Fiddlecanoe - I am going to try decaf tea for a few days and see if there is any difference. thanks for the idea. Teddy...
Fiddlecanoe Can you drink decaf coffee or did that bother you also?...
Looking for guidance from others who have had to regain bladder function. I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for...
Looking for guidance from others who have experienced this. Briefly, I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked...
Likely radiation cystitis. Suggest you get a bunch of intermittent catheters that you can use . Probably a size 16 French diameter. If you run into blockage you can alleviate the clots with these....
Wren Let me ask if the foley is really a supra pubic tube that extends thru the skin. It would be a foley but not thru the urethra. I was advised to get this because of difficulty catheterizing and...
Wren Don't worry. HBO2 treatment is fine, and I assume he has radiation cystitis. My cancer is still present, as you say in micro-cells, but that does not matter. I let my PSA rise from around 0.01...
Wren My Medical Oncologist said I can have the HBOT even with prostate cancer, and in my case, I have a couple of prostate cancer nodules in my lungs, which is why I asked the question....
Tomson, Yes I have had 20 hyperbaric oxygen treatments in August and will have 20 more in January....
I had a recent bout of hemorrhagic cystitis that landed me in the hospital. The ER doctor had difficulty inserting a 20 French Foley catheter and called for a urologist consult. The doctor was very...
JR, I will have another cystoscopy early next year. Previous ones show inflamed blood vessels near bladder neck. I will advise outcome. Did you do all 40 HBOT treatments all at once, or did you do...
Cigfred, thanks for your comment. I am wondering if you had any episodes of hematuria while on firmagon? Also were your hematuria events short lasting, meaning a day , perhaps in the hospital with...
I have experienced 3 bouts of Hematuria with clots this year that sent me to the hospital ER because of blockage. After the first, I was advised I had radiation cystitis, which was 6 years out from...
A few weeks ago I was in the emergency room at my local hospital because I could not urinate anything but a few blood clots. The pain was unbearable until they could catheterize me with the out being...
I just had a pylarify PSMA scan at Mount Sinai Hospital in NYC -and they advise Medicare will pay for it. Also I am aware it is available near Washington DC - see this: www.woodburnmed.com...
My recurrent prostate cancer is tracked by PSA level and over the past 6 months my PSA level has leveled off to around 2.3. March and June quarterly numbers were identical, and the increase from last...
Djin, I recall that the hospital where I had the surgery keeps the tissue for 20 years, however I do not know if the tissue is viable for the genomic testing. I will investigate. However, given none...
Yes. But I have not found any lesions....
Thanks for all these comments. Yes my medical oncologist as well as the radiologist who read the recent Ga Scan said micrometastatic tumors is likely what I have and too small to pickup even with the...
I had prostatectomy in 2013 with Gleason 4+3, followed by salvage radiation concurrent with 6 months ADT. PSA has continued to rise while doubling time is getting slower, around 12 months as of March...
Thanks for posting that link....
Does anyone know when the Gallium based PSMA PET/CT scan results from various clinical trials would be submitted to FDA for approval? Or has it be submitted and we are waiting for approval? Thanks...
Howard, Yes I had axumin and that is Medicare approved. Teddy...
I recently enrolled in a clinical study evaluating a Gallium tracer in a PET/CT scan. I knew in advance that Medicare would not cover the cost of the scan nor the cost of the Gallium compound, both...
DjinTonic - thanks for the reference. Teddy...
DjinTonic - Did you mean to say my PSA is high enough so either tracer would work? I did not have PSMA assay to my knowledge. Teddy...
I need some guidance on next steps to deal with my recurrent prostate cancer. [Surgery for Gleason 4+3 March 2013, IGRT radiation concluding May 2016 with concurrent 6 months ADT) In April 2018 I had...
I am in a similar situation and my MO has advised waiting until PSA is around 5-10 unless DT goes lower. I plan to get an Axumin scan when psa hits around 2 since I believe that there is a higher...
I had this issue for a very short time and found that I could eliminate it by watching my diet carefully. Minimizing dietary intake of certain vegetables, grains and beans seemed to help. I could eat...
My biggest regret was not changing urologists sooner. After a psa rise of 1 to 2 in one year and a negative biopsy, my urologist said ' you have no cancer, come back in a year." I was relieved. What...
Suggest you check your weight with a different scale. And weigh yourself first thing in the morning after urination. You should not be losing 1 lb per day ! If you stop eating carbs most people tend...
AK In my case I want to delay ADT for as long as possible, since the amount of time it remains effective is limited. But one cannot know in advance how long that will be. At the extreme end, there is...
Thanks ak. I was expecting 0.8, so slightly disappointed and surprised, however no change in continued active surveillance Teddy...
Your psa is too low for a PET scan, even the newest kinds using Gallium or other tracers with PSMA, such as they are testing at NIH in Bethesda or in other major university hospitals. Generally need...
I just got the first shingrix shot last Thursday morning and was fine all day. Next day my arm hurt- painful to touch / press but manageable without any painkillers. But I felt tired, worn out, and...
I think your hormone therapy has shrunken the node or reduced the level of cancer which then makes it harder to spot. Axumin generally requires PSA greater than 1 or maybe even greater than 2, so it...
AK I had been wondering how you are progressing. I would wait and do the NIH scan - my MO says I can wait until much higher psa (4.0) unless PSA velocity increases (DT decreases). Presumably you can...
avoid fruits and fruit juices in the evening as well as caffeine, tea. see if that helps. you might be getting bladder spasms that force urine out....
For me, having certain fruits in the evening triggered urgency, especially watermelon and cantaloupe. Avoiding citrus fruits and other very acidic fruits might help you. I drink mostly decaf - coffee...
I had IGRT radiation after recurrence, along with 6 months aDT. The Radiation was not a big deal - very easy to tolerate (for me). No significant side effects. However, my psa has continued upward...
For bladder volume consistency, I used a portable urinal that I put in my gym bag to measure volume after radiation. Over a few days I got a good sense of correlation of bladder fullness to volume -...
AK I think if the area of the lesion is amenable to a biopsy, it is worth trying to obtain that, since it may give you the definitive information you need to make an informed decision on treatment....
I had to deal with this with my kids - first time in their mid 20's then again around late 20's for recurrence. I told them early on, well ahead of the treatment, as soon as I knew that I needed some...
I had 1 small lesion identified by MRI and the doctors at Weill Cornell back in 2013 advised that because it was a small area (about 5mm as I recall), I needed to have a MRI guided biopsy - done...
AK123 Yes I am fine exchanging info etc. We can continue to use this posting if you are ok with that. Not sure how to send a private message - I cannot find that anywhere Teddy...
AK123, Good to hear from you. Yes, my MO is at MSK in NYC. I have confidence in him and one of my previous urologists also said around PSA 4 is ok. Dr at MSK advised psa 4 is ok as long as psa...
I have had RP, IMRT with 6 months ADT and my PSA has been increasing slowly following recovery of testosterone (although serum level is slightly low). PSA increases exactly at 0.1 every 3 months, and...
Ak, Glad I could help. You will be fine. Stay abreast of new developments. Teddy...
AK I thought I replied to your last question a while back, but I see it did not go through. Let me say I am not worried about the future except that I will have to figure out the best way to manage...