I had better luck with frozen gel packs, that you put in the freezer vs ice bags/packs. That’s what they used at PT. Amazon and Walgreens have them....
I had to switch to Erleada because of my liver couldn’t handle abiraterone. My employer had a service that requested Erleada for assistance for my co-pay and the Erleada drug company grant wavier of...
I had my last appointment with Dr. Sartor today. I do not recall who on this form suggested Dr. Sartor to me, but I am grateful. Dr. Sartor reviewed all my recent lab work and gave me his opinion on...
Update, January, and now March PSA all non detectable, last appointment with Dr. Sartor next week as he is leaving Tulane...
Breaks my heart. Dr, Sartor is leaving Tulane email just received It is with mixed feelings that at I notify you of my departure from Tulane clinics at the end of March 2023. I will have no clinic...
Thanks, Mumbo, you summed it up well, my wife agrees. Retest January and see....
Walk all that you can, make yourself walk, walking helping me more than anything getting over open surgery....
Got a text from Dr. Sartor , he said watch the PSA, when I replied T went down a little, he replied watch it more This not the end of the world, but not good news either...
11.15.2022 Update, on 8/31 my Radiation oncologist's office did a PSA test, Dr. Harris gave the test results on 9/7, non-detectable! She told me I did not need to see here again and to just follow...
If it is Zytiga, they will need to monitor his liver function, At about 6 weeks on Zytiga, I was told to stop using Zytiga,. My liver quickly recovered and they switched me to Erleada. Dr. Sartor...
I treat with Dr. Sartor at Tulane. He recommended PSA to be .5. 12/21, I hit .42 and Dr. Sartor said wait. Feb 2022 PSA was .71 and PSAM PET Scan was ordered. March 2022 PSAM PET SCAN found 2 hot...
I about 6.5 years ago I had RP and then about 4 months later I had 40 rounds of radiation. While the diarrhea was not as bad as your friends, It kept me thinking of where was the bathroom and never...
I had a 6 month shot of Elegard and was also placed on Abiraterone, about 46 days ago. Monday 5/2 blood work done for liver fx and Tuesday 5/3 Dr. Sartor called and said stop taking Abiraterone...
Update, 11 of 35 RT completed Had blood drawn yesterday, Dr Sartor called just after 9 this morning and said Stop abiraterone immediately , liver function is not good. Been on it for at least 1.5...
Melanie First time was to prostate bed only, this time whole pelvic region, 2 hot nodes, and avoid first area zapped. They had to get the records from 6.5 years ago to map around prostate bed zapped...
4/6/2022 Progress Report – This is my second go at Radiation Treatments to deal with G9. Monday 4/4 Quest blood drawn Tuesday 4/5 Tulane Cancer Center for CT Simulation IV set into arm for CT and...
I am going through this again as well. Are you seeing a medical oncologist? If not, find one, in my case I had the scan and the MO and RO are lining me up for more Radiation to attack the cancer...
Update 3/9/2022 Met with Dr. Kendra Harris and Dr. Sartor. Dr. Harris said Radiation is a go, she requested the technical information on my prior RT treatments to the prostate bed, to map out her...
Got my Pet Scan results today. 2 lymph nodes showed hot 1. 0.9 x.0.7 cm left internal iliac lymph node with max SUV of 6.5 2. 0.8 x 0.5 cm left common iliac lymph node with max SUV of 16.6 Both are...
"no sign of intelligent life" - to funny. Back in December I had a shoulder x-ray and they put the x-ray on a disk for me to take to a Orthopedic or my regular Dr. I gave it to my regular Dr. and he...
My PYLARIFY PET Scan was done today, and they gave me a DVD disk. I assume the radiologist will get the results and interpret same before I meet with Dr. Sartor next Tuesday, March 8. I wonder if the...
I did not discuss low PSA with Dr. Sartor, but did have a conversation in the past several times with my URO's and were told several times a PSA test is the only test for the cancer after RP and...
My PYLARIFY PET Scan was approved today, I had to call my insurance company at noon to find out the scan was approved. The scan is set for March 2nd at Tulane. My results are scheduled to be given to...
My Feb 7 draw came in at .72, so Dr. Sartor has ordered the PYLARIFY PET scan, the insurance pre-approval went to Aetna on Thursday, but no reply yet. Dr. Sartor told me that up to 5 spots found...
I have yet to have ADT, but a radiation SE for me was/is an urgency to go the the toilet for bowel movements. A sudden attack with a very short warning to get to the commode. The SE is somewhat...
I am a G-9r, pT3bNO, with SVI and close margins - RP (Oct 2015) and 8 weeks radiation ( started Feb 2016). At DX, I had just turned 57 years old and My PSA was 5.75, they never retested to see if PSA...
I saw Dr. Sartor around Jan. 5th., his plan for me is when my PSA hits .5 ( I had RP and radiation), then the PSMA scan would be ordered. Last PSA was .42 and next draw is Feb 7. Dr. Sartor said he...
The highly sensitive prostate cancer diagnosis scan called PSMA PET imaging will become more widely available in the U.S. following a new FDA approval Hope the link works for users and this tracer...
Is this something that can be treated with radiation? I am at .3 and go for next draw in a few weeks...
I am a G9, received my diagnosis a week or so after turning 57, it has been a little over 6 years since. My PSA is now at .30, since I had surgery and then radiation, I am at BCR and go back to Dr....
I have been in the G9 club for 6 years now. Did surgery, radiation and hit non detectable for 6 months, then a slow rise from that point onward. Last year at the 6-month PSA tests, PSA started to...
I dropped my URO and have began seeing Dr. Oliver Sartor at Tulane medical school/cancer treatment center. My PSA keep climbing last year and via this forum found Dr. Sartor. My PSA hit .2 in January...
I read today another tracer has been approved 18F-DCFPyL. Link https://www.cancernetwork.com/view/fda-approves-18f-dcfpyl-as-first-psma-pet-imaging-agent-available-for-prostate-cancer Sounds like it...
I have had blood drawn at the same time by 2 different labs with 2 different labs and had different results at both (way different results). Dr. Sartor is trying to use one lab and establish doubling...
I had prostate surgery and then radiation, G9 little over 5 years ago. Now PSA has started to rise and I am seeing Dr. Sartor at Tulane. He has ordered Quest to draw blood every month from Jan to...
Thanks guys, I booked marked his site at Tulane and will see if he is taking on patients. Is Dr. Oliver Sartor one of those that believes castration is the first step in additional treatment?...
How do I find a good Oncologist on the Mississippi Gulf Coast? Any suggestions or where/how to find and Oncologist in the area? Cancer diagnosis August 2015, a couple of weeks after turning 57, PSA...
At age 56, right before I got the C notice, I started taking Lisinopril. Doctor said my bruises were not related to the pills, but they must thin the blood. Because when I work on my 57 Chevy, my...
They cut my so wide there is nothing left inside to giggle I go see the wife tonight and the vampire tomorrow Been 4 years since DX At tb3 g9 fingers crossed...
Just a question, if your Prostate was removed, will having sex before a PSA test effect the test results? Thanks...
I had surgery on October 13, 2015, once the catheter was removed, I became dry pretty quickly and stopped wearing pads. I to started walking the day after surgery (first on the hospital floor walking...
Your topic " Salvage radiation without ADT? " I had salvage radiation without ADT, right or wrong its has been 3 years and PSA is below .01. I go see the vampire in about a month for my 6 month draw....
What is your age?...
I had surgery, then RT., completed around April or so 2016. The urgency is still with me. 2 to 3 times to go before leaving for work. Yes carry an extra set of draws every day and sleep in a diaper...
Yes, recently I had surgery, followed by radiation around 3 years ago. Same thing - they did the scope for a biopsy of the bladder, they said they thought the bleeding was from the radiation, but...
Had my fist shot yesterday at Walgreen's around 11 AM . It burned going in and later in the night I had a low grade fever, felt tired, had muscle pain, and shivering. Today I am still sore (more than...
I was not burned externally. Once a week I met with a nurse and RO, who both always asked if I had anything like a sunburn or felt a burn while taking a shower. Keep an eye on your skin down there...
At end of July, I switched back to my original URO, who ended up doing 2 cystoscopies , one in his office to look inside and another at the hospital to take a bladder biopsy Just got the pathology,...
Had the same happen to me. URO did a scope in his office 8/10 and found 2 red areas at the base of my bladder and said he thought the radiation did it but wanted to rule out another cancer. Had...
I recently posted about the radiation damage to my bladder from RT. When my URO told me about the red areas he saw inside my bladder, I asked him if having an empty bladder vs full mattered at the...