I transferred my care from RO at UMass Medical Center to MO at Dana-Farber in 2016 when my PSA rose to 0.2 six years after SRT. We monitored for 2 years as PSA slowly rose. MO recommended not...
I guess I'm a 20+ year statistic. Surgery, radiation, ADT. Never cured but still here. See my history in my signature,...
David was a fellow Vietnam coastal surveillance sailor, him mostly overhead in one of the P3 Orion's my outfit would get radio reports from. Fair winds and following seas, shipmate....
I started ADT with Firmagon in 2018. Previous treatments were surgery in 2002 and salvage radiation in 2010. I started a very slow increase in PSA in 2014, but with PSA still at low levels -- two...
Sorry for your loss. I know how much it hurts....
>>No significant side effects? What the heck? How did you manage that, Brother?>> Fair enough - I have lost muscle and gained fat. But otherwise, I don't have hot flashes or fatigue. And all my blood...
Thank you Todd. Very well said. As always, you are our hero....
I started having rising PSA about 2 1/2 years ago after being on intermittent Lupron for several years. My MO added Zytiga 1000 mg plus 5 mg prednisone daily, which brought me back to undetectable...
I never felt I was mistreated because I was a Vietnam vet. Well, there was an incident in a bookstore in New York when I showed my military ID to write a check. But by then, at the age of 22, I could...
A former neighbor was widowed two years ago after her husband died of lung cancer, just a couple of months after he was diagnosed. He was marine RVN vet and hadn't filed a claim for Agent Orange...
I was on Lupron for a few years and then Lupron plus Zytiga (not Xtandi) when the Lupron by itself showed signs of failing. Last spring, after about 15 months on the combination, my MO discontinued...
Great news Steve and what I know was an anxious wait for the results. Jim...
FormerMarine, I have nothing to add to what others have said. Though as a former sailor with a year on the ground in RVN, I Corps, Marine country, in '68 I absolutely love and respect US Marines. I...
Thanks so much for the encouraging update. I'm among those watching pioneers like you for where to go next. Jim...
I spread mine out - a few minutes apart over a period of 15 - 20 minutes. But, on the few occasions I've taken them in quick succession because of need to get out the door, I've never felt nauseous....
Sorry, I don't know of a melanoma forum, though there probably is one out there somewhere. But FYI I had a large - size of a quarter - melanoma removed from my back in 1985 and I'm still here. Biopsy...
Thank you Steve for continuing to share your experience as an Lu-177 / Pluvicto pioneer. It wasn't that long ago that Zytiga and Xtandi were in trials. Now they are standard of care for most advanced...
The May 2022 issue of Consumer Reports has an article "Save Big on Rx Drugs." It recommends comparing prices at a number of online and big box pharmacies where it is often possible to get otherwise...
I found the trial for interruption of hormone medications at clinicaltrials.gov. It is enrolling at hospitals throughout the US. From the trial description, among other criteria, it is open to...
I'm posting this here as a new thread rather than in the "Zytiga Our Collective Experience" thread, where I'm afraid it might go not noticed by those of us who are not discussing our personal...
Since your PSA has returned only after your last Firmagon injection some months ago, have you been told you need to go on anything other than just returning to Firmagon? That seems to me to be the...
If your doctor's agree, you might switch to Abiraterone Acitate (generic for Zytiga). Your insurance plan will probably still hit you for $10k or more per year, but you can buy it directly as a...
I've been on a BC/BS PPO advantage plan since I retired 12 years ago. Compared to the premium for a supplement plan it has saved me money over the years. BUT, and it's a big but, I also have coverage...
I've been on Lovastatin for years. Currently Cholesterol is 160, triglycerides 53, LDL 98. To my best knowledge I have no side effects. Are my knees stiff? Does my right knee hurt sometimes? Hell...
My daughter was diagnosed and treated for breast cancer when she was no more than 45. I can't say how grateful I am that she didn't have to wait, while the cancer progressed another five years before...
Great news. Keep us posted....
Racquetman, I'm 77 years old and have been on ADT for a few years, first with Degaralix, later Lupron and now with both Lupron and Zytiga. Please don't believe only the negative reviews. People's...
Prostate cancer wasn't a scare because I didn't think there was an imminent threat. As it turns out so far, I was right. The bigger scare was melanoma in 1985 - a mole the size of a quarter removed...
I see no valid role for a federal judge overturning any treatment that has been approved by the FDA based on valid medical studies. As for cost I am one of presumably a small number of advanced PCa...
I've had my treatment at Dana-Farber since 2016 when my PSA returned after salvage radiation. I can't say enough good things about D-F. I've had personalized responsive care at D-F from my oncologist...
Treatment for most of us is not as bad as you might think. After surgery, radiation, Lupron and now also Zytiga, I'm still me and I'm still active. Growing season is returning here in the northeast...
No need to fight. Just enjoy life. It amazes me every day that my atoms and molecules somehow ended up sentient -- able to perceive and be amazed at the universe around me. I don't think any rock...
That is a serious pathology report, but no, it doesn't mean you are toast. There are so many new treatments now that didn't exist even a few years ago. I was never a Gleason 10, but was T3b after my...
https://www.youtube.com/watch?v=wLRlbsBJhio ...
A few years ago I was on Degarelix full-time for a year and then I was able to go on break for over a year. That first double shot actually has 3 times the dose of the following monthly shots. What...
I don't have a vote in whether you in particular need statins. But I will offer that I've been on Lovastatin for quite a few years with no side effects that I've noticed....
Could it be from acid reflux? Just a guess. But if it's happening in the morning after laying down all night, it might have something to do with stomach acid in the esophagus. You'd better ask a...
Todd, You are my hero and I hope my role model. I am just closing in on the end of my first year on Zytiga. My MO at Dana-Farber tells me given my history he expects it to work a long time for me. My...
Best wishes for good results with the Pluvicto. Lupron and Zytiga are still working for me, but like some others here I expect to see Pluvicto further down this road. Jim...
I'm also in the Boston area. When my PSA rose a few years after RP I had SRT at UMass Medical Center. A few years after SRT when It rose to 0.2 I moved my care to Dana-Farber. In retrospect, given my...
We all have different ways of dealing with uncertainty. These days I'm back under treatment so I'll be on quarterly tests forever. But in the years after SRT before my PSA returned I was tested every...
One more thing. This being open enrollment time for Medicare Plans, I compared my present BC/BS plan with other plans in my area (central Massachusetts) using the Medicare.gov site:...
I posted this link from a Consumer Reports article about online pharmacy prices last spring. I'm among the lucky few who qualify for free prescriptions including Zytiga from the VA medical system. If...
I'm on a BC/BS Medicare Advantage plan, that covers my care at Dana-Farber, but when I went on Abiraterone I arranged to get that prescription filled for free by the VA. This being annual enrollment...
Mel, Have you had Zytiga or Xtandi yet? The reason I ask is because three years ago after I'd been on a year-long break from ADT I had an Axumin PET scan before resuming ADT. The scan showed an...
Michael, Here is a link that explains Gleason grades and scores and also a bit more about things you might see in a pathology report. I've had prostate cancer for 20 years. I now get most of my...
I had an upper rear molar - #2 - extracted two months ago. There is now a gap between #3 and the wisdom tooth. I have all of my other teeth. Since the site healed, the gap doesn't bother me. I won't...
Thanks Djin. Very helpful. I've added this to my archive for future reference. Jim...
In my previous post in June I said I had a molar that had to come out due to failure of the second crown on it with not enough left to accept a third crown. I had the tooth extracted 6 weeks ago It...
I was a teenager in the late 50s and early 60s when rock and roll was all over the radio. With a few high-voltage exceptions like Elvis, Jerry Lee Lewis, Chuck Berry, Little Richard, Aretha Franklin...