Thank you all for the birthday wishes. Actually, hot flashes were never a major problem for me, but low energy is still a big problem. 30 months after stopping Lupron T level @25 with very low energy....
Hey Rob - happy birthday to you! I told my oncologist that I'm happy to be around to complain about my low T level, than the alternative....
PRATOMAM - HT stopped August 2018 - So far no plans to do T replacement therapy...
PRATOMAM - HT stopped August 2018 - S...
Checking in to let you all know I'm still kicking. Recent blood draw PSA undetectable - Unfortunately T level real low @ 25 - no energy - 74 years old today Finished SRT almost 4 years ago....
I have a blood draw coming up late May- PSA & T level - and a little apprehensive about going to Quest with COVID-19 around. Anyone else feel that way?...
Howard, Started with Casodex which, at least in my case, prevented any flare up of Testosterone. Stopped the Casodex after a month and started on Lupron....
Howard - Not sure how many lymph nodes the surgeon looked at, but too bad they didn't radiate the nodes the same time as the prostate bed. Following my surgery, in 2016, my PSA was was 2.6. I went to...
Last ultrasensitive PSA .02 so great I'm still undetectable. Worried because my testosterone is only 27 - been off hormones since August 2018. Anyone else having trouble with low T after 18 months...
Hey Guys- Welcome to all new club members and God bless us all ! Bobby Mac...
Dano62 - Welcome to the club - I'm another Massachusetts Guy, grew up in Norwood, but currently live in Florida. Nytngale, welcome to the club - not sure who is adding people these days - Big Mac...
Sometimes certain antidepressants will help. Bobby Mac...
Retrospective study linking ADT to Rheumatoid Arthritis. https://www.ncbi.nlm.nih.gov/pubmed/29267861 Yep, it is happening to me after two years ADT I am having issues in my fingers, including...
Welcome - agree with the above comments - Bobby Mac...
Very sorry for your loss....
Hey Prato, yes I see that! Wishing you the best! Bobby Mac...
Labs this week - PSA still <.1 and T level up 2 to 18 - last 3 month Lupron was April 2018. Very happy PSA still undetectable, but still not sure it's the castrate level or the SRT that's the reason....
Nice to see good response!...
Hey Prato - I'm in the same boat. Finished SRT 12/16 and Lupron 6/18 T level 17 12/18 psa still <.01- Like you, don't know if psa undetectable because of ADT or SRT - either way I'll take it. New...
Per Quest: The total PSA value from this assay system is standardized against the WHO standard. The test result will be approximately 20% lower when compared to the equimolar-standardized total PSA...
Congrats! Best wishes!!...
Big John - check here to see if you qualify - I see a few in Canada....
https://pcnrv.blogspot.com/2016/12/pet-scans-for-prostate-cancer.html I had my 68 Gallium trial done at UCSF - you can do a search of government trials to see what's available. Maybe Canada has...
Big John - You may want to have one of the newer scans, 68 Gallium PSMA or Axumin PET, before SRT. If it were me I'd want to rule out cancer had metastasized beyond the pelvic area. If that was the...
Yea, Lupron does that!...
Sounds great!...
What were your prior PSA"s? I would request the prostate health index, PHI, blood test which is a pretty good predictor of prostate cancer. Bobby Mac...
Paul, If I were you I'd monitor testosterone, as well as PSA. Bobby Mac...
It would be great to know where the PSA is coming from. If cancer is out of the pelvic region, or metastatic, SRT is probably fruital. Your PSA is most likely too low right now for one of the newer...
Great story! Bobby Mac...
A newer blood test for detecting PCa--- Prostate Health Index (PHI), which has recently been approved in the United States, Europe and Australia. PHI is a mathematical formula that combines total...
Congrats! Bobby Mac...
I would say 6-8 weeks would be sufficient as 3 months seems to be on the long side. Bobby Mac...
Crazykick, Yes quite a rapid T recovery. Rule of thumb is T recovery takes half as long as you had HMT. Rooting for your undetectable PSA! Bobby Mac...
Pratoman - Feeling a touch more energetic even though still at castrate level. Might be just a mental thing as opposed to a physical thing? As I said happy with undetectable, but would be happier if...
I developed blood my urine from SRT, which my urologist feels the bladder was burnt from the radiation. Only happens when I have to strain taking a poop! Bobby Mac...
Chronic rectal bleeding is one of the most common complications of radiation therapy for prostate cancer. https://ro-journal.biomedcentral.com/articles/10.1186/1748-717X-7-87 Bobby Mac...
Results are in: PSA still undetectable <.1 Total T = 7 ng/dL Free T = 0.6 pg/mL First time I had free testosterone test. Not sure exactly what it signifies, since it is a percentage of total T? Sure...
Thanks Prat ! Best to you!! Bobby Mac...
Some anxiety on PSA & T level blood draw today. Was on Hormones for about two years. last 3 month Lupron injection was end of May 2018 so could be T level is rising & will see if PSA still...
Jerry, thanks for sharing. Keep it going!! Bobby Mac...
Did your Testosterone level recover from Lupron? Hot flashes probably shouldn't start until your T level is at castrate levels. Bobby Mac...
John, may you RIP Brother....
If nodes are regional in the pelvic area and were not previously radiated - radiation may be an option? Bobby Mac...
You can go to medicare.gov and click to find plans. Make sure it's .gov- Enter your prescriptions and search for plans in your area. Search for both part D plans and medicare advantage plans with...
You'll be fine!...
I agree that you definitely should have a PSA retest, but continue forward with a bone & CT Scan. If nothing is found on those scans you can either assume cancer is still in the pelvic area and...
I agree!!...
Wishing you a speedy recovery!!...
I'd look into having the lymph nodes radiated or surgically removed. No cancer found in the prostate itself? Assuming no uptake outside the regional area could be a chance of cure. Bobby Mac...