Great feedback! The Decipher test was my surgeon's idea at my 6 month checkup. It was approved by Medicare. Perhaps, as Allen said, more data is needed to validate the conclusions. At any rate, I...
Today is my one year anniversary of RALP. Went in thinking 3+4. Post op, learned was a Gleason 8. Happy to share with others in the bad boy club that PSA is still undetectable so far. Had Decipher...
Merry Christmas from Florida where the temps say spring, and the flowers and trees are asking as many questions as the guys on here! It's all so confusing🌻🌻🌻 😎😎...
Good news here! Had surgery on 9/1 and have been progressing since with all the expected stages. This forum has helped so much! Anyway, my visit yesterday with my surgeon was as good as it gets. PSA...
Had the exact same issue. I am about a month ahead of you and have seen improvement...so hang in there. Try skipping the pad. For me, it helped to make me more aware of small leaks, and taught me not...
Bill, I don't know. All I do know is my PSA dropped in half after 2 months off T cold turkey. I'd guess your's will probably drop too. Then what? No biopsy or do anyway? That's the hard question that...
I was on T injections for close to 2 years. My PSA slowly rose to 6.8 and at that point, my uro recommended a biopsy. When the results came back positive (3+4), my uro wanted me to stop my bi weekly...
I had a pain sitting after my RALP. When I asked my surgeon about it, he said "does it feel like a pinecone up your butt?" I had to laugh, because that's exactly what it felt like. It did go away,...
Andrewski, Each day is a learning experience. My RALP was two months ago and I sit and do kegals like you, and hold them. I have a tendency to retain urine and find that patience helps with a more...
Allen, I've been trying to think of a way to help you for all the help you have given here. I figured it out! Hope this helps: "It was a dark and stormy night," :yeah:...
I had my post surgical follow up with my surgeon yesterday and I asked about general sitting and the space where my prostate was. He said that ONLY horseback riding and bicycling hit that particular...
Paul, Your wife sounds just like mine. I am the "what if" guy and she is the "everything will be okay" person. You will figure it out. She's probably worried about you and doesn't want you to go...
Nele, You are probably on the right track with the medication question. I have the same problem and have for years, even before the RP. Medications reduce sensitivity. He may not make the connection,...
I would say there is an emptying advantage Bill. I find I stop, and then 20 seconds later, pee some more, maybe 1/4 cup, so its more than a few drops in the urethra. On the flip side, the shortening...
Man, I hate it when Google says, "common in the elderly!" I knew before my RP that I had a problem with urinary retention. The urologist's nurse said I was retaining about 120ml in my bladder after...
Just realized I have not been yelled at for leaving the toilet seat UP for years! Now, post RP I definitely sit to to pee. And, prior to that with probable prostate swelling (presumed BPH) it took...
Agree with everyone. I found boxer briefs were great for comfort and drainage tube navigation. Around the house, elastic waist lounge pants (think sweat pants, but a cotton knit material) were...
Thank you everyone. I guess my question really means, "should I have done something earlier?" The more I read, the more this 8 roadside bomb scares me....
Is a Gleason 7 an untreated Gleason 6? If left untreated some more, would it become a Gleason 8? Or, is the Gleason designation simply describing the Agressiveness of the cancer? Would a 6 remain a 6...
Until this, I have never had a female for anything. I was surprised how well I reacted when my male urologist's female nurse came in the exam room prior to any dx. I felt totally comfortable talking...
Bump...
Thanks Rich and Allen. Surgeon didn't seem to make a big deal about the Gleason 8 because "the margins were negative." I was better when I knew less about the seriousness of G8. Now I am a little...
I'm probaby confused. I read a lot about 2nd opinions on biopsies. After RALP my Gleason path was Gleason 8. Of course, I wish it was lower. Is a pathology after surgery easier for a lab to read...
The results of this poll and the prior one both skew the data toward a younger demographic. My son is 42 and I will be pushing him to get a start on trying to figure out his baseline PSA. I am really...
Ken, Thanks for the tip. Cool idea. Paul...
Looking at my lab results, the Lab is Qdx. The Q made me wonder if this is affiliated with Quest. Anyone heard of these folks?...
Ken, Good point! There is no edit function to do that. People have had that complain since the dawn of internet polling. I can take a screen print and email it to you if you add an email to your...
This is the NEW poll. I did not know there was another that seems to have fizzled out 10 months ago. Please do not get confused. I guess you could enter in both. I think it's better to have only one...
How old were you when the doctor actually said, "You have PCa?"...
Big Mac In case I have confused you by changing usernames: Boomer of 1946 is now BrokenCrotch. Needed to have a sense of humor about this (my normal coping strategy). Paul...
Thanks guys for your encouraging words. This week has taught me to be patient with myself. I am fine all night long, but during the day, I go every hour and find that I am not peeing that much, so I...
Before my PCa Dx, I mentioned "frequent urination" as an issue to my urologist. They did an ultra sound before and after peeing. It showed that that I had retained ~120 ml of urine in my bladder...
For me, T made me feel 10 years younger, not 50. I took fewer naps, was more eager to do yard work, swim, and stay up later. I felt stronger and less fatiqued. I did not turn into a rabbit. I did not...
Allen, I did not know that. When I asked for Testosterone, my urologist wanted to check my PSA first before agreeing. When it was a little high, he put me on Cipro and said if my PSA goes down, I...
I found sitting a little uncomfortable. Dr. said, "feels like a pine cone up your butt?" when I went for Foley removal. Ha, Ha. That was a perfect description! Now, no longer feels like that, but 45...
Thanks Michael. I feel good. Cath out one week after. Three Depends Shields per day. Renamed Johnson, John, but getting that chubby feeling already. Since I was upgraded from 3+4 to G8 I have worried...
Did any of you take or use any type of Testosterone product for "Low T" prior to your PCa diagnosis? I did. I asked my urologist about it and he agreed as long I was closely monitored for an uptick...
Had the same concern. Bought a pkg of Tena briefs and a box of Depends Shields before Foley removal. Wore briefs home after cath removal and for a few days until I figured out what's what. Tried...
Similar story. Asked my wife to say nothing, not even to the kids until I was ready. Told son first bc he is in his early 40's and I wanted him to be watchful himself. Told daughter once surgery was...
Hey Big Mac, Well, thought this was to be a walk in the park. Not so sure since surgery about 3 wks ago. Still trying to understand the ECE designation to my post biopsy. Said margins were clear,...