Many sincere thanks to each and every one of you. Your kind and wise words mean a lot. This caring community and support is truly a life-saver. In this complex and hard-to-understand world anymore,...
Dear all, I wanted to share my father, who you don´t know, but I shared much about him, lost his PC battle 2 weeks ago. I wrote in this forum when he was diagnosed almost 13yrs ago. I read every...
Hi there, based on what you have written about your hubby´s history, the chances for liver mets from PC are really small. I don´t know what MRI is showing, but doubt that it is PC. There are opitions...
So glad to hear that, Jerry. So glad for you......
Some of you may remember me - I haven´t posted for a while, and the life with 3 kids is more than busy, but I do occassionally look here and am amazed at the level of support, care and knowledge, I...
reachout, Your doubling time is very slow, which actually fits an observation that PC generally progresses at a slower pace in older men. In my modest opinion, just continue enjoying your life....
Hiya, completely understand how you feel. Zytiga and Xtandi just became available and covered by insurance last year in the country where my father lives. Before that, I was dreading the day he may...
This is a small study from Bonn, Germany, but I think it was important because it determined that it is safe to take one novel radioligand Lu-PSMA-617 after Xofigo. The concern was, like with any...
WooHoo!!!...
I like the good news a lot. The bad news, Mel will overcome, those professors are one tough kind, the best of the best.......
@SrSailor I hope that that is exactly the case @Allen He never had a CT scan, only MRI that showed something on his pubic bone at the time. My brother said he would contact a radiologist he knows to...
Some of you may be familiar with my father´s story. He was diagnosed 6 years ago with metastatic prostate cancer. In the beginning, there were some oddities about his cancer, such as, that the first...
Congrats, you seem like a natural, not only in your posts but also in front of the camera. Spreading hope as a mission. What a noble one....
Beth, thank you, this is good, first-hand advice, I will remind my father about it. Thanks for mentioning it here. Grandpaof4, that is so amazing and encouraging. Happy for you and may that...
The thing to consider with radiation of prostate (and surrounding lymph nodes) is that it is just as effective as surgery for eliminating cancer, especially in high-risk cases. Tall Allen can give...
Dear SandyMilo, I have been there, helpless and blaming myself for a few things. In the meantime, the facts have convinved me that there is real hope, so in the last few years I have grown from...
It is true what other have said, that having You in his life is already a huge plus, do not underestimate your role, and benefit you bring to your lives. Your hubby´s cancer is unusually aggressive....
It sounds like you already have a great team in place for this next challenge, your brother being physically close to your Dad and taking him to the appointments, and you, the type to do more...
Hi Claire, Welcome, glad you found us. It sounds like your Dad will probably get diagnosis of agressive PC (at least based on his Gleason), but given his PSA, I am pretty sure his bones will be...
Hi Joe, thanks for explanation, well that makes sense then. I just wanted to wish you the best, in your upcoming surgery, and a speedy recovery time. I guess it would be a good opportunity to have...
hi Joe, certainly a scary diagnosis, but it should be treatable for many years. I have a bit trouble understanding the course of therapy: The lung surgeon will take a whole (?) left lung lobe out...
Apart from your doctor recommends, the natural ways to help the low platelets would be vit. B12, vit.D, iron....this is of course if the cause are the anemias caused by the lack of above. Perhaps it...
You beat 2 serious cancers, and you will certainly will beat this one. I do remember your brother Raddad, he was the light of the forum the time he was with us. I am sorry you have to go through...
Congrats Tony! You have done so much good in the 10 years. Not only are you are hero for facing this horrible disease, but then to face it the way you did, by helping hunderds of other men and their...
I have been on this forum a long time. The chances that your pain is related to "mets" is close to 0. I put "close" although I am 100% certain it is 0. Usually, the PSA is on a rampage, or even when...
TA, thanks, I have followed Celebrex for years, ever since those receptors were identified (I sent the samples to Dr.Bonkhoff in 2012), and was aware that apart from mice and lab and some small...
Thank you, Houseboy, wow, successful daughters, you have a lot to be proud! PhD and MD seems like a never-reaching goal dealing with my very active, young boys, lol. Dad is in his 2nd "Off" phase,...
You are exactly right, you gotta relax for the next three months, and definitely enjoy your high T, you deserved it after 3 yrs of HT. Your PSA rise is happening with the rising T, seems like a nice...
Hi houseboy, I just wanted to say how awesome you are still going strong and smart against the disease, and enjoying good quality of life after all this time. I am sure it has not been easy but I...
I think all of us reach a point where we knot up, wheter male or female. We march in one direction for so long, and just keep adding the stress of work, kids, parents, juggling daily activities like...
Hi Ziggy, that is strange about 4 scans showing different things, but knowing how imperfect scanning is, not surprising at all. With back and hip pain being so common, hard to tell. My dad has...
Hi Alex, supplements are a tricky thing. Our of all the ingredients listed in Zyflamend, there are some benefcial effects of tumeric, pomegranate and green tea, on cancer cells in a Petri dish, but...
Hi Laila, my parents also live in a different country, and occassionally, there were creames or pills they could not find in their own country, so I found a sympathetic doctor here who wrote a...
Laila, sorry to hear that, from what I remember, you are in a different country than your father. I am no expert on pain, but I do know that it is an area of medicine that requires expert knowledge....
Hi Mark, this question used to bug me as well, as my dad was diagnosed with mets with a PSA of 7.5. I used to read a lot and watch many videos, doctors, etc, now I don´t have as much time. At one...
Welcome mosin, you certainly found a great support group here at healingwell, these guys are knowledgable, caring and will not leave you without an answer. The metastatic disease can be controlled,...
Hi Sally, it does sound scary. This first diagnosis time can be so hard. You should know, that in the last 10 years there were 4 new medications discovered for advanced prostate cancer, and each...
There is radiation with bone scan, usually, if we are talking of subsequent bone scans, they need to be 6 months apart. This paper https://www.ncbi.nlm.nih.gov/pubmed/27290607 indeed confirms that...
Already that time! Many stories waiting to be told, may the Muses help you tell The One....
Hi don, you deserve to be feeling a bit ambivalent, your body just went through a (chemo) war. You need passage of time to get better. Give yourself a break. Day at a time. Take walks, they are...
Not many people can brag about 48-year friendship. You both were so lucky. I am sure your support made his fight a bit brighter. So sorry. Will say a prayer....
Hi Jack, as Beth said, the most dangerous complication of the bone mets is the spinal cord compression. It does not happen to all patients with bone mets, but it is certainly a concern to be...
Hi Infohound, you asked in your original post about dragging out the fight. This reminds me of a story (video) I saw, of Dr.Casscells, who died of PC some years ago His doctor, Dr.Logothetis was also...
Congrats Fairwind. Medicine working. Doesn´t get any better....
Peter is right, the cause of pain should be investigated and described. It could be temporary pain from ADT and Zometa. If it turns out that he is experiencing pain from bone mets, he needs to see a...
I do know that metastatic spots can arise also with low PSA, but many things in this story just don´t add up (for it to be a PC metastatic spot). It would not be unheard of, but indeed very uncommon....
I am not surprised. There were similar studies with similar results, and there will be, especially with breast and prostate type cancers. Small, insignificant cancers, given enough time and no...
Hi Todd, well, I tend not to agree, but let me explain. :) Just recently Gilead Sciences launched a drug that cures Hepatitis C, at a cost of about 80,000$ for 12 weeks. I think that the scientists...
Good thing is that your PSA went back down, usually in cancer it does not do that. Having said that, you should still investigate why it is higher overall. My guess, benign disease. If not, it is a...
That is a really good response to therapy....As far as the weakness and swelling goes, my father has both, and he has not had any chemo. Not sure why it happens. I suspect, HT leads to the loss of...