my Sept Labs done and came in with another zero. My last 3 month Lupron shot was March 5th so the side effects are fading for the most part (except hot flashes). My T level...
Sonny, DonJ and Wendi will not be able to attend. Sorry to make you revise the list after you added us. A relative passed away in the NW where I grew up and I need to try to get up to Seattle to...
I am also a T3B. I was diagnosed in April 2013. After 2 years of HT (ugh!) and RP and ART I am undetected. I am on HT vacation since June 5th and in Sept have my next PSA check. Here's hoping that we...
My Hero, You have really been through an emotional ringer. There is nothing quite like losing a parent and in such a difficult way. You and you Mum are in my prayers. My Mother died from lung cancer...
I am also a T3B M0 N0. Isn't it fun (!???)...
Kristi, I am so glad to hear the good news! It was a pleasure to meet you and Paul at GFMPH! You are such a great advocate for Paul! He is very fortunate to have such a devoted partner! Wendi and I...
Wendi and I wanted to thank you Jeff and Pat (and Sonny & Neil and ...... everyone) for such a relaxing and fun time! We both felt revived after spending time with all of you and meeting so many that...
Hi goatts, I have been on HT since July of 2013. I was on Degarelix for a year and then Lupron until now. At first the fatigue was not too bad. It did get more noticeable the longer I was on it. But...
I meant "3" month Lupron shot not "2"month. Also, he said if after awhile my PSA starts to rise, he would recommend Chemo and HT....
Thought I'd post an update. I met with my MO on March 5th. My PSA came in at <0.01. So the good news continues! So far I've been undetected since after my surgery in Oct 2013. My MO recommended one...
Good to hear from more of you! LupronJim - I have really appreciated your posts! I am also looking forward to meeting you in GFMPH. BTom - We didn't know about the SV invasion. Biosy was T2. Final...
Thank you for the great welcome. It is amazing but I feel so good about finally being a member of this forum. I have read the posts here since shortly after my diagnosis in April of 2013. But joining...
Paul - I am lookiing forward to meeting you. I was with Dr. Crawford for about a year and then due to advice I had read here to get a MO, I saw Dr. Flaig USC (Anshutz Cancer Ctr). He took over my...
Thanks Lupron Jim. I think it would be really good for my wife to meet the other wives. It will be great for me to see the faces behind the names and advice I've been reading! I will wait to hear...
Hi Cajun Jeff. I just registered on the forum. I have been helped by this forum since diagnosed in April 2013. My wife and I are considering coming down from Colorado. Is there still room? We would...