Pratoman- I've rediscovered cycling relatively recently, and I'd probably side with you that "sore butt" and discomfort closer to where your prostate was are pretty different (and easily...
Paul- I got a second opinion on my post-op pathology from Epstein. My stats are pretty similar to yours (see below), with the same upgrade from G7 to G8. The reason why I wanted to get a 2nd opinion...
I was diagnosed @ age 44. Even with my family history, the discovery of my PCa was pure happenstance. I was going in for knee surgery, and my NP asked if I would mind donating a bit of extra blood as...
My 2nd opinion from Dr. Epstein was the best money I've spent on PCa (which, having Kaiser, hasn't been a ton....but you get the idea.) I did not get a 2nd opinion on my biopsy (hadn't been...
jronne- If you want to seek the opinion of a Radiation Oncologist, I can HIGHLY recommend that you talk to Dr. Milan Patel (specifically Milan, there are two Dr. Patels in SoSF) at Kaiser's cancer...
jronne- FWIW, I had no issues with getting the slides to Epstein (and back to Kaiser.) Rich...
jronne: I was not aware that Dr. Hsu was on medical leave. I haven't interacted with him at all since my procedure and follow up. If the Dr. Choi you are referring to is Justin Choi, then he is the...
jronne- As Patrick noted in his post, please take your time to review all of the options (including RALP) that are available to you. I'm sure you are doing this, but I think it bears repeating, as...
Interesting stuff, Allen, and thanks for the link to your commentary on the Sokolov study. I think the biggest impact of this information for me is to confirm my well-placed confidence in my...
I haven't been around much, but you can add me to this club, too. G 4+4=8 with tertiary 5, pt3a, +EPE, +LVI SRT completed end of April, uPSA <.01, next one in Oct. Rich...
Gunner34: My MO told me that one of the side effects of long-term Lupron use is bone loss. She also ordered a bone density scan for me, presumably as a baseline. I don't believe that this scan would...
:smilewinkgrin: Good news, Andrew!...
@TA - Thanks, Allen, great stuff. I looked at the UMich study last night. In the absence of specific research/study data to go on, I'm starting to lean toward at least 12 months, possibly 18-24...
@Peter - Thanks for the links, some good stuff to read there later today. Looks like there really isn't any study data that has deeply looked at Salvage + ADT, so perhaps the best guide is inferences...
@Peter - :cool: I think you may be selling yourself a bit short there, and I appreciate you jumping in to voice your opinion for sure! I agree, data would be great, only I am not certain that there...
Shameless reply to my own post to move this back to the front page. Very interested to hear any input/thoughts, etc. Thanks! Rich...
Ok, setting aside for a moment that a year ago, I thought ADT was the company that monitored my alarm system, and SRT was a designation that Dodge gave the sportier versions of some of their...
@Allen - My RO laid out prostate bed+lymph node RT as a more aggressive approach (than just prostate bed alone) given that we are already talking about taking a stab in the dark about where any...
@Allen - I read your article, as well as the "Low Detectable" one and found both useful. I've done a few monograms along the way. I which are you referring?? ...and, of course, you are right. The...
Just received my third post-op uPSA results, and have now gone .04, .05, .07 respectively (surgery 5/14, first uPSA 7/14.) Far from large numbers, I know, but certainly not a trend that I was looking...
SciLife: I can't speak specifically to Dr. Martinez, but had my RALP done by Dr. Hsu at Kaiser Santa Clara back in May. He is incredibly experienced with the procedure (does a ton of them), and I...
JSHill: I was diagnosed 7 months ago at age 44, so all the things that you and your husband are going through are very fresh in my (and my wife's) mind. My best advice is to take the time to fully...
I found this to be a very interesting read, and plan to chat with my PCP, Uro and RO when I see them next. It certainly doesn't change anything for me at this stage, but I like to be well informed,...
No ideas for you on the incontinence, but CONGRATS! R...
Thanks to everyone for sharing their input and experience. I've got some more reading to do, discussions to have with my Uro and RO, and some serious soul searching to figure out what path makes the...
Congrats! May I suggest Laphroaig 18yr? R...
Keep it coming, guys, thanks!! @ JackH - thanks for the link, I did find that one, too (and a few others.) All of the information I've found thus far seems to track with those findings - Tertiary 5...
Sammas- I'm 8 months past my initial PSA test. My first one was 3.4, which is high for a man at 44 yrs, and surprised both my PCP and I (I do have family history by the way - father.) My PCP and I...
Peter- Thanks for your reply. I look forward to additional input, as this is definitely one of those times where I need to gather everything I can to try to make a go/no go decision regarding...
Morning, all. In my continuing quest to ensure that I am properly armed with accurate information about my disease, I sent my post-op pathology slides from Kaiser off to Dr. Epstein at JHMI. While...
Thanks, all! Fortunately, I'm a home brewer, so I have a ready supply of beer to celebrate! :) Rich...
I officially submit my application for the Zero club. Ultra sensitive PSA confirmed previous results. .04 at 10 weeks post surgery. In October we'll see if this is stable, or trending one way or the...
Thanks, all, for the warm welcome! Andrew, I may reach out to you at some point for more details on the cancer center in SC.... Rich...
ITS: When you say you had RT in the same place, do you mean Kaiser Santa Clara? The RO I met is in So SF, and my Urologist is in Redwood City. Did the RALPH in Santa Clara as they have the most...
Gedman- My age is up there in that novel I wrote, but a bit buried.....I was 44 at diagnosis, and have since turned 45. At this point in time, we are merely getting educated on RT options, as well as...
Hello, all, new member here. I have been lurking here on and off for the last few months, only recently signing up. Thought that I'd come out of hiding to say hello. In December of last year, I was...