Unless you have cardiac issues and your heart doctor tells you to take baby aspirin, eliminate preventive baby aspirin, which can cause some internal bleeding. When my husband stopped taking baby...
I'm glad to hear your dad is dealing well with "the beast." It's been a slog. We went to a large vets' gathering in our area of Western MA years ago where multiple men had more than one condition...
Thanks, everyone. I find the functionality of the Healing Well website to be very wonky and limited. Sorry my husband's signature is too long for what's allowed. I include a lot of detail to help...
I'm looking for an old posting of mine but can't find it on my profile page. I'm starting this post so I can click on my name, and maybe my old postings will come up that way. Also, I've run out of...
Just posting my husband's updates in the Gleason 9 thread. Thanks Redwing for keeping it going/ Husband DX @ 70 yrs (76 now) pacemaker; Agent Orange 6-9/14: blood in urine; DRE suspicious bx 11/14: G...
You are so generous to share your journey in such detail , Gunnar. It's incredibly helpful for anyone who's been in this game for approximately the same amount of time. My husband is one of...
I would have to agree with the studies. My husband did absolutely everything to prevent neuropathy during his 10 chemo Docetaxel infusions--frozen mitts, socks, acupuncture, and some supplement...
What a roller coaster, Star. I've been following your whole scenario and would likely do what you're planning to do, i.e. get a more detailed biopsy. Since MDA already got in touch with you, then you...
Apologies, Star, for thinking your husband was already started on Lupron. This long delay to an MRI biopsy, without treatment, is extremely frustrating. I'm sorry you're both going through this....
Hi there, Star. That is a shocker. We've had one of those shockers in the past when it's hard to gather your thoughts and questions in the moment. I'm just weighing in to support JNF's suggestion to...
I feel for you, gMoose. Geez, you're in your fifties and got hit so hard. I'm really sorry. The truly awful part is that the disease keeps outrunning the tough treatments. You must be so fed up with...
These responses are incredibly helpful in getting slices of life while chemo-ing. Union, I admire your take-charge attitude (especially the reduced dosage part). Assertiveness isn't so easy to pull...
Thank you so much for your responses, especially the last one about the Neulesta info. I was planning to ask about the chem dosage. Did your muscian husband use the ice mitts/packs to avoid...
Thanks, Pratoman, and brava to your wife. Not worried about the hubby hair since he's got a buzz cut for his current "cool bald guy" look! It's just the day-to-day we both wonder about, so thank you...
My husband is starting chemo imminently. He's out doing his daily run as I type. I think we're well versed in side effects and have gotten many tips on this site about how to manage them. Thanks for...
After an unexpected out-of-state non-cancer-related emergency, my husband and I moved from Medicare Advantage plan to regular Medicare, a Medicare supplement, and the highest level of Part D drug...
I'm sorry you're at this place and in pain. What a generous spirit you have to share your most helpful insights at this difficult point in your journey. It gives the rest of us a roadmap showing what...
Greetings, Grandpamarv. I'm sorry you have so much going on in your family simultaneous to your facing your high-risk PCa and treatment. It's a lot to handle. Plus the computer crash. I hope you feel...
Your treatment and everything associated with is hard--taking in the suffering of everyone around you as you go to your treatments. It shows your humanity. The advice you're getting of treating...
Greetings again, Grandpamarv. Redwing is offering great advice about prepping for radiation. My husband, who had 11:00 AM radiation sessions, got in the habit of making a fruit packed smoothie with...
Computer woes + cancer = misery alleviated by dinner out with your wife. I feel for you, Grandpamarv....
Hi, again, Granndpamarv from Mrs. GL 9, 3.38 aka Spouse21. I have some updates on a visit to our medical onc yesterday at Mass General. Despite a low PSA and with totally normal Alkaline Phosphatase...
Marv. There's a site called Yananow.org that has an interesting feature called Survivor Stories. The site enables you to plug in, say, all the Gleason 9's along with PSAs and treatments, and you can...
Greetings. I'll have more information for you at the end of the next week. This week, my husband is getting a CT scan and other tests to see how things are looking inside. (He can't have an MRI due...
Your low PSA with a high Gleason score puts you in a very high-risk category, so it might be a good idea to start researching "high Gleason, low PSA" to see what new treatments have come online for...
Thanks for responding. I don't want to give identifying details for my friend. PSA is low-ish (under 10), doubling time was a year and with months of urinary urgency. It's just that his MRI was about...
Asking for a friend....
This falls into the annoyance category--dealing with the way medicine is delivered now. I feel as if, on top of all the serious issues you're asking about in your questions, my husband is being...
Thanks so much for sharing this, Rob Lee. Re: Melanoma. I was surprised too but maybe more awareness has led to earlier dx therefore lower death rate....
While on the male/female subject of respective reproductive cancers, let's educate our next generation of sons and daughters to be mindful of their risk. A brother-in-law with very high-grade PCa...
Big hugs to all you semi-ferals out there! We love you. This disease sucks, but this forum doesn't. So many of you have done so much to help each other and those of us who are doing our best to help...
Getting the "pink ribbon shoved down our throats" is exactly why there is so much money raised for breast cancer research. Instead of dissing it, get a ribbon! Have PCa fundraisers where men hang out...
During one of my husband's third opinion consultations with an eminent oncologist at a major cancer center four years ago, I asked the PCa oncologist why prostate cancer didn't get as much attention...
My husband and I switched out of our Medicare Advantage plans because of the restrictions on doctors. We did so before my husband was diagnosed with PCa. Fortunately, we live in Massachusetts, which...
Radiation oncologist Dr. Paul Nguyen at DF isn't my husband's oncologist, but a couple men we know just raved about him, especially for high-risk situations like your friend's. Surgery might not be...
My husband's been taking 10 mg. (5+5 2x a day) of prednisone since February, 2019 (3 mos.) along with Zytiga to treat his metastatic PCa. He's on his second round of Lupron, which he restarted in...
What a well-written, you-are-there account of your journey, Redwing. Thank you for writing and sharing such a relatable experience. Reading it will inspire new people coming to the board as well when...
I bookmarked these links from 2017 and 2018, but I'll leave it for others more knowledgeable to tell you if these are good studies. My own husband, now four and a half years in, was on for 33 months...
The BP was high, so high I don't want to say, mainly due, my husband thinks to three cups of coffee consumed before blood work was done. (We have to travel 2 hours to Boston on a shuttle at ghastly...
Hello everyone. Yesterday my husband's test results came in PSA 1.8. He started Zytiga/Prednisone February 9, 2019 in addition to the Lupron restart in late August, 2018 after his PSA rapidly doubled...
I found this site later than I wish I had. I was on the American Cancer Society board at first when one of the top posters there sharply wrote: "Why isn't your husband involved?" (He reads a lot of...
I don't know how good this 2018 study is, but I'm passing it on. Maybe others who have expertise in evaluating studies can comment. Also, the men didn't have the exact treatment you've had....
Thanks so much, everyone. Cyclone, I think it was your original advice about drinking water with Zytiga that my husband has been following--just so helpful. You guys are the best!...
Thanks, In the Shop and 142. I did a Zytiga-specific posting as well on that thread. It's so useful....
I'm adding my husband's updated signature now that he started Zytiga/Prednisone 2/9/2019. Just wanted to mention that he has no new side effects. (He restarted Lupron 9/2018 with the usual Lupron...
My guy's PSA is now 4.20, down from 7.58 in late November, 2018. Below is my husband's signature showing his history. Due to rapid doubling in PSA Summer 2018, he restarted Lupron in September, 2018...
Anecdotal: When my 74-year old husband stopped taking baby aspirin after reading research that heart benefits are not particularly beneficial in older men who haven't had a heart attack, his...
Thank you so much, Behemond. That's exactly the information I need, especially since you're in Massachusetts. What you described was pretty much what was happening at the local level--husband...
So, so happy for you, Redwing! I was concerned when your number crossed the decimal on the wrong side! Now your numbers are to the right of the decimal. You must've been biting your nails with this...
My husband is a Viet Nam vet who had significant Agent Orange exposure. He applied for and received 100% disability for his Gleason 9 prostate cancer three years ago. His local private urologist, who...