I have IDC-P as well and was also diagnosed by Dr. Epstein. If you search on IDC you'll see all my posts. I was at .05 but now am at .33 with a psad of 1.44 months so I'm going back on active...
his_so, I have this as well. One of the key markers is BRCA2...if he is of Jewish decent (specifically the Ashkenazi decent) then he should be able to get this. I am of that decent but have not been...
S.O., If you type in IDC-P in the search bar you will see my posts on this subject as I to have this. I basically chose the same path as Bentnotbroken and went with the standard of care for high risk...
I am not wise by any means and this is a very difficult topic. I think it's all about what you want it to be. Personally...I want my wife and children to know I did the best I could with what I had....
Chuck, So far my treatment plan has been effective. Went through a year of aggressive treatment (Chemo, EBRT, Brachy Boost, ADT) and I'm still on Lupron (which I hate) and I have six month CT's done...
I know you go to Gibbs...just curious who the new doc is if you don't mind sharing. I have a new one myself (meeting next week for the 1st time) after 2 have left. I did hear Dr. Curran (think he was...
I asked this question myself...no other therapy (ADT,Chemo,Etc...) has a bearing on the Phoenix study of Nadir +2 for Radiation as the primary treatment. So...you wait and watch until it does or...
I had a similar experience. I thought the Flomax was making me go so much after Brachy I stopped taking it for a few days but it was the fact I wasn't emptying. They really need to tell us this...
Mark, Did insurance pay for the chemo? Just curious since your PSA was .02 (undetectable) before chemo and it brought it down .01 to .01. My insurance would never pay for treatment if I was at a...
Thanks Allen. Wasn't sure and hoped you would answer. Todd...
I've read a lot about PSA rise after RT and the Phoenix definition of 2.0 rise above Nadir being the trigger for recurrence which is pretty straightforward but have not seen anything on whether or...
Finding out your t-level is easy enough on the internet....your level 16.7 nmol/l coverts to roughly 482 ng/dl which is well within the normal range of 350-1200 which would mean you are not a...
I don't have the link or data in front of me right now but I though I read something posted here that 18 months was the number....after that there were no significant benefits. Could be wrong but my...
Hi, I'm not sure if everyone is talking about the same thing since Ductal and Intraductal(IDC-P) are two different types of cancer. I have IDC-P which was found at biopsy in addition to PCa (4+3)....
I thought having chemo as a neo adjuvant therapy to RT was where the true benefit was. It will shrink the tumor and make radiation more effective. After RT it's a salvage treatment for those not...
Taking two flomax a day would decrease urine retention not increase it. I had HDR boost a few weeks ago after 25 EBRT treatments and they upped mine to 2 a day because I wasn't emptying when I went....
I had the exact same experience as Rockyfords....all the dark hair fell out leaving all the gray. I am salt and pepper as well...mostly salt so it looked really bad (thin) so I shaved it off. It all...
As part of my monitoring in addition to PSA tests I have CT, MRI and Bone scans done every 6 months due to my Intraductal Carcinoma which does not have a marker like PSA that can indicate what's...
Lost almost all during chemo....grew back thicker than ever then radiation took it away again...grew back again though. Chemo took almost all the hair on my body...it was nice not to have nose hair...
Joint/muscle pain is a known side effect of Lupron (1 of about 30 or so). My pain got worse over time as well....now my legs from the knee's down and upper back and shoulders are affected daily....
Gibbs Cancer Center and Research Institute in Greer and Spartanburg. My "Quarterback" is Dr. Daniel Fried who was recommended by the Dr's at Emory (Sanda and Rossi) in Atlanta after I went...
Tiger, Send me note to my personal [email protected]. I'll send you back some info and my phone number if you want to talk. Todd...
75Tiger, I'm in Greenwood SC and I'm being treated at Gibbs Cancer & Research Center in Greer and Spartanburg. I ended up there after going to Emory in Atlanta because the RO reccomended it. I have a...
Thanks everyone for the replies. Side effects have not been my friend with most of my treatments and I get the "I never saw that happen before" with almost every one I've had. Even my port got...
On the fourth leg of my treatment plan (Quadruple Play??). I already went through Chemo, EBRT (25 treatments) and I'm on Lupron. Next one is HDR Brachy boost on 12/19. From what I'm told and read it...
Paxton, Blankets & Pillows?...The girls who treated me gave me a dish towel and told me to strip to my knees everyday. Wasn't hiding anything in my EBRT treatments. There were always 1 or 2 behind me...
I tried naps as well...they didn't work with the fatigue because mine isn't a lack of rest fatigue where you feel energized afterwards...feels like your just dragging all the time and nothing helps....
I did mine at 10 am everyday for 25 treatments. I had a 1 1/2 hr drive each way and went to work early..left and went back so I was working about 25-30 hrs a week. About mid treatment the fatigue...
Thanks for the replies. I had read that osteoporosis is a side effect of many of the cancer treatments...HT included. When I meet with my MO I'm going to ask about a bone density scan because I read...
Anyone get joint pain and general weakness while on HT? Mentioned this to my RO that I have been getting progressively worse pain in back, arms, legs and hands (losing hand strength) and he said it's...
I've been through 6 rounds of chemo on have been on HT (Lupron) for 7 months and I'm about to finish up 25 EBRT treatments this Wed. My PSA for my 4+3 has hit a low of .40 and has risen over the last...
Has he looked at Mayo in Phoenix? There are some great doc's in all area's there. He should get scans first.....very high percentage of high risk come out of surgery with the need for RT anyway. Todd...
I did see this on a recent thread but it was not the subject title. I do remember Allen commenting but can recall who else was in the thread....I remember it because I had not seen this before...
Yaamba, I may be wrong but I think your referring to the ASTRO definition of RT failure that was adopted in Phoenix in 2005 which replaced the 1996 definition. "In 1996 the American Society for...
RF, Thank you for the words of encouragement and understanding. You obviously go through the same emotions that I do. The thing that weighs on me the most is my Intraductal diagnosis because it is...
Thanks. Over reacting I'm sure. Appreciate the talk off the ledge:)....I'll post how things are progressing further into RT treatment....
I don't know what to do. Just thought there would be some second line of treatment lined up if the first line wasn't accomplishing what was expected. I'm very new to this and I'm sure I'll look back...
Went through 6 rounds of taxotere and started Lupron the day of my 1st infusion on 5/10. PSA started at 6.1, went down slowly over 6 months to .40 and then up to .60 and .82 in six weeks (next psa is...
Even though he was my MO I only met him twice...the second time was his last day. He told me he hated the administrative part of the job and needed to do something different. Someday if you'd like,...
David, As you know I go to Gibbs in Greer as well. I was actually there Wed. at 10am ( I go everyday at 10am for EBRT, HDR Brachy boost will be in Spartanburg)). Who was the onco who quit? Curran? He...
I was hoping for some comments on what constitutes castrate resistant. Looked it up and there seems to be at least 3 different definitions...consecutive 1 week psa tests, 3 psa tests 3 weeks apart....
David, Where in SC are you located/being treated? I'm in the greenwood area being treated at Gibb's in Greer/Spartanburg. Just curious because I saw a post of yours where your MO quit right at the...
Dr. Who, The Lupron is keeping my testosterone down below 30 so I don't think that's an issue...last 6 test were 3 at <3 (undetectable), two at 30 and one at 16..all well below the 50 threshold. You...
So....I went through 5 rounds of Chemo (Taxotere) and on the day of my first infusion I also started on a 6 month Lupron regime. That all started on 5/10/16....my PSA got to the lowest point of .40...
Allen, What is the criteria for calling it castration resistant and/or qualifying for second line drugs and clinical trials? I finished 6 rounds of Chemo and I'm on Lupron (next 6 mth shot is 10/25)...
JoJo, Intraductal is not the same as ductal. IDC-P is closest to IDC-B (Intraductal Carcinoma of the Breast) from what I've read. Dr. Who, I am in the same situation with having an aggressive form of...
Interesting that they don't mention IDC=P..Intraductal Carcinoma of the Prostate. It is rare and does not have a PSA marker. I have this and it's basically graded as a gleason 4/5 according to Dr....
I have Intraductal Carcinoma of the Prostate (IDC-P) which is a little different but rare and aggressive just the same. Very little data on treatment "standard of care" so my oncologists and I are...
Well I'm on a quadruple play I guess...my IDC-P is basically grade 4/5 so because ther is no standard of care we decided on the most aggressive treatment plan we could...Chem and Eligard...
Fits like sleeves on a vest...