Also just checking in. I guess I am most fortunate in that my PSA remains undetectable after salvage radiation. No hormone therapy or chemo. Would appear there are wide variations of aggressiveness...
i have been very blessed so far. Retested 2 weeks ago....
Dr. Misop Han at Johns Hopkins did my surgery in 2008. I have recommended him to others. Followed up quickly on my emails and phone calls. Great surgeon and nice guy....
<0.05 for me. Didn't see a place to post last month. Prostate cancer chronology: • Diagnosis 1/4/08 • Surgery 1/22/08 G4+5 • Psa tests 2/08, 3/08, 6/08, 9/08, 12/08, 4/09, 7/09, 8/09, 10/09, 1/10,...
I agree with your thought. Different equipment reading psa at a different low level. Whether < 0.02 or <0.05, the result is that your psa is undetectable, and that its level cannot be picked up on...
Just had my test last week. Thankfully, <0.05....
Big Mac, I was classified a T3a. I guess, so far, I have been fortunate to have a slow growing cancer, despite the poor pathology. I have also had a good surgeon and radiation oncologist, who hit the...
Include me in this group, also. Northfoot...
Supposed to be no such thing as a cure for advanced prostate cancer. Just remission until you succumb to some other disease. Then you can retrospectively consider yourself cured. Having said that,...
I was Gleason 4+5. Went ~2.5 years post op (January 2008) with spa <0.05. Eventually needed radiation (January - March 2011), and have been <0.05 since than so far. Last test October 2014, and next...
David, Nothing new to add, but I hope that something can be found that works to give you some help on any front (pain, appetite, etc.). I have read your postings as I lurk on this site for years, and...
Yes, I emailed him regularly, before and after surgery, and he was always quick to respond. When I had my psa recurrence, i contacted my local urologist -- no call back. I called Dr. Han's office --...
I also had Dr. Han do my surgery. All the medicines, as was said before, are the same drug. As long as you do not exceed 100mg in 24 hours, should be no problem. I may be mistaken, but I thought I...
Thank you all for your responses. That must mean that drinks are on me....
Thanks for the responses. You guys are great!...
The relief part. 3 years and 2 months from completing SRT and my PSA <0.05. The guilt part. I am always a little hesitant in posting my stats because I know some others are doing worse than I am....
I don't know how I missed this topic before, but, unfortunately, include me in it. Signature below....
Me, too. Open RRP 6 years ago. MRSA infection at top of incision. Healed with a depression about 1 inch below navel. I exercise, but it would take plastic surgery to remove it (losing weight has not...
With my pathology, the question was not of waiting, but of either surgery, radiation, or both. For me, despite problems with the surgery (bladder neck contracture, stitch abscess and recovery of...
Break60, Sorry it took me so long to get back here. I waited 6 months from first detectable PSA until I started SRT. I felt this was enough time to see that my PSA was going up consistently, and not...
SRT 1/11 - 3/15/11. Last psa <0.05 (lowest the lab records. No long term side effects. That is probably why I haven't posted for a while, but I check the boards every day....
Staxyn is the ingredient that is in Levitra, but in an orally dissolving tablet. It is a 10 mg. strength, versus a maximum dose of 20 mg. for Levitra. I find that the decreased dose as opposed to...
Purg, Nothing new to add. I just want to say that, although the bladder problem needs to be dealt with, I am just so relieved that you got at least one good piece of news, concerning the pancreas....
Sorry in delay in answering this. Here are my opinions: 1. Tertiary 5 simply means that there are more undifferentiated cells than someone who did not have tertiary five. As you have had both surgery...
Purgatory, You know, I understand life isn't fair, and I have read a lot of bad (and some good) news here lately. But what you have had to go through is just off-the-books unfair. As everyone else...
Benz, My circumstances were also similar. RP in January 2008, then recurrence June 2010 (detectable at 0.05). Waited 6 months, until it rose to 0.08, then opted for SRT. Fell to 0.05 2 weeks after...
Jaxum, It seems pretty far out in time if you had your RP in 2010, but is it possible you have a partial bladder neck contracture? I know when I had that after RP, I was urinating 12 times a day or...
David, I have read and reread your original post. Thank you so much for presenting your oncologist's viewpoint. Should I have recurrence after SRT, it provides me much information to present to the...
David, 2 points. I have frequently read that doctors often under-prescribe narcotic analgesics for fear of causing addiction. That does nothing for the patient, and relief of pain is every bit as...
Nellie, I agree with Ralph and cannot add anything more. I'm a G9 too, and the question and answers are really pertinent....
Mel, Don"t forget to ask about duration of HT and whether you can go intermittent rather than for 2 to 3 years straight on it. Best wishes, Bill...
David, I HATE this disease. You are always there for everyone else, and it is just wrong that you have such a resistant case. I hope that the oncologist can initiate a plan in the new year that can...
Thank you all. Although I do not post often, I check out this site every day. I really have to say that your support is so very helpful; not just for me, but for all who have to live with this mess....
Thanks. Bill...
Here are stats. Thanks for quickness in reply. Prostate cancer chronology: • 10/07 psa 2.66 • Biopsy 12/24/07 • Diagnosis 1/4/08 • Surgery 1/22/08 G4+5 • Psa tests 2/08, 3/08, 6/08, 9/08, 12/08,...
A quick question to you all. Last tested 9/20/11 with psa <0.05. Urologist say I can wait until beginning of April to test again (~6 months). From an emotional standpoint, that sounds great, as I get...
I was 52 when diagnosed with PCa. Gleason 9, EPE, T3a. My doctor at Johns Hopkins said wait until rise in psa, and when it became detectable 2 1/2 years later, he said I could wait for it to rise to...
Just my 2 cents. Cancer is cancer. John T., I disagree that a freckle is a cancer. Its growth is self-limiting. In other words, there is a built in off switch to the melanocytes in a freckle or mole,...
David, Let me add my two cents by saying that the choices you and your oncologist are making are logical. Chronic, severe pain can ruin quality of life, and one of the roles of an oncologist is to...
Startech, Similar circumstances. Gleason 4+5. Open surgery January 2008. Noted psa detectability June 2010 (0.06). Had salvage radiation January 2011 with psa 0.08. Most recent psa <0.05. No advice...
David, I just logged on and saw your video interview. Wow. You were impressive. An excellent, and open description of your circumstances, feelings, and the need for people to educate themselves. You...
David, No metastases = great news. Orthopedic/neurological pain can often be difficult in pinpointing the cause. Never the less, it should still be at least some relief that no bone mets found. You...
Dr. Han did my RP three and a half years ago. He has always been very receptive to phone and email questions from me. I agree with Zufus that he will recommend RT and possibly/probably HT when he...
At eight months, I was being treated for a bladder neck contracture, so I cannot answer your question from experience. However, I would have a serious discussion with my urologist about his timetable...
STW, Thanks. Be optimistic. I tested yesterday, and now <0.05. Almost a year after recurrence and three months after SRT. I hope that your experience with SRT is as easy as mine has been....
Thanks, Purg. I appreciate the hopeful comment. Like a lot of others here, I wish the best for you too....
Magaboo, Thanks a lot. I appreciate your comment....
A quick question. I finished SRT 3 months ago. 2 weeks later psa dropped from 0.08 to 0.05. I am due for a test this week. I exercise a few times per week (weights and bike). It would seem to me if...
Even though you can't extrapolate the Mayo data for one's personal future, it sure is nice to see a study that gives some hope....
Mel, All along my SRT I was never given any warnings about WBC count being lowered. I only felt tired for a few weeks. I am at a loss as to why immune system should be so effected. I would think the...