Congrats to you as well Buddy! Looks like you are 7 years in and doing well! Here’s to continued health and great results from each of our chosen treatment paths! PC Legacy...
Well, It’s now been one year since my FLA procedure. My Interventional Radiologist and I could not be happier with the result. I had the procedure done in Houston with Dr. Karamanian for my Gleason...
I am not Wolfster, however, I also had Focal Laser Ablation for my 4+3 PC 11 months ago. Have zero side effects. PSA currently at 2.33, down from a high of 8.43 prior to FLA procedure in May of this...
I had Focal Laser Ablation on my Transition Zone tumor 5 weeks ago. Feeling no negative effects from the surgery whatsoever. In fact, I now can whiz again like I was in my 20’s. My tumor was abutting...
Teddy, Sending the May 2018 biopsy results for second opinion would be a good idea as that will likely provide you some piece of mind. Again, I think your a strong candidate for an AS program. Good...
Teddy, You have an ideal diagnosis for going into an active surveillance program. I had a similar diagnosis of a G6 back in 2014. I have had 4 great years on an AS program keeping my Prostate intact....
Tomorrow morning, bright and early at 6 AM, I will arrive for my Focal Laser Ablation procedure in Houston. Been vacationing in Cabo with my wife for the past 5 days. Booked the trip to Mexico before...
Do the AS. Your stats are similar to mine although I was diagnosed at 48 years old versus you at 54. I have had 4 years now of AS and it has been a breeze. Feel confident to know that your doctors...
Manticore, I too was excited about Focal Laser Ablation prior to receiving my upgraded diagnosis to a 4+3 after my most recent biopsy. I have been on active surveillance for the past 4 years and I...
Timmerman has pushed the dosage boundary on SBRT (which he calls SABR). I think he routinely gives 45 Gy in 5 treatments. (Mine was 40 Gy/5 treatments, and most give 35-40 Gy/5 treatments). Higher...
Not yet. I agree this is something I need to do....
You should have a lot of such doubts. In the small, short term studies of FLA published so far, cancer recurred in the ablation zone for some and outside of it for more. You should also have some...
Thanks for your feedback Jim. Previously I had not seriously considered radiation, but after seeing your comments and others, I do feel as though SBRT is an option that I need to explore. I am...
Thanks for your feedback. The PC Legacy name is not based on ego, but rather the unfortunate family history that I happen to be a part of. There is no ego associated with the fact that my father and...
Yes, urologists almost always say that. That's because of their near total ignorance of radiation. While it's true that prostatectomy would not be a good option after radiation failure, there are a...
Would like advice on treatment. Been on AS since 2014 G6 diagnosis. Had follow up biopsy this week based on 3TMP MRI. Lesion that used to be HGPIN is now Gleason 4+3, 2 cores 15% & 50% respectively,...
RickTrin, Just curious how you are doing with progress on incontinence and ED. I ask because, I believe my pre surgery diagnosis is very similar to yours. Just had my 3rd 3TMRI yesterday over a 3...
I have not had the follow up biopsy at this point. My urologist, who is the chairman of Urology for the UTSW program here in Dallas, originally was planning on doing the follow up biopsy this past...
Allen, Everything that you have referenced is true, but these were the initial clinical trials. Hundreds of cases have been done since then very successfully. The therapy has been refined and the...
No Allen. Lets just say I have more knowledge about this specific technology than most people and that we agree to disagree. If the radiologist does the ablation to correctly you DO NOT need to redo...
Allen, I am fully aware that an MRI cannot determine a diagnosis of cancer. I am also fully aware that a lesion in itself does not indicate cancer in any way. I was only asking how common it is for...
I too have considered FLA for my low grade localized PC. For me , it is not quite time yet as my g6 PC is very small (only 1 core, 1% of that core and only 1mm in size). This is a safe procedure,...
So, last week I had my two year follow up testing for my low grade Gleason 6 PC. Had the PSA, followed by the endo rectal 3T multi parametric MRI. Then went to my urologist for my check up, fully...
Thanks for your feedback Allen. I think I will pursue a consult at UTMB in Galveston to explore this a bit further, as I live close by in Dallas. I realize a reoccurrence or another new lesion can...
Anyone here have any experience with this therapy? Visualase is a focal laser ablation being used predominately for MIS neurosurgery, but is also FDA approved for use in prostate. The reason I ask is...
JNF, Your response is what I expected and have thought is my situation. Even though my PC is a G6 in only one core with only 1% of the sample cancerous, hardly growing at all and according to my...
Dewayne, Appreciate your insight. I don't plan on leaving my job anytime soon, so I do believe I am safe (for now) with having at least some life insurance. I do think however that it is in my best...
So, I am pretty I can't even get life insurance? I have an existing policy from the company I work for that is for $750k, that didn't require a physical that I have had for years. I assumed that...
Say what, I was recently diagnosed with a similar situation. I am 7 years older than your husband, same Gleason 6 cancer but in only one core at 1%. My PSA is 4.99. So, to your point about what to...
Tdubb, Yes....its the ED that scares me most. Hopefully things will continue to improve for you in that area. When my father had his surgery 20 some years ago, he had no significant urinary issues,...
Thanks Alf. Appreciate your perspective. My Father has a Gleason 8. I don't believe it common for post op pathology to move all the way from a G6 to a G8, although it is possible. I do however...
Tdubb, How has your recovery progressed? Any ED? If it were not for this potential complication, I would be very inclined to follow suit and have surgery myself. On the other hand, if my Urologist,...
JackH, Totally agree. Please do not interpret my desire to gain perspective on the next potential treatment AFTER ACtive surveillance. I just am torn between surgery and other options for my younger...
Had consult with URO/Surgeon. Recommends AS as I suspected. Told me all forms of radiation would not be a good fit for me due to young age. Said side effects, long term (not short term), would be bad...
Thanks guys. I am pretty sure that AS will be the treatment plan advocated by my urologist, as he has already stated that we will have to monitor this closely. He didn't even mention surgery or...
Thanks Bob. Maybe I worded my question incorrectly. My immediate concern (which very well could be incorrect) is that a tumor in the Apex could involve the urinary sphincter and therefore could...
Thanks for helping my rachet down my mind right now. Hard not to game plan and figure out how to kick this thing right from the start. I do realize I am fortunate compared to the vast majority of...
Thanks Cap. That is obviously a strong consideration given my diagnosis. My concern is that if I leave it in and go for Active Surveillance, what if that tumor in the APEX invades my bladder neck?...
New to the club. Just diagnosed today. Have spoken with my urlogist, Dr. Roehrborn at UTSW in Dallas, but have yet to have appointment for "official" review of biopsy. Would like some of your...
Thanks Jason! Like you said.....hard to really know anything while I am still waiting for pathology report from biopsy. Dr. R is however reasonably confident it's confined to prostate although the...
JRK/Jason, Reaching out to you as a first time poster here. Hoping to gain insight into your decision process as it appears I am following a similar path as you. Had my MRI guided 3d ultrasound...