It's morning here in Europe.Yesterday I had a very bad day when I felt that all my strength to fight this disease is gone.Thanks to you...today I am here packing now for my journey with confidence...
George, In 2016 the psma petct in Munich showed 2 suspicious uptake on removed semina vesicles bed and L3 .But after RMI in Munich European cybernife center they dismissed both of them as not...
Allen, When so a low PSA of 0.7 they find mets on your bones,you are always on alert.sometimes I thought to have biopsy for small cell or neuendocrine PC! My cancer was always aggressive with a PSADT...
Allen, Does this have any link with that I had 2 consecutive days of 15 km jogging before the day of my test.From where this extra prostatic PSA come from? God bless!...
Billybob , I had PSMA PTCT in Koln last august found 2 mets.one radiated( Cyberknife),then started ADT(casodex + trestar).pSA reached <0.003 within a month( initial PSA 0.75) After only 2 months...
tGeorge .I also wonder how this fluctuation can happen within 24 hours!!! I wiil ask them on monday as we have tommorrow is our n National day.What they suggest is my cancer is out of...
Thanks Dan .but yours is nadir and stable. Mine was nadir <0.003 and rising.how long you were on Lipron before it failed and what your scans found,,? Thanks....
Thanks George! This is the lab I used fot the last 5 yes.what is more devastating I urged them to repeat the test today and guess what! 0.008...one day difference!!!. My testotrone last week was <2.5...
Hi everyone, Since my 8 years of PC fighting, I am for the first time "scared" and seems out of options. During the last 2 years I had all kind of imagistics including 2 PSMA PET CTs in Germany.Had...
It should be SV bed. A mistake! Thanks....
George, Yes I had it in Hamburg and they removed the seminal vesicles.one of them was affected. They didn't say any conditions about LU177, but I will know everything tomorrow and will post here....
Allen, I Will know the exact cost after my consultation with the doctors and having the result of the PETCT.What I know is that I have to stay in the hospital for 3 days for the first cycle.Anyhow I...
Hi all! Done the PETCT today in Cologne,Germany.They offered me 18F PSMA PETCT instead of 68Ga PSMA.They say it is the new star which can detect more micromets than the 68GA PSMA.I will get the...
Thanks Annie. I don't live in Germany.I had to pay everything starting with my Prostatectomy in Hamburg back in 2011.I wonder how much Lu177 psma therapy will cost . I will report. Best...
Hi all, I have an appointment for my second PSMA PETCT on 2nd August .In August last year I had PSMAPETCT in Munich,Germany.2 suspicious locations were found(prostate bed spot and L3)which later MRIs...
PSA=0.019 ..15.03 from <0.003 in 10 January(3 months on ADT followed by 3 months off ADT). I don't know if PSADT is relevant.seems pretty fast rise.waiting my PSA to reach 0.4 for my second 68GaPSMA...
Thank you guys, Is there anyone who used and have results for PC?...
Anyone used this supplemen,Zyflamend? Aside from the studies conducted by the NEW Chapter,is there any other studies? My best....
After meeting with CK team, no treatment can be done one those spots,because of no evidence of metastatic disease. After the study of my MRIs and the PET/CT: Conclusion.....false...
Thanks George, I didn't have uptake in any of my LYMPH nodes. I had in SV fossa and L3. Btw, do you know any clinic where genetic profiling can be done in Germany?...
I am in Munich for Cyberknife. Have done Pelvis and lumbar MRI ,nothing found in the sites where there were PSMA UPTAKES. How could they do radiation then. My PSA is <0.003 again after only 1 month...
George, No, I don't know dr.Surcel,but my RO is from Fundeni institute, prof.Dr Rodica Anghel. She warned me about radiating the prostate bed where I had 78Gy during my SRT and she considers the...
George, There is no hospital stay .I have to stay in a hotel for a week. 23000Euro is the cost of the radiation( prostate bed &L3).It is the European cyberknife center in Munich.yes,they have the...
Thanks all. I think this is merely a refuse of my doctor to prescribe Zometa .I decided not to do any BS. George, I have an appointment for Cyberknife in Munich this month. I will have 2...
is it wise to have a bone scan after my 68Ga PSMA PET? My doctor wants to make sure that my L3 uptake is real to prescribe Zometa for me. I have osteoarthritis and osteopenia.I take Celebrex and...
conventional 1.5T MRI....
Thanks JackH. I had 2 MRIs which found nothing both in my pelvis &bones 2 wks before my 68Ga PSMA PETCT.At a PSA of <0.3 PSMA found 2 lesions!..now I know that this is a different stuff...not found...
Unenhanced body MRI?...DWI Mri?? Confused!...
Thanks George.That is what is in my mind. The idea behind my PSMA scan was to find where the bandit is hiding and then go after him!! Then as you said 'why sit and watch'.totally agree......
George, That is what I was planning after my PSMA scan . I even contacted Cyberknife center inMunich,Germany ,where they accepted to radiate both locations.Have you done anymore scans or biopsy to...
Almost a 10, Thank you.is it a monthly infusion? how long you'll be on it?...
My RO prescribed ZOMETA after the 68Ga PSMAPETCT found 2 highly suspicious locations for cancer( prostate bed & L3). He also ordered a bone scan and 3T MRI In the pelvis.I don't actually understand...
Yaamba, a 68Ga PSMA PETCT is the only scan which can show anything at this low PSA.Of course if you have the possibility. Having all my MRIs, CT,BONE scans clear,PSMA PET CT found 2...
Thanks Allen. I will check in when I receive the results of my RO's investigation.What do you think about Casodex monotherapy? I usually used ADT3+ Metformin&celebrex. Now only Casodex brought my PSA...
Ahmed, I would suggest a 68 PSMA PETCT for your father. I don't know if you have the possibility .I did it at a PSA of 0.27 and showed 2 mets. after CT,MRI,BONE SCAN....showed nothing. Prayers!...
Thanks George, It's unbelievable!!... I met with my RO, the one who did my SRT and he believes that the PSMA UPTAKES are false positives.Quote: "The one in the seminal Ves. is calcification from the...
Thanks TA.I was also surprised by the performance of PSMA PET.The notable thing was that my PSADT was less than a month. PSA rising from <0.003 in april2016 to 0.27 in August 2016( I don't know how...
PSA=13, 2010 Surgery robotic Jan.2011 pT3bN0,3+4=7 SRT 2012 ADT 2013,2015 PSA<0.003 Highest PSA after surgery 0.85...
After RRP in 2011 and SRT in 2012 both failed, followed by 2 cycles of IADT, i decided to do 68Ra PSMA PETCT. At a PSA of 0.27 and T=455 the result was annoying. Conclusion: -when considered in...
I regret I didn't have 68Ga psma petct after surgery.My SRT was a total disaster! After 2 cycles of IHT I finally decided to do the scan .They found cancer in prostate fossa(seminal vesicles) and a...