I've been around since 2016. Finished treatment late 2018. Radiation ,lupron 2 yrs, and 4 rounds chemo. My guys shrunk to grapes. Since the end of treatment my right guy never returned to normal and...
It's been nice to connect again and to remember the tremendous support that this group gave me through my journey. Thank you for your kind words Cyclone, it's nice to be remembered. You have always...
It's been quite awhile since I've posted but I do look in occasionally. My treatment consisted of ADT/IMRT/ CHEMO (docetaxel) and ended in Dec. 2018.I recently had to get a new PCP. On my initial...
My wife has just been dx with heptocelluler carcinoma HCC. She is 66 and healthy. She was dx with hpc in 2006. We believe she contracted it through blood transfusion at the time of of our daughter...
I am now the caregiver. After just celebrating my 5 yr since dx for PC, my wife is now dx with HCC. It's only been 2 weeks yet I already feel the difference in being the patient vs the caregiver. It...
Free PSA % for undiagnosed men is the opposite. Anything under 10% is indicative of PC. As the fPSA% goes up the risk of PC lessons. That's where the confusion came in. Also, I understand 2.0 above...
Djin, I'm pretty sure he isn't that informed on PC. I've never heard of fPSA post treatment either. I don't understand what this means... fPSA ratio >=0.15. I know that anything under 10% fPSA is...
It been awhile since my last post. I received my PSA result this morning and it has gone up from .07 to .2 For some reason my PCP ordered a free PSA test also. He's new to me and I haven't had a fPSA...
Reading through the replies and hearing different opinions is exactly why this forum is so helpful. Creating a dialog gives much food for thought. Every case is different and we all need to make our...
Thank you for the replies. I have been on 3 months alternating between my RO and uro. The last time I saw my uro our discussion included what we would do if my numbers got too high. His statement was...
Hello to all. It's been awhile but I've been around . I went to my RO the other day and she suggested PSA testing now every 6 months. I was Dx 4yrs ago June 3rd. Treatment was 18 months...
Hi Marv. I've been following you since you joined as your dx caught my eye. If you look at my signature you will see I'm low PSA (3.42) high risk 5+4gleason 9 (8-12 cores). My treatment was...
I was originally scheduled for 2 yrs with G9 high volume. My PSA was only 3,42 at Dx. Treatment was IMRT + Docetaxel. I decided along with my MO that 18 months was enough. There are studies that 18...
This thread caught my eye and the article is very interesting and informative . This would make the statements that one hears frequently "when the cancer returns, it can return with a vengeance."...
Fairwind, I think what you are talking about here is neuropathy which is different than Neutropenia. I have pretty bad neuropathy in my feet and a little in my hands as a result of my docetaxel...
BillyBob, I do think I know what you are saying and I'm not trying to argue your point. You in fact have pointed out something that guys really need to remember and that is.....One cannot just go by...
BillyBob, I'm not sure exactly what you are saying ,but the reality is that there are significant SE's in doing different treatments and by adding more and more types. In your "perfect" scenario of...
As much as I complain sometimes about the side effects, when it comes down to it, it did play a factor in my decision. If I look at the positives (which is tough sometimes) I'm glad that I don't deal...
Wow Jerry. First it was adjuvant Docetaxel that has been determined not to have a benefit for very high risk guys. Now there is this stating whole pelvic radiation shows no benefit to very high risk...
Hello Cali. Great to hear from you. You where a great inspiration to me as you are just a bit ahead of me . In fact you are the reason I looked into chemo. Glad to see you're doing well. Keep in...
Redwinged one, Thanks for the lengthy reply. Yes the mind games continue but thankfully they ebb and flow. Having others that are in close to the same boat (G9/10 guys with RT as primary) helps...
Seeing that they have dropped adjuvant docetaxel as a treatment option for very high risk is kind of concerning to me. I wonder now if it was even worth the SE's I received from chemo and now my...
I have an update. I saw my MO today and the good news is my PSA stayed level at 0.05. My T score is inching up and is now at a robust 119. (last score was 87) .I'm not real happy that the T is taking...
Jerry, That is great news! Keep leading the way!...
I saw a recent post in another thread that peaked my attention. I have wondered about the effects ADT would have on dental work. After 18months on lupron and now being off it for almost as long, I...
ppm guy, Thank you again for your response. I just got off the phone with my son and he had just returned from seeing his dr. I was able to glean some more info as his condition becomes more clear....
PPM. you stated that if I could post my sons CBC results that it would be of some help. I was able to access his most current test results. WBC 15.32 K/uL 4.00 - 11.00 K/uL H RBC 5.41 10*6/mm3 4.60 -...
I have tinnitus since I underwent docetaxel treatment. That was almost 2 yrs ago and still have it. It's in my left ear only....
Will.be getting my blood work done this coming week. Last result was T 87. PSA 0.06. I was on 18 months Lupton last 4 month shot was Aug 2017 so it's 15 months from ADT release....
I was able to get some limited info concerning my son's hepatology testing. The only score I have is a Median liver stiffness score was 3.13 m/sec. I'm not sure what that means exactly. Also, the...
GoBucks, It's always great to hear good reports. You guy's that are fighting metastatic Pc are always an inspiration to me. My short stint on ADT gives me just a bit of an idea what you go through....
MG I was originally going to do 24. 18 months is what I went. Now looking back?..... Sometimes wonder if I should have stuck with 24. I think that for us it's imperative to give this "beast" all we...
YK, Thanks for the update. Congratulations! Here's to keeping that < sign going and going! MG, Congratulations on finishing RT! NOT a small task for sure. How long you going to be on ADT. Yes , the...
ppm, Thank you. Yes ,I think I'll start by trying to get access to his records and Dr. It's literally impossible to do things the way it is. Mark...
PPM, Thanks for your response. My son did go to a hepatologist. The problem is, he's in a state institution. My son doesn't know the questions to ask. I would think that they would at least give him...
Great news Northfoot!! PC can be all over the map with different variables. Gleason score, volume of tumor, EPE, SVI+ - NO,MO, Metastatic, contained. genetics and any variation of all. Makes each...
Update on my son. My son completed his 12 week Mavryet treatment mid Dec. As far as I know the HepC is undetectable. That we are very grateful for. The bad news came yesterday after his appointment...
Ed, Thanks for the update. Your post gives great Encouragement! Congratulations on continued success. Mark...
Being G9 (5+4) these studies are interest me. It has been suggested by some that one should not focus so much on studies after treatment and there can be some validity to that. But , I believe that...
Just wanting to post an update so as to bump the thread. I had my appointment with RO back in mid Dec. PSA is up a slight tick to 0.05 and my T level is still below 100 at 87. Still good news! It's...
Thanks Jerry, It's always helpful to see info concerning G9-10. I too think it's important to distinguish the pattern 5 cells. There are definitely very few of us in the overall scope of PC making it...
I would blame the Lupron. I fell at least 3 times in 6 months when I was right in the middle of ADT. First time in the middle of my brothers front room, knocked over a lamp,tipped the coffee...
Naples, Glad to see another "0". That is great! I am just about to get my 1 yr PSA and T test next week. You mentioned the fatigue. I still feel fatigued every day. My T has risen from 14 to 64...
Thanks Jerry. That clears it up a bit. Like I said it's getting close to the next test....
Everton, Yes.... my T was castrate level the entire time I was on Lupron. Had my last shot last August 2017. I'm hoping that it comes back to normal levels. I'd like a break from the fatigue....
I have a question for you G9 guys. How many have had slow T rise post treatment and how would that effect PSA rise. I've always wondered how things are monitored for someone that had a low PSA high...
Jerry, This post has been very helpful to me as I've wondered about these things for a long time and didn't know how to ask the question. This is why I follow you. Hey....I'm an artist...what can I...
Jerry... Thank you for clearing that up...I think...maybe.....alright.....I got it...sort of...yes ...no...of course....probably...sounds good...… I'll take your word for it. HaHa I'm good at many...
So sad...… Diagnosed just about the same time as me. Puts into prospective just the kind of thing we are dealing with here.. My prayers are with his family.... Rest in peace John...
Oh yes ….those wonderful # 5's. I have way too many of those. Could someone explain this to me. I have read many studies and am not quite sure how to read the hazard ratio and what it means. I...