Tommyc your post is spot on. Seems like if you aren't one of the select few you are on the outside. I actually thought at one point I would like to meet the guys and reached out about attending one...
Condoms are the only guaranteed fix for climacturia. No the DW does not like it, and rightfully so, has refused certain activities....
I think you are correct pwallace, earlier is better for salvage treatment post RALP. I had the uPSA test done every three months post RALP and I'm glad I did even though it did cause me some...
Words of wisdom I will try to keep in mind and follow....
Oh I get it now. You have to send records, get into another system which can take some time. It's good to be prepared and ready to go. You also make a good point that you may need a test from "their"...
I think this test only confused your status. There is a disclaimer on my results page in BOLD CAPTIAL LETTERS that says "RESULTS FROM DIFFERENT ASSAYS CAN NOT BE COMPARED". The waiting/not knowing...
This happened to me at about the same time post surgery. I had finally got control of the leaking only to have to go all the time. It did eventually get better and now I'd say I'm almost normal post...
Welcome T2010. Very hard to tell what the future might be. At this point it's a wait-n-see, PSA test again and go from there which is where I'm at having just completed the salvage radiation too. Did...
Sorry to hear of your results, hope your PSA levels off or goes back down. Gemlin and Andrew answered your questions. All I can add is I had 25 sessions @ 2.5, UW Madison Carbone Cancer Center, which...
Dang. A kick on the shins for sure but too soon to tell anything especially with another testing change. Seems you have had more than your share of bad luck when it comes to PSA testing. Like this...
Sorry Prat, the <.1 does nothing as you noted. We started this journey at about the same time with similar stats and have been very interested in your status. Hoping for nothing but zeros or low and...
Not sure if it was my posts but it seems the couple of things I have posted on this thread were seen as me telling others how to feel. Definitely not the case, I should have been clearer so it could...
Depression and anxiety valid or not can be devastating. For me it took having beers at the local tavern where it just so happened the owner's wife was a RT tech in her past life. I spoke with her...
Took about 3 months before I had something useable and then urine for a month or so after that. It did feel similar to pre-surgery ejaculation but my wife was never a fan. Luckily it resolved on...
Jay - I felt the depression big time when my number came back at .03 Thought about it every day, clicked on the result in myChart several times per week. My testing method changed, was I .03 all...
Welcome Paul. Lot's of knowledge here for sure. Really helped me when I was first diagnosed. Looking at your numbers you have about as low amount of cancer found as possible. Wouldn't have been a...
No side effects until about 4 weeks after the first shot. Headache then for a couple of weeks that turned into the "fuzzy head" feeling I have now. All the rest came too, hot flashes, aches/pains, no...
Try typing "penile pump" into the Amazon search bar. Lots of options that won't break the bank. Some of the guys have had better luck with some brands than others. I'm sure they will chime in. Jon...
Celebrated post surgery cath removal at Buffalo Wild Wings with wings (no salad that day) and a large beer - most of which soaked my jeans due to poor pad placement. I brought in a fruit and nut...
I self-cathed for 30 days with a Speedicath 16fr and never had the redness or flank pain you are describing. I'd be surprised if it's the coating because I think it's just saline solution in the...
You are in the in between zone, the hardest part of the journey. As John_TX said, once you have a plan and begin to act on it things will improve. You feel like you are actively doing something to...
If and when the time comes I would talk with all three and pose many of the questions from TA's list, especially what type of machine they use. The technology has come a long way in the last 10...
I understand the study but I think I'm confused by the discussion. Wouldn't engaging HT/SRT at .03 mean overtreatment by 23% ? My RO encouraged me to wait when I was .07 for one more confirmation. He...
Tedsgirl - I have similar stats, no positive margin but I had a surgical tear that likely left some cells behind. I went to .09 at 22 months with about a 6 month doubling time so I started the 6...
Great result and so soon after surgery! Having that first one under your belt feels great. Keep those zeroes coming....
Yes reducing the number sessions and increasing the dose per session has shown the same or better outcomes with the same or lower toxicity. There was a study done at UW Madison that showed favorable...
I'm surgery guy so I can't help you with your radiation questions, I'm sure others will be along soon that can. I'm replying to your post because it strikes me that you would still be a good...
I think it's true a G7 (3+4) is not as bad as a G7(4+3). I am also a G7(4+3) post surgery and I have had a recurrence in spite of a good pathology report. You just never know what the outcome will...
The "Grade Group" is a newer scoring system that will likely eventually replace the Gleason system. Here is how the numbers relate - Gleason Group I = Former Gleason 6 Gleason Group II = Former...
Great news Tim! Good news is hard to come by sometimes, take your partner out and celebrate it! Significant downgrade. Let us know the results of your Friday tests. Wonder if the downgrade changes...
If it is the laser light that's the issue it's not radiation you would get but rather an intense light shinning in your eyes could give you some problems. Like blinding pilots with laser pointers. I...
Or is he talking about the green alignment lasers? Closing your eyes to avoid radiation wouldn't do much....
Looks like Steve0 had surgery back in March 2014 so that would make this IMRT salvage treatment to the prostate bed. Maybe some centers do use implanted markers but mine doesn't, just the tattoos. RO...
Starting to run outside did it for me. The kegels helped but it was night and day when I started to run again. Not sure why but to this day, 2 years past surgery, if I miss the exercise I get the...
Going from 30 minutes to 7 hours sounds like quite the challenge. I have only been on Lupron for 3 months and I feel the loss of muscle and my bathroom scale went for 21% body fat to 27%+ in those 3...
Pharmacist Daughter says stay away from grapefruit / juice if you take any kind of meds including ED. Logically you would think it would prevent the meds from working but it's actually the opposite,...
Welcome, sorry you find yourself here. I agree. Talk to the RO now and review a game plan. IF you get another rise like I did from .07 to .09 put the game plan into action immediately with the HT...
Prato - My RO supports the findings of the Koulikov study on when to initiate HT/SRT. Here is TA's summary of it. I found it useful to calm my nerves early on when my numbers were starting to go up....
Prato - It's tough spot to be in, trust me I know - Take a look at my PSA numbers. I looked at my uPSA rise like TA described. "it is what it is when it is" Regardless of what testing I could have...
This is very true, I think it was the hardest part of the diagnosis and treatment for me. To get your signature to show you need to click on the "Post Reply" button and it will open up a more...
I agree. Immediately after surgery the 1-1/2" was gone even though the surgeon said not possible. Like the hemorrhoid from the biopsy. Wasn't ever an issue before and the next day I've got something...
If this isn't possible where did the rest of junior go? Even stretched out to urinate I have to be very careful not to pee down the front of my pants. Previously it was pull it out and let it hang...
Jumpy_Wolf - Everyone is different but I would rather know what the real value is and understand it can bounce around a bit. Tall Allen did an excellent article on the Koulikov study that helped take...
I think this is all very true. Everyone is different of course but I'm of the mindset throw everything at it that you can. If the treatment isn't successful at least you did everything you could at...
I just got my EOB from my first radiation treatment. I'm getting IMRT/IGRT via Varian Rapidarc SRT. Billed amount was $1,261 Amount Allowed $717 Which put me over my max OOP. So my total for 25...
My uro said it's not possible, he didn't shorten my member. Which is technically true. I try to think of that every time I go on the scavenger hunt standing at the urinal....
I'm a self-employed computer consultant that also writes software and can understand how a lack of concentration can really cause software development problems. Being self employed I work out of my...
Welcome to the forum, hopefully you are just passing through. I'm surprised your uro would say 80% Have you done a round of antibiotics? If your PSA numbers have bounced around there is a good chance...
The time between the positive biopsy and surgery I had every ache and pain known to man and was SURE it was cancer that had spread. The phantom pains stopped after surgery, well replaced by real...
This thread reminds me of my Mother who passed several years ago from lung cancer. On more than one occasion she would boast about eating healthy and how she buys nothing but organic food all the...