How do you manage it. Need advice ASAP. Don...
Who does your pain management. MO, RO, specialist? Don...
Laila So sorry to hear this news. My condolences to you and your family. Don...
Mark, Listen to MO. I insisted that we continue with full dose in spite of test showing no effect. I am now suffering from burning in my finger round the clock. Meds do not help much. I had a very...
I haven't been here much but seems all is disturbing news. Jim and Mel. Mel, I have not been reading much lately but will be thinking of you. Don...
Jim, Regardless of cause for your issues I wish you well. I won't forget your generous offer to me and words of encouragement. May you prevail in this latest trial. Thinking of you Don...
Gentlemen: I completed chemo in late September of 2016. In October of 2016 I began to have severe stomach cramps and diarrhea. I have been taking oxycodone to relieve the pain and it also stops the...
Ken, I am doing ok. I have had a round of docetaxel following the xtandi. Did not do a lot to stall the cancer but did do a lot to ruin my health such as it is. I have started Zytiga in January. Have...
Ken, I took xtandi for about 15 months. I never had any of the side effects and felt quite well the whole time. When it stops it is like a switch. Hope you do as well as I did. Don...
Put me on the list. Don...
Thought I would update this thread. The spot radiation appears to have worked. Still fighting the kidney stone. Uro says he can't see it but the CT scan shows the issue clearly. I will have a few...
Sorry you are facing chemo again. I thought it would kill me. Still got neuropathy in hands. That was taxotere. Anyway, I have a port and rarely even notice that it is there. My veins blew out on the...
I have seen articles about the connection before and if memory serves me right this was also mentioned in the book Sugar Busters. Quite popular at the time. I have recently finished several radiation...
Ditto...
Dad gummit, David. The stuff just keeps piling up on you. That Lithium is some tough stuff. I took it many years ago for some emotional issues. I lasted three days on it and flushed it down the...
JR, thanks for the encouragement. I have good insurance now with Medicare and supplemental plan. My insurance issues were early in my journey. I certainly learned some things about the business side...
Hi Jim, I did not have email in inbox. Can you resend after checking address? Visit today was not good. I have one tumor pressuring a bone in my neck. Seeing some odd effects and onco has scheduled a...
Mel, I did Xtandi for 15 months before chemo. It was great and I had no side effects from it. Best I had felt in years. Don...
TA, I asked to stop it while recovering from chemo. It has always caused me weight gain and irritated my heart issues. Just as soon not take it if possible. I lost over 25 lbs after stopping the...
My heart felt empathy on your feelings regarding HT. They are close to my own. Paxton, I used to have a similar philosophy regarding my work place. I used to say the only reason I did not quit was...
Well, it appears I have survived the chemotherapy. Not much left in the way of side effects. Pain in finger tips, losing finger nails, numb feet (mostly the ball) and losing nails on big toe both...
Ziggy, the drug is cyclobenzapr 5 mg generic for Flexeril. Take three times daily as needed for spasm. Man, my hat is off to you for completing 23 chemo cycles. I did the six and I have no plans to...
Ziggy, cannot tell you anything about Olaparib but Special Lady's post about father's shoulder pain struck a chord. Just this last weekend I was in the hospital for severe chest pain. All the heart...
Dave, if ever I knew anyone who deserved a break it is you. I hope your boat trip is relaxing and provides some diversion from the woes of cancer treatment. Don...
A wise man once said that things he worried most about were the things that did not happen. Glad all is well, Don...
Your comment about "did they get it all" struck a chord with me. I had RT as primary and my cancer returned rather quickly. For years I thought they missed something. I had evidence of spread in...
Hi Sal, Xtandi is approved for chemo naïve patients. You could try the Xtandi first. If it works you will know rather quickly. I took it for a year before it failed (typical). It lowered my PSA...
Good article and for a change something that is immediately actionable. If the addition of dutasteride (Avodart) is all it take to improve the performance then that is worth trying. I take the...
I can sense the weariness of dealing with this disease and the kidney stone in your writing. Don't give up just yet and 58 is not old. I get kidney stones occasionally and had my first at age 58....
Mel, so sorry to hear about your friend Milt. Esophageal cancer is one of the worst. I just recently reconnected with a childhood friend who has been treated for both prostate and lung cancer. We...
Thanks for the responses and suggestions. The acupuncture sounds interesting. I had a friend with throat cancer who did this and he said it helped a great deal in controlling the pain. (He beat his...
John, that is a great result. I hope you recover quickly from the treatments. Don...
Don't know if this is applicable to your case. I was originally diagnosed with suspicious iliac and obturator nodes. My primary treatment was IGRT/IMRT with the Varian Truebeam. I had a combined...
Sonny, sorry you did not get in match trial. But at least you got as far as the biopsy and analysis. I got turned down because of slight improvement in lung mets while bone mets continued to spread....
Should have said MATCH trial not SMART. Chemo brain strikes again. Don...
Well in my eighth week after cessation of chemo. Things are improving...slowly. Keep having new stuff pop up but not sure related to chemo. Tendonitis in ankle and elbow. Elbow likely caused by...
Sal, Here is Todd 1963 signature. DX 2006 age 42 PSA 3216 stage 4 Gleason (3+4=7 ) Lung, Bone, and Lymph metastasis A.D.T. 5-1/2 years. Provenge, Zytiga, D.E.S. Latest Bone scan, C.T. scan, and chest...
Sallyyy, There is a member here who had similar stats. His name is Todd and he has a blog documenting his treatment. Look for one of his postings and go to the blog. His is a story of hope. Best to...
David it seems the bad news never stops for you. Yet you seem to handle it with grace. Your story makes me feel a bit ashamed of my own complaints. I wish you well. Don...
John, what excellent results. Sounds like you have weathered the chemo well thus far. Good luck with the last one. Don...
I have been thinking about your case these days. I am at the end of conventional therapies. My PCa is spreading. You are the only person I know who has never had surgery, radiation, HIFU, ablation,...
I never cease to be amazed by the courage of those on this board. It takes a lot of it to make a tough decision like your husband. I wish you and your husband well and hopefully the cessation of...
Thanks for the quick responses! Rocky that is quite a bit of research you have posted. So far, I have no reason to believe that this is anything other than chemo and my oncologist agrees. May have to...
Gentlemen, I recently completed chemo and have been suffering swollen legs (water retention) since the week prior to the last dose. I am taking a pill called Lasix but it does not seem to have much...
Thanks guys for the kind words. TA yes the skin is quite pink and supple. I had some pretty tough callouses on my feet as I like to run around the house barefoot. A10 I had the thing on my face after...
David, good luck with the new doctor. It is a comfort to have one who is in your corner so to speak. My sister has had an ear ailment for almost five years now and has been dismissed by a multitude...
Todd, I read your posts whenever I see them. I do not always post responses as I most times do not have much to add to the conversation. I confess I have not spent a lot of time on your blog but have...
Took Xtandi for 15 months as part of trial. I felt better and had more energy and stamina that year than I have had since taking a treatment holiday five years ago. Only SE was fell asleep within...
Well, completed six docetaxel treatments four weeks ago and had follow up scans this week. CT and bone. Ct scan showed some modest improvement in lung mets. Shrinkage in larger nodules and nothing...
HB you should research NIH as well. I get the impression they don't care where you are from. I was in a trial there and it could not have been better. They did pay plane fare and stipend for meals...