Michael, Michael, and Prato Good to hear from you. And thanks! Stephen S Yes, the plan we’ve worked out is to do a few treatments with Cabazitaxel and Carboplatin. Possibly look at some maintenance...
Congratulations! A remarkable achievement. I know you worked hard just getting up to go to work many days when you were so exhausted from treatment fatigue. You persevered. Good for you. My best to...
I’m sure this will be quite a ramble because I’m tired and I have a big day tomorrow. I’ll try to be as succinct as a ramble can be…. Well, how quickly things can change. I’m starting chemo early...
I was diagnosed in January 2013 with what ended up being Gleason 9 (5+4) stage 4 metastatic prostate cancer with mets from my prostate and pubic bones all the way up to my lungs and left shoulder. I...
GeetarMan Congrats on your decision. I had an RRP and have never regretted it. I’ve also been on Lupron or Firmagon for 8 years and while I can’t say l don’t notice it, it’s something you can get...
Well done Redwing! It’s awesome that not only are you doing very well, you feel great! You’ve come a long way and thanks for keeping HOPE alive for the newcomers to HW, especially the G9’ers. Gunner...
Wings Great report. Good luck with the weight loss. It’s tough to do when you’re on prednisone with the Zytiga. But You can do it! Keep the faith, Gunner...
Good to hear from you Redwing! I’m finally vaccinated for Covid-19. I have received both shots and had a very sore arm for a few days after each shot. I switched arms for the second dose. Both shots...
Just giving the thread a bump. There are several guys that don’t pop in as much as they used to, like me. Anyway, hoping to keep them updated but also hoping to hear how they are doing. In addition,...
I’m getting my first shot (Pfizer) on 3/16. That is the 2 week anniversary of the last series of radiation I had to my manubrium and lymph nodes deeper in my chest. RadOnc felt good about the angles...
I’m not sure if I’ve updated anything on this thread since my first addition in the first version of this thread. Just thought I’d share that I posted an 8 year update on a separate thread in case...
Halbert Congrats on 6 years. They go by so fast! Cheers to many more. Gunner...
GeetarMan You’ve had a good run but sorry to see the results have changed. I’ve totally stayed out of the surgery vs radiation discussions on this forum because I think each decision is too unique to...
BillyBob, MichaelT, & Almosta10: Good to see your familiar names as well. This forum has quite a history. I love that people can come and go as they please but when there’s a need or an update HW is...
Thanks for updating SteelGuy. I hope life is treating you well. Happy to see your update as well. It’s important for guys just getting started with a rough diagnosis that they find our stories and...
SteelGuy! Great to hear from you. Sounds good - would be good to catch up. Bryan...
Walking, biking or other regular activity will increase your circulation - everywhere. Drinking more water or fluids every day than you think you can handle can make a difference. Small dose of daily...
We had a very active group when I started with HW years ago, right before my surgery. I was afraid of the surgery and of all the unknowns to come. HW and the regular posters (it’s a long list and I...
GuitarHunter I’ve been dealing with lymph edema in my groin and leg since my RRP in 2014. It wasn’t very bad to start with but I went without treating it so it worsened over time. Like JNF’s wife, I...
RandyD I am happy to read that your case has improved and you’re working on next steps. I wanted to share with you that I also endured The Etoposode/Cisplatin cocktail of chemotherapy and I can...
Hi guys, It looks like I stopped posting after my last update in March 2020. It’s been a long, strange, tough year since then. Of course there was(is) the worldwide pandemic. My daughter was doing a...
Reviewed my latest MRI and C-11 Choline Pet Scan with my doctor. Dealing with Avascular Necrosis in both hip joints. Tissues are tearing away from the bone. This is most certainly a cause of some of...
I can relate to the fatigue and pain. I have much of the same. For the pain I suggest a fentanyl patch. A small dose will help pain relief on a steady basis with fewer spikes in intensity. You can...
Congrats Reltnie...
Wings of Eagles Use that tag line as much as you want! It’s not mine, I borrowed it from my correspondence with Vince Flynn, a well known fiction writer (Mitch Rapp series) that I had some...
Here’s another update: MRI last week showed improvement as involved lymph nodes are shrinking. Radiation that I received in September & October of 2019 appears to be doing its job. I’m hoping it will...
Thanks all for the comments. Jack and Redwing - hope to see you at a future GFMPH function. I think I’m due to get back and see the gang. JayMot - 11 weeks to Masters? Always something to look...
Jeff It’s so great that you were with Jim near the end. I am so glad he had friendly faces from you, the other Jeff and the other guys as mentioned above that made the trip to see him. It really...
As I write this I am at the end of wonderful vacation with my wife in Hawaii. I am still in awe that I survived the first couple years after my diagnosis (I was told that wasn’t likely) and yet here...
Congrats on 8 years and cheers for another 8 and more. Always appreciate your presence here and also for the personal connections. Glad you’re here! Gunner...
I hope the Lupron gets your PSA under control Sonny. Good to hear from you. For a lot of us any number other than zero can scare the crap out us. Take care ! Gunner...
Jeff Thanks for the update. He has had a tough year. Hope WG can give him some comfort. I’m hoping he’ll be well enough to enjoy the company....
Congrats on 6 years. An incredible feat with stats like ours. Hope you have a great 2020...
RIP Rockyfords and thank you Beth Thank you for teaching us more in one thread than you could hoped. Also thank you to the additions of all of you HW brothers....
Almost a 10, Glad to see you’re tolerating Zytiga. I was on the Lupron/Zytiga combo for about 2 years and definitely had muscle and bone aches from them. We dropped Zytiga when it appeared it was...
Congrats Jerry! What an awesome milestone. Even better it sounds like you’re currently doing great. Cheers to another 10 years!...
Fairwind I think I'm all setup for the Lutetium 177 trial and I'm doing it at University of Iowa. Dr Kwon at Mayo is also doing it but he was full when it was my time to start looking into it....
Mattam No the radiation possibility didn't present as a good option because of how the affected lymph nodes are clumped around major arteries and then the optic nerve. Hoping that the targeted...
Started doing PSA checks weekly and the last 3 in May/June were: May 31. 2.1 June 7. 2.4 June 18. 2.6 Last time my PSA was this high was in the first couple months of my diagnosis in 2013 and well...
JayMot Sorry to hear that you are contemplating HT and or SRT. I understand your concern on the rise of your PSA but it is still very low. I believe your plan will be fine and if you need to wait...
April PSA 1.20 These increases are not easy to take. Scans are finally on the calendar though and hope to know soon what's next for treatment. I'm guessing chemo but maybe I'll be lucky and just have...
Simon I agree with you that Lupron will keep you in check and get your PSA back to zero. You've had a great run with no treatment. Congrats on that!! My new April PSA is 1.20 so it's a fairly steep...
Naples - surgery was a game changer for me even though I had multiple mets outside prostate area, lymph nodes, bones, and lungs. It was definitely out of the box back in 2013/2014 when I had mine....
Sounds good to me. Enjoy!...
Just thought I'd stay on this thread with my recent activity. PSA has doubled each month even though it is well under 2.0 Jan was 0.20, Feb 0.40, Mar 0.80 Just had labs today so will see where it's...
Thanks for the additional replies on this post. Really good to hear from you guys I've met in person and glad to see your signatures showing no major surprises. This Mn cold is really miserable to...
Jerry L. I sometimes wonder how you are doing too. You are one of the first guys on HW that I identified with - meaning Gleason 9, diagnosed young, mets, etc. Hope your ADT vacation continues for...
I Appreciate all the replies. Redwing- I didn't stress that but you're right. We went after my aggressive cancer with very aggressive treatments. With widespread deep concentrated mets there was...
Glad you shared that Todd. Congrats on a great run and cheers for 12 + more!...
Haven't been on HW for quite a while. Thought I was in the wrong place with the new look! Anyway, it's good to see some of you regulars keeping the place hopping. Glad you're still here and keeping...