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Why now

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5/10/2014 11:14 PM

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6/12/2022 9:25 PM

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Any experiences with Dattoli Center for metastatic PC?

Thank you everyone. I am amazed with the knowledge and support on this site. Tall Allen, thank you for your thoughtful guidance and wealth of knowledge. I am encouraging my Dad to join healing well,...

5/3/2016 12:39 PM

Prostate Cancer

Any experiences with Dattoli Center for metastatic PC?

I have written before about my 64 year old Dad with lymphedema as his initial presentation with PSA of 39 and positive lymph node involvement. Gleason score 8 from the lymph node biopsy. His bone...

5/1/2016 12:26 AM

Prostate Cancer

Severe pelvic/genital area and leg swelling as a symptom of the cancer

Hi, I posted this along with my Dad's metastatic diagnosis post, but I thought I would post separately to see if anyone else would notice. Has any one heard of prostate cancer or mets to the lymph...

4/6/2016 1:11 AM

Prostate Cancer

newly diagnosed metastatic prostate cancer with initial presentation of lymphedema

Thank you all so much. Your support and advice is so reassuring to me. I will keep you posted. It looks like he will start chemo later this week....

4/4/2016 5:43 PM

Prostate Cancer

newly diagnosed metastatic prostate cancer with initial presentation of lymphedema

I wrote earlier regarding my Dads urologist’s strong suspicion of metastatic prostate cancer. It unfortunately has been confirmed and I was waiting to write a post until we knew more, but we are all...

4/3/2016 7:34 PM

Prostate Cancer

Advanced prostate cancer, good hospital to go to?

I meant to say they are in the Ft.Myers, FL area for winter and Chicago for summer. Thank you so much everyone! It is helpful to have a place to go for support! I will check back with an update next...

3/24/2016 12:13 PM

Prostate Cancer

Advanced prostate cancer, good hospital to go to?

Thank you everyone, I feel better that there seem to options. I will know the full details next week....

3/23/2016 11:08 PM

Prostate Cancer

Advanced prostate cancer, good hospital to go to?

Hi, My Dad, who is 64, and was otherwise healthy, is in the process of being diagnosed with advanced prostate cancer. Appears to have spread to lymph nodes, but they are continuing to work him up for...

3/23/2016 6:41 PM

Prostate Cancer

2 1/2 years remission, no drugs + no diet

Well, I can be the experiment. I have been allergic to all meds so far or had bad side effects. I'm in remission now so my doctor says to wait and see what happens. He agrees this is highly unusual...

7/14/2015 6:47 PM

Ulcerative Colitis

Remicade and elevated liver enzymes

I haven't updated my signature. I am off Imuran due to acute pancreatitis. Only meds now are Remicade 10 mgs every 8 weeks and pre natal vitamins. Nothing else....

4/9/2015 2:36 PM

Ulcerative Colitis

Remicade and elevated liver enzymes

Haven't posted in a while since Remicade has worked wonders and my colon looks "perfect" now after recent colonoscopy per GI. Unfortunately, after 8 months on Remi I have elevated liver enzymes 1.5-2...

4/9/2015 2:32 AM

Ulcerative Colitis

SEVERE joint pain-prednisone taper or imuran causing it???

So, I began my prednisone taper 3 weeks ago as well as beginning Imuran. 25 mgs first week and now 50. 1 day after tapering to 25 mgs and 2 weeks into the Imuran I began to feel some lower back pain...

8/3/2014 4:54 PM

Ulcerative Colitis

Just diagnosed and doc wants me on imuran and remicade, scared!!

I have really enjoyed reading and amazed how knowledgable every one is on this forum. I have posted a few times and I continue to have problems. I was diagnosed 4-14. Tried Lialda and UCersis for 1...

6/26/2014 9:04 PM

Ulcerative Colitis

Wanting kids-after diagnosis

Everyone has made some great points. I am in a very similar situation to momof2boys. I had my 2 boys prior to be diagnosed, but was about to start trying for our third. I am about to turn 40 so age...

6/22/2014 1:51 PM

Ulcerative Colitis

Why not just remove my colon?

I have been nursing on Lialda as well and was told by several doctors and our pediatrician it was fine. The baby had no problem with it....

6/13/2014 7:48 PM

Ulcerative Colitis

Prednisone taper and increased symptoms almost immediately!

So, I has been sick with pneumonia and on levaquin, which caused horrible UC symptoms. My doc wanted me stop Lialda and UCersis and start prednisone at 40 mg. That was 8 days ago. It worked like...

6/13/2014 7:43 PM

Ulcerative Colitis

Newbie question regarding symptoms

Thanks, I bought a probiotic and tried it twice, but that is when the bad pain and more D started so I stopped. Marauder93 it did start with the antibiotic. I was getting better after about 6 days,...

6/3/2014 4:58 PM

Ulcerative Colitis

Newbie question regarding symptoms

Hi, Since I'm new to this lovely disease, flaring about 3 months now, diagnosed 6 weeks ago, I'm not sure what symptoms can be associated with the disease. My main symptom was D 8-10 times per day...

6/3/2014 2:57 PM

Ulcerative Colitis

What helps the pain?!

4 Lialda and uceris. Pneumonia in both lungs. 14 days of levaquin. On day 7 now....

5/30/2014 1:47 AM

Ulcerative Colitis

What helps the pain?!

Hi, I was diagnosed about 5 weeks ago and was having symptoms 2 months prior. My main symptoms were frequency with D and some blood. Well, I have since been diagnosed with pneumonia, and am taking an...

5/29/2014 10:47 PM

Ulcerative Colitis

Am I a bad person for this? Anyone else feel the same?

I'm newly diagnosed and haven't been sick for that long yet, around 4 months, but this diagnosis has totally thrown me for a loop. I now look at absolutely everyone I know and feel, wow 4 months ago...

5/20/2014 2:22 AM

Ulcerative Colitis

Traveling during flare to Mexico

Garylouisville. I am taking 4 Lialda and I am on my 10th day UCeris . My doc is pleased with the progress and I shouldn't taper the UCeris when we go. Thanks everyone! I feel much better about...

5/19/2014 11:54 PM

Ulcerative Colitis

Traveling during flare to Mexico

I am newly diagnosed and have been on meds for about 1 month now with some improvement. For my 40th birthday in 3 weeks my husband and I were going on a trip to Europe. We have cancelled that as I...

5/17/2014 5:34 PM

Ulcerative Colitis

Severe neck/shoulder,chest pain. Ended up in ER, but they knew nothing

Thanks for the responses everybody! My GI did not think it was UC related or med related. So I went to see my PCP. In the meantime I have gotten more sick, with body aches, fever and cough. So the...

5/14/2014 12:50 AM

Ulcerative Colitis

Severe neck/shoulder,chest pain. Ended up in ER, but they knew nothing

Hi! I am new here. I was just diagnosed with mild-moderate pan colitis 3 weeks ago. I had been sick for 2 months, but had traveled so they thought it was travelers diarrhea. I am 39 and previously...

5/10/2014 11:37 PM

Ulcerative Colitis