Thanks TrailGuy , I hope to stay on just eligard , but some say add Zytiga for 18-24 months . I too would like to see where the PSA goes after radiatio Much to think about . Thank You , JJ...
Hello All , I have stage 4 , to 1 lymph node in the pelvic area . 5 yrs ago primary SBRT . All good till recently . PSA climbing . Had a PSMA-Pylarify scan at VA at Hines , picked up 1 hot lymph node...
Thank You , I have an appointment at U of C , Chicage eith a referral on Jan.7 . I heard Sartor is good down south ....
Hello All , I had SBRT in 2016 , failure recently. i had the PSMA-Pet , pylarify at VA . I hot lymph node in pelvic area . Talked to my RO , Dr. Hirsch , she says 3 SBRT sessions to the hot node and...
Hello ANB , very interesting . I am just starting my Stage IV journey with my first jab of eligard . The PSMA - pet , pylarify picked up 1 avid lymph node in the pelvic area . I will soon have...
Hello , I had the PSMA pylarify done at VA and it showed 1 lymph node in the pelvic area .The RO gave me an injection of my 1st ADT , a 6 month injection of Eligard in the stomach. yesterday . No...
Im not shure on radiation to the lymph nodes , good question . Thanks...
Thanks Trailguy , yes that helps . VA wants me on ADT to start . I havent talked to my RO yet but she , Dr. Hirsch wants the disc and the paperwork of the PSMA asap from VA. I hoped to avoid hormone...
Hello all , with the rise in my PSA , doubling in the last 3 months , see signature, I went to VA for a PSMA-PET, pylarify scan yesterday . I got the call last evening that cancer traveled outside...
Thanks Bohemond , I will work thru this maze and see what happens . Your response was very much appreciated . SemperFi , JJ...
Thanks 81 , I have 2 service officers , 1 from DAV and the other from VSO from State of Illinois . I will wait for further testing , PSMA-PET , pylarify to see the outcome . Either curable or...
Hello Brothers , if cancer has returned as mine most likely is , had SBRT 5 yrs ago , now PSA rising , see signature , can I get re-evaluated for new percentage with Drs notes that my cancer has come...
Hello All , After seeing my PSA rise , see signature , my RO gave me a script for a PSMA-PET, Pylarify scan.Im going for a RO consul at VA this tuesday just to have them in my back pocket . . All...
Hello , just wondering if V.A. will write a script for a PSMA-PET if thats what my outside DR. ordered if V.A does not do that procedure .? Thanks...
Thanks Sr Sailor , my Uro said maybe an MRi then a scan of some sort . I believe the PSMA-pet scan will do a lot better tracing the mets if there. Go to the University of Chicago web site . Look it...
Thanks JNF , my RO Dr. Hirsch just ordered me a PSMA-pet scan . Going to the University of Chicago for that pretty soon . Then we will know more ....
Thanks Pax, yes I will be talking to her in about 10 min . I know University of Chicago offers the PSMA PET scan . But she is a very smart Dr. Scans first then see whats there . maybe salvage rad ....
Thanks , University of Chicago has the PSMA scan , thats close by . Would that be the latest , best scan for mets ?...
Thanks Dave , Im not shure if my cancer is metastatic yet . No scans yet . I thought scans had to show where the mets are at ? Or is it generally considered metastatic when the psa goes high ? Thanks...
Hello , I read that there are only about 100 medical oncologists in the country that just specialize in prostate cancer .. With my latest PSA numbers on the rise, I will have a phone consul with Dr....
Hello All , I posted about a week ago , PSA shocker . With my PSA hovering for 5 yrs , see signature , my Uro gave me a ultra-sensitive PSA . That came back at 3.07 . I had SBRT cyberknife , 5...
I believe one of the best was in Detroit Michigan , Dr. Martinez ??...
Thanks Guys , I e-mailed Dr. Hirsch my RO and see what she says . I will ask her for a script for a regular PSA where all of them were taken at Silver Cross Hospital . I still dont understand the...
My RO has not bowed out but she has been monitoring my PSA from day 1 . I just go to the Uro every 6 months for wellness check . Last I talked to RO she said that with those low psa numbers scans...
Hello friends , as you can see my signatures PSA results after 5 yrs of up and downs , usually the ups were done at VA . the others were done at the same hospital . I had SBRT , cyberknife , 5...
Hello brothers and sisters ,having had SBRT in 2016 my PSA again has risen to 1.7. My lowest was .83 in 2018 (see signature ) so .83 is my nadir . I understand that .83 would have to double , say...
hey Pax , good to hear from you . You seem to be on a good path . Im about 6mo. ahead of you with Dr. Hirsch . So far so good . No regrets at all with SBRT . SemperFi , JJ...
Hey Paxton good to hear from you , as well as you all . i saw my Uro yesterday and he said not to worry, and I wasnt really worried because we knew the game going in .. In 6 months he will give me...
Hello All , I have had about 21 PSA draws since my baseline of 6.87 on 02-04-16 . My latest was 4-12-21 at 1.4 . If you see my signature my Nadir should be around .83 which was taken on 9-18-18 . So...
Hello Welcome , I had a 3T-mp-Mri first instead of the regular biopsy first . . True ins. usually dont pay 1st time . My uro group paid for the 3tmri because they wanted to start using that in their...
Thank You , so at my stage of the game , the Auxumin would probably be the scan if Dr. Hirsch wants to do one . I understood going in 5 yrs ago with SBRT that its a long journey .So I just got my...
JNF thank You for the reply , I had picked up my psa results from the hospital myself to see before I call Dr. Hirsch . I e-mailed her my concerns today and her Nurse wants me to set up a phone...
My psa for the last 5 yrs in my signature . My start , base line in 2015 was 6.87...
Hello All , always good to be here . My latest PSA draw is 1.6 is what it said . My last before was in April and that at 1.10 , before that 10/31/19 was at 1.20 . and you could see the rest in my...
Hello Brothers and Sisters , I started my SBRT treatment Mar. 2016 . My baseline psa that day was 6.87. My recent , a few days ago was 1.10 down from 1.20 . I have had a total of 17 blood draws which...
Hello Ladies and Gents , my latest psa is at 1.20 up from 1.06 at 3-1/2 yrs out.. Check my signature as I had a few bounces along the way .The lowest I had was .83 on 9/2018 . I understand the bounce...
Good morning all , just had a recent blood workup . Psa is at 1.06 down from 1.22 , before that it was at my lowest at .83. My rad onc wanted to do psa at 3 month intervals because of the previous...
There ya Pax , good numbers . Its a long road , good luck ....
Hey tarps , Dr . Freeman referred me to Dr Hirsch in illinois where I live . Both world class rad-oncs . Dr . hirsh tells me the same with SBRT . Its gonna bounce ., some dont bounce . Its all in the...
Hello jack thanks for the encouragement . My side effects in 3yrs have been minimal . A little urgency , a little dribble . I have decided to do the tri-mix injection . Actually tonight is my maiden...
Hello All , I just had my 3 yr psa , getting them every 6 months . My psa creeped up to 1.22 from a low of .83 . I understand that SBRT takes about 3-5 years to reach nadir , level out , so I guess...
Hello All , I have an appointment this afternoon with my Uro to discuss getting the needle .Can anyone give me any advice . Thanks Brothers , SemperFi , John...
Hello Tarps , It will be 3 years post SBRT for me . I had a few bounces . You will be fine , its just a waiting game ....
The pills dont work now . At baseline 2-1/2 years ago pills were good enough . I will talk to my uro . Thanks in the shop ....
Hello All , 2 1/2 years after my last radiation treatment my PSA is down a little to .83 from .86, Im happy to report . I see my RO , Dr. Hirsch , today for my 6 month check up . Really no side...
The Dr. was a Indian . Almost impossible to understand . I had to constantly say , WHAT ! She didnt even ask me about ED. I will appeal when they reduce my rating ....
Hello All , I just had an C&P (compensation & pension ) re-evaluation exam from a outsourced VA medical contractor at a nearby private office . The outfit QTC will ask me questions that the VA gives...
Hello j , it can be a roller coaster . You have to take the ride . I had a few bounces along the way . You will be fine . SemperFi , John...
Serge , Dr. Freeman is one of the best in her field . Do not be afraid to lose time from work , or the cost of lodging . This is done 1 time . I would of traveled to Alaska if needed . You wqill be...
Hello Serge , I have been 2 yrs out from SBRT . Doing well . When I joined this great group I initially had thought about surgery . But doing my due diligence , SBRT became my main target . I live in...