I was given the ok to cycle at my 4 month post-surgery follow-up appointment. (I was given ok to run at 5 weeks). Best, Joe...
Hi KT, I opted for surgery (and am happy with the decision and the results). That said, your surgeon sounds problematic. It is good that he has done so many robotic surgeries, but one wonders if he...
Here in France, the protocol is Edex injections twice per week. They started me on those at about 8 weeks post RALP. I asked in a follow-up about Cialis (because I don't like Edex and I was hoping...
Your experience is fairly typical. For me, the catheter was absolutely the worst part of the RALP. The first few days were okay, but I had increasing pain on the tip and fairly severe bladder spasms....
Dear Sleepy, Welcome to the forum. Sorry for the diagnosis, but you've come to a good place for support. First, take a deep breath and relax as much as possible. You do have time to educate yourself...
I too found moving around with the catheter quite awful. Once it came out, I felt so much better. Do try to encourage him to walk now and get his strength back. After seven weeks, I was given the go...
I lived in the UK (but my PC experience has been in France). Medical care in the UK is very good. Get yourself registered with a GP (one you like - ask friends and neighbours for suggestions) and...
I'm sure you'll get better informed answers here as the day goes on, but I think you are correct that once the prostate is removed those pre-test precautions shouldn't apply. Maybe hold off of mowing...
To give voice for the other side of the panic of a Prostate cancer diagnosis, here is a place where we can talk about when we felt a sense of calm. For me, two things - By local convention, I met...
I'm starting a thread : Emotional calm, what brought it to you...
Thanks for all the replies and good wishes. I met with young doctor Alexandre today who did indeed give me a woody! 😉 As I'd been warned, this first erection did hurt. Next week I go back and inject...
Courage! It really isn't anywhere nearly as bad as your imagination. I had no pain to speak of. I'm in France where the standard treatment is very high dose Paracetamol. Worked a charm. For me the...
I'm now seven weeks post RARP. We've had a rough time in Nice following the attack on 14 July, but I'm doing well in my recovery. I've been given the okay to run and to swim (but NO cycling or...
Osei, thanks for the timely post. I'm about to be started on Edex as part of my posrt-surgery 'rehabilitation'. Tomorrow is my appointment with the doctor to learn to use it. (I wonder: do I sit...
Congrats on loosing the catheter! I used Tena Level 3 pads at first, then stepped down to Level 1 pads. I bought pads for the bed, but didn't need them. After five weeks, I'm mostly dry with only an...
Good luck. I found that the waiting was actually the hardest part. Best, Joe...
Great to hear about this - a good run with your son for charity! At just shy of two weeks post RARP, I can't wait to start running again. Four more weeks? Best, Joe...
Gremlin & Halbert Gremlin- I'm getting 24 days on innohep (which may be the same, for all I know). It is intramuscular and hurts going in (I feel like a kid getting a vaccine). The nurse is giving...
I know it, but then again I grew up in St Louis. My impression is that in the medical community, Wash U/Barnes-Jewish/Siteman is seen as in the top handful of medical centres in the country (world)....
Not sure why my signature line didn't appear. It has in the past. My stats: Age at diagnosis: 57 PSA 21.23 (Free 3.6%) Bx: 11 of 12 G 7 (3+4) Clinical Stage T2c Bone/CT clear RALP scheduled 6 June...
Hi Jay, Thanks for the post. I think you are days ahead of me in this journey. I too had nerve-sparing on one-side only. We'll get through this. Best, Joe...
I'm on the other side of RARP and doing well (wish I'd bought a doughnut cushion!). I meant to update from hospital using my tablet, but I left the passwords at home. My surgery was scheduled for...
I don't have the expertise to answer (I'm fairly new to this too), but want to wish you and your husband best. I'm sure others on here will have some good information for you. Best, Joe...
Thanks for the advice and wishes. I suggested to my doc that I might travel by train to London. He looked at me like I was insane and said, 'Or you could fly. I would.' (I love travelling by train....
This has been a whirlwind couple of months. From a first, routine blood test ordered by my generalist in February. As I moved to France from London last year, I was fairly new to her practice. While...
Good luck! I'm a week behind you on the surgery; my D-Day is D-Day, 6 June. (The uncle for whom I am named made it through D-Day and WWII, surely that's a good omen?). And thanks to the rest of you...
Thanks for the comments and suggestions. This was my first PSA test: I have been living in the UK for the last 12 years, where the normal protocol is (I now know) not to test PSA unless specifically...
Hi, Thanks for this forum. I have been reading it for a few weeks since my PSA came back elevated. I've since had a biopsy and a diagnosis. I've now signed up to the Forum and thought I should...