As Allen says, the bladder drops to fill the space. And yes, unless one is on the fast recovery end of the bell curve for ED, an aggressive rehab program is the best means to stave off atrophy which...
Hello Purgatory! Good to see you post. On topic, I went about 1 year with no response on pills. I started trimix which jumpstarted recovery, switched back to pills which then worked, and tapered off...
No surprise with what was in the originally posted article. My experience is that an appeal is worth the time, but be prepared for the long haul or they will wear you down. Even renewed prescriptions...
Post biopsy infection may be uncommon but it can be pretty severe. Statistics don't mean squat when you 'win' against the odds. I had a post biopsy infection that put me in the hospital, as sick as I...
I have been advised over time by my primary care doc and my father's cardiologist to take half a dozen or so supplements. I have also researched and added or subtracted a few on my own volition. In...
Interesting article but not surprising after a moment's thought. Two points come to mind. First, when there is a single copy of a complex machine that has a high cost for down time *, preventive...
Well said Halbert....
That is an interesting point about the Foley effect on the bladder. Another consideration is the possibility of developing urge incontinence. The way I understood this affecting recovery from RALP...
I am coming up on 6 years since surgery and have been on T replacement for several years now with no problems. My urologist (who is also an oncologist) and I became comfortable with the idea after...
No No, but rehab took some time. No to climacturia. Did not measure. No...
Raypaul, It takes time, and how much time it takes is widely variable. Having ED resolve at 4 weeks post op is a low percentage result. The PDE5 drugs need nerve impulses to work for erections, so it...
I am subscribed to AHRQ and received an email regarding the draft statement this morning. Here is summary statement from the page linked in the email: https://screeningforprostatecancer.org/ "...Men...
More thoughts and prayers for you....
Amazing pictures Ed. Thanks for the link so we can see them....
Very good to hear - congratulations! edit to add - Micah68 is a favorite reference...
MK1965, I am sorry to hear that you are hit so hard by this. It is a very tough situation. I have been there as have many others. That said, do not give up hope. I have previously posted a summary of...
Congratulations Todd. Your story is amazing - it keeps me coming back to HealingWell even though my own case was low risk and turned out well. I remember when you were battling to get Provenge...
Andrewski, Yes, it was a tri-mix from a local compounding pharmacy. I do not have a record of the exact proportions anymore, but I recall it was comparable to what has been referred to as a 'standard...
Andrewski: Has anyone here seen or heard of recovered erectile function after the first year? Yes. PDE5 pills had very little effect at one year and significant side effects (tried all 3). I finally...
I started injections about 2 years after surgery. Urology monitored closely and we changed frequency and dose a few rimes. It helped a bunch but swings in levels still persisted after a few years. I...
In my opinion, there are cycles of disregard for whichever forum rule addresses the idea that others' treatment choice be respected. It has happened several times with a relatively few vocal...
David, Very glad to hear you dodged another malignancy. Sorry about the angst in the meantime as it had to be really tough on you. At least this one ended up as a break for you. Explorer...
Paxton, Light as a counter to mild depression - it makes sense in terms of improving mental state and ultimately satisfaction. However, I'm not sure it explains the difference in lab test results for...
Todd and David, You both have my respect. Any update from either of you catches my attention. That said, I will also understand if you need to take time away. The increase in pointed dialog here is...
David, Thank for stopping in and giving an update. Hope the new round of appointments will result in some specific and effective help for you. Keep the faith. Explorer...
JayMot, Recovering from ED side effect of surgery can take a long time. A favorable outcome is possible, even starting from a level of zero response a few months out. Rehab is worth the investment....
Bolo, Thank you. That is so rich. Explorer...
PSA might still dropping by half lives at 9 weeks, considering it started at over 20. My first post op PSA was at 7 weeks and recorded as 0.03. Every PSA from there forward was undetectable at <0.01....
Paxton, good topic. You are not alone. I also understand your perspective. At 5 years post RALP with undetectable PSA, I have been getting supplemental T for a while. Dosage is not yet balanced to...
All three of the PDE5 drugs have similar potential side effects. However individual results vary depending on dosage, interactions with other drugs, health conditions, etc. After a couple years I...
Five years ago this week I went in for surgery. The procedure went well and despite some discouraging steps along the road to recovery, I am now about as well off as one can be. My signature tells...
Music in the OR is quite common at one of the major hospitals in my city. Choice is by the surgeon and music styles range widely. IPhones using Bluetooth speakers are common in the OR according to my...
Response to OP after reading the whole thread: I got to experience septicemia as a result of a first biopsy. This was despite standard of care protocols for pre-op pills, a very effective pre-op...
I was given a local numbing shot and the Cipro. I felt both plus the first several needles but they weren't bad. About the fifth sample needle was excruciating pain. Uro said it must have passed...
Muse was expensive, uncomfortable, and gave a barely usable result at the starting dose. My uro insisted on trying it before injections. Increasing the dose elevated the ache but not anything else. I...
David, Thank you for updating us. I wish you had better news. A number of us think regularly of you and appreciate you letting us know. Getting the infection aspect cured would be a definite win....
Good thread idea Halbert. My response will be somewhat brief due to limited time this morning, but this is a discussion that needs to happen periodically. In the months after and up to a year after...
Great response by InTheShop. Humor is in a league of its own for treatment. I was treated quite effectively by a local uro in a group in a mid sized city. No big names involved. I did ask about his...
Todd, I am sorry for your loss. Prayers are lifted for you and your mom. Explorer...
Newly, Freezing should not be a problem and should preserve both the strength and sterility of your trimix. I picked up my trimix prescription a couple years ago, a few months after widespread news...
Mail order pricing and 90 day fills look good in theory. However, getting renewals and prior authorizations sorted out between a local provider's office and the online pharmacy carries a price of its...
Its not a stupid question as far as I am concerned. Frankly, it is no affront to my manhood to be somewhat different from some cultural norms. It is simply one of changes some of us find helpful....
I am remembering you in prayer David. We will be waiting to hear your positive report. Explorer...
David, It sounds like you finally have a diagnosis that lines up with the problems you have had. Good job on pressing the point. I will be keeping you in prayer. Explorer...
Late August result here. Another undetectable on the ultrasensitive assay. This is now 4 years out. Since the uro is managing T replacement I still see him in 6 months. Explorer...
Thanks Tim. I could probably do better on the fluid intake, but I have been trying for a couple years. Maybe the change is less a side effect of RALP and more a matter of 'life experience' aka...
At 4 years past RALP, I am overall quite pleased. The only downside is I never really recovered from reduced bladder capacity after surgery. I rarely have any leakage but it can happen if I sleep...
David, I am so glad to hear the surgeon found that the growth was something he could work on and that thinks he got it all. You have my prayers for continued recovery, a favourable pathology report,...
Congrats to all who are reporting encouraging tests. I am pleased to report another undetectable as well. Equally important, the doc said that for all practical purposes I am in the clear. He wants...
Glad you are taking the trip, Prato. Enjoy it....