Had appt today with Onco. Zytiga seems to be failing after just over 2 years. First thoughts were to start Chemo immediately, but thanks to the wiz kids on this site, and what I have learned from...
Hi all, been a while since I posted, but it is now time to provide an update I started on Zytiga in July 2018 when my PSA was .46 and slowly rising since starting Zoladex in March 2016. Zytiga was...
Well a bit of good news. Latest PSA shows a decline from 1.2 to .85, so Everton, yes Zytiga numbers can bounce. After my previous reading I was convinced that Zytiga was failing and I would see an...
Hi Mike, unfortunately none of the “remaining” drugs (Xtandi, Apalutamide and Provenge) are available to me here in Australia. Well they are available but not via the Pharmaceutical Benefits Scheme...
Mike, I will certainly keep posting. I am not sure if my Onco will propose chemo, but there is a point of view that says early Chemo is better than waiting. I have also heard that Chemo can jump...
After just over 6 months on Zytiga, looks like it may be failing me. Latest PSA = 1.2 up from .8. Seeing Onco next week and await his opinion. I have read somewhere that changing from Prednisone to...
Two months ago, my PSA was showing a slight increase after only 4 months on Zytiga. When I visited my MO, the Professor was not available so I saw his Registrar. Given the disappointing result I...
Meeting with Onco today, and as suspected, in spite of a rise in PSA, I will go another round with Zytiga and retest in 6 weeks. Onco is hopefull that Zytiga is holding, though not significantly...
Thanks for the encouragement Debbie. I’m not too worried at this stage and have heard of ups and downs with Zytiga. Still we always hope for the best don’t we? My biggest concern is that Zytiga is...
A disappointing result with my last PSA showing an increase from .76 to .83. Not a lot, but it is 10% and any increase is bad, especially after a slow downward trend. Seeing my Onco next week and I...
Yes, there are several posts on HW making that observation. I believe it is important that the food be low fat. You might well wonder why it is not prescribed that way, rather than to be taken on an...
Thanks, and yes I am satisfied that my PSA is going down, just wish it was by a bigger amount. The problem with other treatments is that I am based in Australia and the most likely options - Xtandi,...
Latest PSA after 3 months on Zytiga showing very small improvement. Down to .76 from .81 6 weeks ago. Not sure if this very small decline indicates a likely failure of Zytiga in the short term. Onco...
As a former Brit, now a confirmed Aussie, I still gave my allegiance to Europe. Disappointing for the USA particularly given the “on paper” strength of the US team. Tiger was a real let down. I don’t...
Just had my 2nd PSA after being on Zytiga for just 2 months. First result after 4 weeks was disappointing with PSA doubling, but this latest test after 8 weeks showed slight improvement with decrease...
I am sure there are others better equipped to answer this, but it is my understanding that Zytiga taken in the dose normally prescribed can have serious side effects, particularly on the liver. This...
Started Zytiga 4 weeks ago and latest PSA was .86 which is double what it was 4 weeks ago (but blood draw was only 3 weeks after starting Zytiga). Bit disappointing, but saw my MO today and he said...
Gee, ADT really gets a bad press doesn’t it. To the point where men are willing to risk their lives just to avoid the side effects. I know I am a lonely voice in this Sh!tPit of PCa, but not everyone...
The 2 Kate’s have a regular show on Aussie TV. My wife never misses it, but can’t say it appealed to me. However after seeing this skit, I might give it a go! Chas...
I had my adjuvant radiation a bit over 4 years ago. For the following 12 months I suffered with moderate proctitis with periods of real urgency and mild leakage. Bowel movements were very irregular -...
Fantastic outcome Todd. You know you are THE Poster Boy for the group, and I note that your number of posts has now almost reached your original PSA level!! Congratulations and keep on keeping on....
I am now about to join you Zytiga guys. After the last visit to my Onco, and showing a steady rise in PSA with a doubling rate of about 3 months while on ADT2 (Zoladex and Cusodex) and clearly...
I thought that Oxybutynin was prescribed to minimise bladder spasms, at least that is how it was prescribed for me. Nothing to do with hot flushes. I personally didn’t like Oxybutynin. It has a few...
Denis, thanks for the good wishes. Charles, thanks for those links. I am across all of them. I particularly like the JimJim one. It’s a bit okie, but full of good info, especially his YouTube videos....
Here in Australia it is not possible to get Medicare funded Abiraterone unless you have already had Chemo. Bearing in mind that it now seems to be standard of care in the US to prescribe A early, my...
Chas is the standard abbreviation for Charles which is actually my 2nd name, but it is the name I have been known by for the last 72 years. Chas is generally already taken as a user name so I added K...
Halbert, my sympathies for your daughter. A terrible diagnosis, especially at such a young age, but know that you are not alone. 7 years ago my daughter, then aged 40, was diagnosed with breast...
I see no point in having regrets. You can’t change the past and it’s not even of any value to those coming after us. “Regrets, I've had a few But then again, too few to mention I did what I had to do...
John, I agree with TA. Your bladder is capable of holding over 500mls without any problem and can stretch to almost a litre in extreme circumstances. Not that that is very comfortable! I have a very...
Thanks TA, appreciate your comforting words....
TA, thanks very much for the genetic testing link. That certainly represents a big cost saving. I got the impression from my MO that he might be able to organise a test at a greatly reduced price,...
After my PSA test in December, my RO who had been managing my ADT decided there was little more he could offer me and referred me to an MO in the same cancer clinic. An appt was made for today, and...
As you say AK123, there is no point regretting past decisions. That won't improve things; expressing the experience may help someone else from making the same mistake, though how do we know it was a...
Mal, yes 2+ sounds about right, we’ll it was for me. I also put on weight after my first year on Zoladex, so when I had to go back on after a 2 year break, I determined that wasn’t going to happen...
Sorry to see the rise in PSA Mal, and it may well be that you end up back on Zoladex. How did you tolerate it last time? I am lucky in that I tolerate it well, with hot flushes being about the only...
Beth has probably said it better than I can, but those grandchildren are the shining light at the end of a long dark tunnel. You can ensure they grow up knowing who Grandad Chris was and what a...
I've never heard this put into words before. There was something drawing me towards open vs. robotic that I could never put into words. And ... *this* is it. It had to do with connection and trust....
That is excellent. Congratulations. Bodes very well for the future....
That's all good Tomson. As Gemlin said, it looks like you have a Pacemaker only, without the defibrillator function so it looks like you won't need to worry about unexpected shocks. That is good. Chas...
Gee, that is a bad blow. Let's hope the treatment is as successful as the prostate treatment was. Chas...
Ah, OK, now I understand, makes sense. Thanks....
Gemlin, I wondered that too, but was influenced by Tomsons comment that his “gadget” was set to a max of 150. I didn't think a pacemaker had a max setting, only a defibrillator, but I guess Tomson...
Tomson, I would definitely discuss the triggering rate with your cardio specialist. 150 seems a bit marginal to me. In theory your max HR is theoretically 155, but at age 68 (when I was shocked) I...
Tomson, replacing an old pacemaker with an MRI compliant one doesn't help, because they only replace the pacemaker unit but not the wires which are by now firmly implanted into the heart. An MRI...
Thanks guys for the positive thoughts. I am not really down about this, it was just that seeing a drop from 2.6 to .08 after 3 months ADT, I was hoping that after another 3 months I would see a drop...
Thanks Beth. That is a great positive thought to be going on with.👍 Chas...
Feel guilty being disappointed by my latest PSA, but the reality is that I am disappointed. Restarted ADT 6 months ago after a fast rising PSA after a 2 year vacation. When I restarted ADT, my PSA...
It is interesting to see the diverse views on continuous vs intermittent ADT. I too have non metastatic recurrence with a very short doubling time and am back on ADT after a 2 year vacation. My MO is...
Looks promising, but very small trial...
Jaybee, interesting take on Stricker charges. When I was first diagnosed, I filled in a form on his website to get a 2nd opinion. Didn't get any immediate response, so in my uninformed panic,...