Hi - my wife was diagnosed 25 years ago with breast cancer (age 33), had a mastectomy follwed by Chemo. Reconstruction 1 year later (in South Africa). The implant was replaced after about 10 years...
I am 56, going on 57. 49 at time of DX. PSA all good now - undetectable....
I had surgery, then salvage radiation - was all good after the surgery, salvage radiation was not good to me. Seems to me one or the other is fine as the primary treatment. I was just unlucky, no...
H Ubetternoit I have complete ED, so cat help you there...
Hi Tiger74 I had an AUS fitted in December 2018, activated in January 2019. Procedure was perfrmed by Jeremy Ockrim. Very pleased with it and have very few issues with it. I do still get some stress...
I have private health insurance. Probably could get it on the NHS, but going private makes it quicker, plus I get to choose the surgeon, hence the request for information...
Hi Can anyone recommend a surgeon who does AUS surgery in the UK, or point me to a website that may help? I have been incontinent now for nearly a year following stricture surgery, and battling to...
Apologies - meant option 3, not 1!...
Hi "Progressing" Been down the road that faces you with Option 1, albeit a bit younger (50 at DX, 51 with ADT and SRT). ADT was a pain whilst it went on (did 22 months) but most side effects dropped...
To 142 - not keeping a log at the moment, purely observational that unless I sit down for a long period there is nothing at all in my bladder, it is all in the pad or the bag. My urologist told me to...
After a 2nd round of surgery to resolve strictures I have been left almost completely incontinent during the daytime. This surgery took place late September 2017 and now 3 months later there appears...
Hi Sallyy This sounds very distressing and very overwhelming for you. Right now you are probably just living in the moment but as many have already pointed out this is going to be a long road, and...
So JNF - your basic answer gels with my impression the the cancer mutates over time. But that seems to fly against the assertion higher in the thread that G6 cant turn into G7. Your numbers consist...
I know this is slightly off topic, but it has been glanced upon above. I refer to the statement that Gleason 6 never progresses to G7. Now a G6 is actually G3 + G3. A G7 is 3 + 4 or worse 4 + 3. Does...
Peter You have hit the nail on the head on the need for accurate testing. The value that Watson can bring is that it can ingest data at speed - there was an article on "60 Minutes" over the weekend....
Last 3 month shot for me was November 2015. Seemed to drop off fairly quickly (2-3 months), but has stabilised now to 1 or 2 a night (generally very early morning as I awake). Fed up with it now!...
Hi Jaybee It is an anxious time post surgery, and I can sympathise with you. GGs pathology looks very similar to my own, apart from his PSA was way higher than mine pre-op. My own PSA returned as .06...
I guess like a reverse Kegel. Idea being that the stricture is being dilated by the urine, rather than by shoving a tube up. Made a lot of sense to me, and as I say so far so good. But to be sure I...
Hey there Island Time. I am late to the party as always, but wanted to say as have many others - vent away. I don't think anyone here gets offended or upset and many for many of us it is good to hear...
My last ADT shot was November 2015, my T has not yet recovered and I am also tired and "staring at the floor"...
I was having issues within 3 months of the op. The original stricture was a bulbar. Not sure of the size. The current situation is that the stricture appears to be approx 20mm and again quite close...
I had a Urethral removed by urethrotomy last September, 12 months after salvage radiation. Uro had me self catheterizing on a daily basis, meant to drop down to weekly with a month or so. Stricture...
I had radiation cystitis after 5 treatments and fatigue kicked in after about 10 treatments, possibly due to medication for the cystitis. Painful urination since then (am 20 months out) and an op to...
Interesting. I have to agree with Wilderness though. At some point the cancer escapes, and as it does not hand you it's timetable, there surely has to be a case for not unduly delaying your primary...
Hi Howard Seems your pattern is similar to mine. My surgeon was happy with the surgery, but my 1st PSA came back as .06, rather than undetectable. The rise kept going and I soon hit .13 My insurance...
Interesting to read about the burning after radiation , Woodyvt. I started suffering from burning about 10 days in, was told it was too early for Radiation Cystitis but no one could give me any other...
Hi All Less than 2 weeks into salvage radiation treatment (July 2014) I started getting pain on urination. This was put down to radiation cystitis, even though this was way too early. The pain never...
Not posted for a while, but happy to report that after 5 shots of Zolodex, my PSA is still in the undetectable range. Not so happy about the side effects, which are building with each shot, rather...
Got my results <0.05, so that's an undetectable from that lab! Would crack a beer in celebration, but on 2 sets of antibiotics, probably not a good plan.GP is keeping a watchful eye over the chest...
Not posted for a while, but wanted to get some opinions on issues I still face - should I be concerned, are they related to SRT/ADT? 1) I still have pain when I pee. Some days not too bad, other days...
2 Months out for me (post SRT) and fatigue is becoming a thing of the past. I still get blown by a stiff uphill climb, but I think that is more the fact I have put on half a stone in the last 4...
Tdnjam The time passes slowly, but it will go. I am now 4 weeks post SRT, with hormone therapy. The fatigue is dissipating, as is the burning bladder. Burning bladder is taking far longer to subside...
To the above, I would add the advice to get fit and loose some weight (if applicable). My surgeon suggested that I loose a stone (I would benefit from loosing 2.5 stone), which I did and am sure that...
Got my PSA results yesterday - <0.05. If my understanding is correct, this means there was less PSA than the testing equipment could reliably detect, so on that basis I believe that I can be a member...
Hi Sammas One thing that no-one seems to be saying is that there is a high risk of infection from a biopsy. It is a fairly standard practice for the doc to give you a bunch of antibiotics to take...
Hi Tony Just wanted to echo the previous poster - PCa seems to be a complex disease and each person appears to be different. I recently met with 4 others who had received treatment at the same centre...
I had a C-11 Choline PET scan at the Churchill in Oxford. The medical insurance was loathe to allow this at first and requested a standard MRI scan 1st. Both showed no evidence of the cancer, which...
Hi Zeddy I had my RP at the Wellington in London, under Mr Declan Cahill. Can thoroughly recommend both. Mr Cahill was really good at explaining the details of the op to both myself and my wife (in...
Hi Zeddy I live further south than yourself, close to Milton Keynes. I am surprised that the care that you have received on private appears to be sub standard. I had 2 biopsy's from separate private...
Seems the moral of the study is do some research before asking the question. The link above seems to indicate there is no link...
BBC reported last night that a link between PCa and vasectomy is suspected. Am curious as to how many sufferers here have had a vasectomy witin the period 10 years prior to dx. Not a scientific poll...
I am with Tall Allen on the subject if which treatment did the trick, I just want the trick done. The idea is that the cancer is eradicated and stays gone. It is not like working out the best...
The clinic that is performing my SRT offers Reflexology and counseling as a complimentary (both free and adjacent to/in tandem with) therapy. I have had 2 sessions. At the 1st one the practitioner...
Hi Charles I was in a similar situation to you, probably not as fit, but I went for surgery. I still think with what I knew then the surgery was the correct option, and i guess I was just unlucky...
Have skin tattoos for markers. My issue with the Uro is that I cannot speak to him and the communications from him are muddled. He left me a voice mail telling me that maybe he would do a cystoscopy...
Thanks Peter. Urologist has had a change of heart and has decided to do a cystocopy today. I suspect the radiation oncologist bent his ear a bit, as he had contacted the urologist last Friday to get...
I would favour getting the biopsy earlier rather than later. I had 2 biopsys , with no dire consequences. The 2nd which turned out positive was 3 weeks before i went on vacation, with the PCA...
I started to get cystitis symptoms at the end of the 1st week of my SRT. Symptoms are cloudy urine, which sometimes smells a bit "cheesy", faint traces of blood some days, and an intense burning...
Its a bumpy ride. as others have said, don't rush into an option, but do the research. Loose a bit of weight and get as fit as possible, as all this helps you along the journey, whichever path you...
I can empathize with both sides of the good/bad cancer argument. For me, the attempts at containment/cure are are worse than the disease at the moment. In my darkest hours I am fearful that the SRT...