My husband was about 4 months post prostectomy when we attended the conference. He is a Gleason 4+3, clean margins but with a bit of extension to the seminal vesicles. At that time our heads were...
We are pretty pleased, the doc said statistically we beat the odds for his pathology. I don't know if he was just trying to let us enjoy the moment or if there is research to support that statement...
I haven't posted in a while, but the husband had his 2 year 4 month post surgical PSA and it was less than 0.03- undetectable! With his ambiguous, intermediate risk, 4+3 Gleason we wear our hearts in...
I read it and I'll chime it!...
My husband and I attended two years ago. A wealth of knowledge is there for the picking. I would definitely recommend you attend if it is within your means....
Here's hoping that everyday is not just a little bit better but rather a whole lot better!...
Thanks Cyclone! I recognize how fortunate we are and feel grateful for every day that things are somewhat normal for us. I am also grateful for the knowledge gained through others who are farther...
Hubby had his one year post surgical appointment and PSA....less than 0.03!!! Phew! What a year! Thank you to everyone who help me support my husband. He is a strong capable guy who handles...
We are the winners of the, "Get it out, get it out!" race. Diagnosed 3/11/15 RRALP 4/2/15. Was it the way to go? We will never know, however since the surgery we have: 1. joined this forum 2....
Sorry you have to be in this tough spot Kidscaddy, but this forum will get you through. Make sure you go with your husband to the consult following the biopsy. Read up on what happens if... My...
My husband had continence/confidence issues for about 8 weeks. He gradually became continent but was always afraid of an accident. He wore shields for about 4 months, whether he needed them or not...
Congrats! We go for our one year test this week and hope for a less than as well!...
Swimming is the best! We are a big water family here-can't wait to take the cover off the pool!...
Im just going to tell you. give it a year. We are at 11 months and spontaneous erections are almost here. A 90% wood without meds. But it didn't seem possible six months ago. Be brave and keep trying....
It's human nature to trust the experts, but in this scenario you need lots of experts. Find the PROSTATE ONCOLOGY expert in Detroit, not just an oncologist.Find the urology EXPERT in Detroit. This...
If you are a reader, get Dr. John Mulhall's, Saving Your Sex Life book. Then follow it. Hubby is also 11 months out, no Lupron or salvage at present. Erections were not really happening with daily...
My hubby was low in Vit D and intermediate risk. Both of his brothers, (one older, one younger) have outdoor jobs and are as of yet, not stricken with PC. His father, who also had an outside job,...
I'll remember! I might even start earlier than a week before! But honestly, it did relieve the work a little bit just venting!...
Sounds like you are on to something as far as diet goes. We love our meat in our house, but switching to a fish filled diet wouldn't bother us a bit. Low carb works for me but that first two weeks...
All went well! Less than 0.03! Undetectable again. Safe til May... Thanks for the good thoughts all!...
Thanks Prato. I'm generally an optimist and so is my husband, but every now and then I worry. This is one of those times. The good thing is we get the results with in an hour or so of the test and...
Tomorrow will be the nine month post RP PSA test. Both of us are nervously optimistic. All good thoughts will be accepted with gratitude......
I was hoping you'd respond Allen. Frank's pathology at 4+3=7 is unsettling and we did the decipher test to get a different angle on the situation but there doesn't appear to be a differnt angle. At...
Hubby had the Decipher test done and his results say he is an Intermediate Risk consistent with average clinical risk. His five year genomic risk of metastasis is 7.3%, 94% 5 year metastasis free,...
What great news and what perfect timing to make your holidays just a bit merrier!...
My husband's JP leak was the reason I found this forum. His leaked so excessively no surgical pad could contain the leaking for longer than 10 minutes. The tube was removed when he left the hospital...
None can see her for two months. Is that common?...
Thanks! She is so frustrated. She has four kids and a job and needs to get a solid diagnosis and treatment....
My co worker believes she has lupus. She had been treated several years ago successfully, but now thinks she is flaring. She has groin pain, joint swelling to the point of being unable to walk. We...
So sorry you've lost your dear father. It's not easy losing our parents. It just isn't....
Just the kind of news we like to see! Yay for you!...
Same for my hubby. Lessens over time. I recommend steamy shower fun. Then nobody notices......
Oh and one more thing...there are no stupid questions...just ask!...
Another wife here. I vomited and cried too. Oh and over researched too. In the end none of that helps, but what does help is staying normal as long as you can. Cook that turkey, cuddle or whatever,...
My husband had issues with beer. Seemed to cause him to leak. Wine and cocktails were ok in moderation but beer is the enemy now. I don't know if this is true for others but sure is for him. He is...
Hugs and prayers to you. Hang in there....
It is most certainly a difficult decision. Although it's water under the bridge, I often think my husband and I jumped too quickly to surgery when we could have spent a month researching. We failed...
When it rains, it pours. So sorry about your dear doggy. Praying the PSA is an error....
Seven years! Very encouraging to those of us still getting used to the idea of living with PC. Congrats!...
Dang it! I always forget the
Just had the six month post surgical PSA and the results were great-0.03! Also had a consult with Dr. Lam in Marina Del Rey. He spent at least an hour establishing our post surgical baseline and...
We have been boldly injecting for a month ( not daily dear Lord,) and it has worked very well for us. Took a few times to get past the stick, but now we are enjoying our bravery!...
My heart goes out to you. Yours is a post we do not wish to see. I pray for your continued strength as you move into the next phase of being. I hope you can take comfort knowing you did your best and...
My husband's 6 month post surgical PSA is in 3 weeks. Trying not to think about it, but it's such a big deal that it can't be forgotten. We have started to build a "game plan" for what to do when and...
If I could chime in here, make sure your second opinion is with the best doctor you can find. There is no use seeing someone that does not specialize in prostate cancer. You may get the same advice...
Hubby and I attended this conference for the first time. We got a world of information. We feel prepared for whatever next month's PSA test brings. We made a decision to have a consult with Dr. Lam...
So my husband had a similar biopsy and his uro said we should just watch and wait, which we did. Eighteen months later he had a second biopsy and at that point 5/12 showed adenocarcinoma. That's when...
Is it one defective bag or have you tried another one? If so, could you change brands? Your doctor can request a different kind....
Where did you have your surgery? Maybe the surgeon can suggest someone?...
PeterDisAblard. We have 1/2 inch 30 gauge. Still summoning up the courage to have another go at it, plus have been inundated with company so there's not been a good moment to try again...