Dr. Bill, William Mendenhall....
hrpufnstuf, My RO said that it is not uncommon to have the PSA bounce around a bit. Since there is still a Prostate gland that produces PSA. He said he would not be concerned unless it jumped up to...
Hope to see you next week. Glad you are doing well. Regards, Kris...
Just had my 5 year post Proton treatment PSA and it came back 0.6, it has been at 0.6 for a year. I will take it. No lingering side effects from treatment. Happy New Year to all. Regards, Kris...
Happy for your results. I am almost 5 years out from treatment at UF Proton. No side effects, PSA has bounced around a little but still doing well. Sorry you missed the balloons. ;-)...
PSA fluctuation can be unnerving. The combination of radiation and hormone therapy can lead to some bouncing scores. Nadirs sometimes can be elusive, but it seems you are not close to 2 points over...
Beth and family, So sorry for your loss. Best regards, Kris...
I would definitely make sure the doctor that does the colonoscopy is aware of your radiation treatment. I would ask the RO for a letter describing your treatment and possible issues in your colon...
I do like those licorice allsorts, will tell the wife to get me some more medicine when she goes to grocery. ;-)...
Baddabing, Glad you managed to get coverage and don't have that money stress hanging over you. I wish you very low PSA from here on out. You as a patient, with your doctors, should decide on...
Baddabing, I too had BC/BS fed & they paid for my treatment, I paid $35 per treatment co-pay. Very surprised that they have refused to pay. Have you exhausted all your appeals? If you need to talk,...
Happy Birthday, Andrew....
Bui, In Houston, check out MD Anderson, comes highly recommended. Good luck, Kris...
A probiotic supplement might be helpful with bowl movements. Was recommended when I went through treatment....
Baddabing, Thanks for taking time to relay your story. UFPTI is fantastic and I am sure you made some lifelong friends. Glad to see your PSA is moving in right direction. Best of luck, Kris ps. I am...
junbug, I used Aleve and it was sufficient for burning sensation while urinating. AZO was also recommended as an alternative for the burning. Either would probably be fine. Your urethra gets...
Andrew, very happy for you, congratulations. Regards, Kris...
Go Gators! Born in Hogtown(Gainesville) now live at the beach. Gonna evacuate, can't be too careful. We lived through a Cat-4, Hugo in Puerto Rico, nothing to mess with. Stick houses will be a slab...
Robert, I suspect a bounce, you still look to be doing fine. Just test it again in 3 months or so. Keep us posted. I had a bounce at 2 years post treatment, check my signature. Regards, Kris...
Hi Dan, Like your brother, I had Proton with 6mo ADT. The hormone therapy is temporary and side effects will lessen within 6 months to a year. No regrets here. for Paxton, in regards to markers. Your...
I know it is difficult, but keep positive. Bounces are quite common after primary radiation therapy. I know that when you are going through it, it feels like it is going to be bad news. I had my...
42 month post Proton radiation treatment, steady at 0.3. All is good, time for a beer. Regards, Kris...
David, You seem to be a good candidate for radiation + HT. You should be seen by a radiation oncologist for their opinion, don't place too much weight on your hospice friend's advice. I am sure he...
Nothing but praise for UFPTI and my course of treatment. No regrets, would choose proton again if I had to do it over. With minimal side-effects there seem to be fewer proton patients contributing to...
Not in Knoxville, but if you contact the facility they will probably have a support group and you could attend. Good place to get your questions answered. Good luck if you decide on proton treatment....
I did a lot of bike riding and walking throughout treatment. No issues, but just as a reminder, stay well hydrated. Ride on, Kris...
This is Fantastic! Glad to hear it. Regards, A fellow 0.3...
Exercise is great, just make sure you keep yourself well hydrated. Good luck. Cheers, Kris...
Happy with Proton radiation as primary treatment. No incontinence, sexual function was not affected except for dry ejaculate delayed for about a minute or two, then a trickle of seamen. No muss no...
Downward trend is always good. Good Luck, Kris...
Paul, You are still in a downward trend, looks fantastic to me. Congrats. With radiation as your primary treatment, you still have a prostate and it can and will produce small amounts of PSA. You...
Sent you an email. cya...
Glad to hear your bleeding and minor pain are subsiding. If you are going to the UFPTI luncheon next week, maybe I will meet you. It will be my 3rd year anniversary. Glad you are doing well. Regards,...
Gumby, High grade PCa can sometimes produce little PSA. Biopsies are not fool proof and can miss the cancer. I hope in your case it is not, but PSA velocity bears closer inspection. This is how my...
Jane, Hang in there, Lupron will take 6 months or more to clear out of his system, his libido should return, and hopefully everything will still work as before. His PSA could bounce around for a...
I heard that milk was not good for prostate cancer and I used to drink a lot of milk, at least 1-3 glasses a day. I gave it up and started drinking almond milk, don't drink it much as a glass of...
soxx, That is a really great initial drop. May all your PSA scores continue to drop until it settles down. Regards, Kris...
Paul, I went through those emotions just as you are experiencing now. It is tough. The thought of not being able to make love to my wife was very difficult to try to get my head around. My urologist...
Welcome Rain, Good luck in your journey. Regards, Kris...
House_rocker, Contact a Proton facility, I am sure they will be able to tell you if you are a candidate. I read something on line that said I was not a good candidate for Proton, but was told...
81, With IMRT as your primary treatment, 0.1 is fantastic, your PSA can jump around post radiation. I would not be concerned and see what happens after your next test. You still have a prostate and...
D, Good luck with your treatment and I hope you have no side effects. Making the decision is hard, no two ways about it. Regards, Kris...
Denhaagdude, One possible side effect from radiation is rectal bleeding, I was told this is normal as your rectum wall heals from the radiation. Not sure if discharge is clear, but if it is...
chatalaine, I had Proton almost three years ago at UFPTI. What a fantastic place and great doctors. No side effects, everything works and life goes on. I had BCBS Federal plan and it took care of...
It does take a while for the PSA to settle down after radiation, don't panic if it is higher. As the cancer cells die, they give off some PSA. Good luck with your first post treatment PSA and may...
David, Thank you so much for sharing your journey. You give so much to this community, and it is appreciated. We all wish you were not having as difficult time as you are. You are always in my...
Interesting, at 45 my PSA was 1.1 Thanks for the info....
Purely anecdotal evidence, but conversations around the water cooler, seems like those on Lupron seem to have the night sweats and those on Trelstar do not. Still have hot flashes during the day, but...
Maybe someone should remind them for Movember :-)...
Texan_2015, Sorry you have to be here. I would check out Proton Therapy, seems there is one in your neighborhood. http://www.texascenterforprotontherapy.com/ I know nothing about this facility, but...