Welcome Sneddoh (John), from down under! I am BillyBob(Bill) from Tupelo, MS, USA. We sound almost identical 1st 18 months re: "After biopsy I was labelled G9 (4+5) and decided on a radical...
"Just a bit of background, in response to your query ~ CYCLONE ~ # Iowa State University". Thank you so much for those details! Bill...
Thank you, Cyclone, for the response! Your results show that these ADT drugs can be effective for a long time indeed! So, you started ADT immediately at diagnoses, and followed later with chemo and...
Oh, man! I tear up just reading about other people losing their beloved pets. The last 2 times, over about 12 years, hit me preposterously hard. And there are going to be at least 2 more (hopefully...
Hey, questions about PSA for every one who started ADT after they were diagnosed as stage 4: 1: Did you have additional RT or even surgery( added to whatever the original treatment some time ago), or...
Thank You, Jim! So, it sounds like people vary then? On a break for almost 2 years, still undetectable? WOW! Bill...
You, Sir, are a lucky man, even if not zero SEs. Good for you!...
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Thank you, Todd....
Thanks, Bohemond and Mattam for your comments, very useful info. Mattam:" An an aspect of trial not much discussed is Intermittency. At week 37 any participant in any of the 3 arms who is...
Orgovix + Erleada have done a fine job on my stage 4 PCa. But, IF ever safe to do so, I want off of these drugs ASAP. I want as much testosterone back as is safe, at least if the odds are low of that...
It would be the hootiest of hoots. I took papers describing this approach to my PC docs/NPs when 1st starting ADT a bit over 2 years ago. They had never heard of it then, and still have not as of a...
Thank you, Racquetball77! May you be able to get off that stuff at least for a long while, and may that result in you regaining some energy! I have the same wish for myself as well....
.......................................................................................................................................................... Hi Racquetball77, I am very interested to...
Now that is a very interesting post! About a forum where physicians let their hair down and don't give a hoot. I'm pretty sure I have posted here a few times about some physicians I have worked with...
Jack, that's pretty consistent with what other PCa patients have said here over the years. I recall lots of comments about how he was generous with his time and personally interacted with folks. Out...
Marine, all I can say is you have a heck of an interesting story. I have scans coming up on Jan 9th, and after that I plan to give a summary of my entire "recurrence" experience. But, I will say this...
Thank you, Stephen!...
Thank you, TJ. Yes, #1 Grandson is indeed a sharp cookie, as well as a hard worker. A good thing since he is working his butt off. And #2 Grandson, 3 years younger, appears to be progressing right...
Thanks for that, TJ. And, I can personally attest to the kind of stress most MDs are under. Even as a CRNA, I had a good bit of it myself, particularly when I did not have an MD...
You make a good point. We forget that all medical specialties are trained at certified centers and pass the same boards. (assuming they are board certified). I recall when I had a severe...
Apologies for the offense, Tim. None was intended. Bill...
.................................................................. I notice at the very top of the list of risk factors, tied with smoking, is "BMI". Since, in my experience at least, by far the...
I'm surprised that you're still flogging that dead horse, Avermectin. ........................................................................................................ Watching doctors lie...
Boy is He! Your case is quite the miracle! Bill...
.......................................................................................................... We actually agree!...
(My usual long rant, as in days of old. Here is the TLDR version: maybe he did wrong, maybe his accusers are doing wrong. We probably will never know. If you are willing to go even further, perhaps...
I might have. After a G9, It took me 6 years after surgery (only) to reach BCR. The surgery showed clear nodes but a tiny positive margin + seminal vesicle invasion. I stayed undetectable- < .01...
Thanks, Glen, for the clarification! Bill...
....................................................................................................................................................... Hey Glen, I am a bit confused. So, you were on...
Wayne, I'm not sure I completely understand you are asking. It seems that your PSA ( when?) at the VA was .02? But, in August at UT Southwestern it was 0.13? So, you are concerned about the increase...
My concerns about loss of revenue interfering with acceptance of BAT are(probably) incorrect. As I read further into the long article, I realized that BAT is the usual ADT drugs PLUS large doses of...
Mattam: Great article, BTW. Thanks....
I began talking to my docs- who currently have me on Ereleada And Orgovix for about 2 years now- about BAT near the beginning of being put on these drugs. EDIT: long post edited by me after I read...
So, adding this to chemo had these results: "...........We conducted a phase 3, global, double-blind, randomized, placebo-controlled trial. Eligible patients with primary advanced stage III or IV or...
But, already, this does not sound as exciting as that CNN/MSK interview. First, what is "for adult patients with mismatch repair deficient (dMMR)"? : "The efficacy of dostarlimab was evaluated in the...
Perhaps this will arrive quicker than I thought? https://www.fda.gov/drugs/resources-information-approved-drugs/fda-grants-accelerated-approval-dostarlimab-gxly-dmmr-advanced-solid-tumors ...
This looks extremely promising, out of Memorial Sloan Kettering Cancer Center. But so have many other things over the years and decades. So now the questions I have are: Is it for real? If so, how...
I have loved that one since the 1960s or so....
The prostate, whether normal or cancerous, produces PSA. A larger prostate produces more PSA, in both normal and cancerous prostates. If a surgeon removes the entire prostate, PSA is expected to...
That is great news, Alephnull!...
....................................................................................................................... Thanks, Mattam....
(Edit and caution: I need some pre 2020 data for this link, because Covid may have confused the statistics)Yep, kind of confusing. Tx, LA and NM had between 13 and 14 cases of melanoma per 100K,...
I forgot this quote from the above linked article: "........In a study published in the International Journal of Cancer researchers analyzed melanoma cancer rates by state. They compared the...
I thought this might clear things up, but I'm still confused. It deals only with melanoma. But, it specifies "UV caused melanomas". So there must be melanomas not caused by UV radiation? I suppose...
................................................................................................................................................ 81, your list is one that truly makes me scratch my...
I rode it yesterday and as a cheering-up treatment, it really does work. I wrote it up with photos and video on my blog:...
Day 9 of being sick as a dog, mostly a cough to die for. Tested negative for covid at home. None of my usual way out there tricks that usually keep me from getting sick when all around me are, worked...
Yes I saw that one. And no suicidal ideation, however, I plan to do an all day motorcycle ride tomorrow over the Beartooth Highway and the Chief Joseph/Sunlight Basin loop so some might say I...
When going on a statin a few months ago, mine dropped from 178 to 109. The lab indicated the normal range is 150-200 so mine is considered “very low.” About 2-1/2 months after starting the statin I...