Hi everyone - can I just ask if anyone knows if zoladex can cause serious kidney problems. My husband is going to see GP on Monday but basically he has quite significant pain in kidney area, some...
Thank you so much everyone for the extra messages and for thinking of us (and for remembering us cyclone :-) I'm glad your treatment is still going well.) I have called the Macmillan number a couple...
Yes I *think* here they prefer to try Casodex first. I think one reason is cost but also to try and extend the time before you move onto Zytiga etc to get as long as possible out of every option....
That's a very UK username Everton :-) Thank you for replying - I wonder if the system in UK will be similar re the 3 readings ... (Im guessing if it shoots up very significantly in any one reading...
Hello again everyone - its now 16 months since my lovely husband was diagnosed with a psa over 6000 and widespread through lymph nodes and bones. In that time he has had Zoladex injections and...
Thank you Charles for such a detailed response. Lots for us to think about from that....
Thank you for your answers - all really useful. Ive just realised that there is a mistake in my original post. I said that his PSA was 1.1 6 weeks ago but it was actually 12 weeks ago which I guess...
Hi everyone my husband started with a PSA of 6700 (!) and multiple mets in October 16. He has since had Chemo and Zoladex injections. Lowest PSA was 1.1 6 weeks ago. His latest PSA this week is now...
Thank you so much for the good wishes and info - glad your treatment is going well :-)...
Charles thank you so much for replying - particularly when you had such a similar high original PSA. I'm really glad you are still responding positively to treatment. Keep going ! :-) Very...
Really interesting that a few of you have mentioned casodex / bicalutimide. I *think* next stage treatment in the U.K. is often Zytiga (arbireterone) or enzulutamide. Thank you again for all your...
Thank you so much for the messages and thoughts. I still feel like I'm on a very steep learning curve so every bit of info is useful....
Hi everyone My husband was diagnosed in October 16 with a PSA of 6700 and Gleason 4+5. Widespread in bones and lymph nodes. He has since been on zolodex injections every 12 weeks and had 6 cycles of...
Ps we are in uk too. I'm so sad reading about the other late diagnosis stories here :-( My husband had asked about a PSA test a few years ago because of family history but was talked out of it...
Dear snowflake I recognise so much in what you have written (although it is my husband who has been diagnosed rather than my dad.) I have constantly questioned and blamed myself for what I have and...
The next stage of the treatment is to have scans etc approx 4 weeks after chemo is finished to see what is happening with bones and lymph nodes. He will stay on Zoladex injections until the...
Hi everyone I thought I should update after all your kind advice. My husband was diagnosed in October 16. No prostate symptoms but a PSA of 6700 (!) Gleason 9 and wide spread to lymph nodes and...
Thank you Beth. Best wishes to you too....
Hi Tall yes it's the same in the UK - 6 sessions 3 weeks apart...
Hi both thank you so much for such detailed replies. I don't think testosterone is tested as much in the UK (?) but I'll definitely ask. We are just coming up to 3 months since diagnosis and we are...
Hi Bob thank you for reply. Yes it's been fine very frequently for the first couple of months but assuming the frequency will drop now. I think it's because there were lots lots of initial...
Hello everyone I hope you have all managed to have a lovely Christmas. My husband is due to have his second 3 monthly Zolodex injection on the 21st January. He has also just had his third docetaxel...
Thank you George - I have saved that info. I'm gathering quite a library !...
Ah oh - thank you. Very useful....
Thank you for that info George. He has been able to start chemo with injections to boost his white blood cells but this is being monitored so if he isn't able to continue at any stage I will look...
I'm so glad that you are able to get your christmas break :-) x...
Enjoy the red wine :-) Thank you everyone. The knowledge and support on this site is amazing....
JackH - thank you for such a detailed response. I didn't know all of that background so it was incredibly useful for me. (Although difficult again to read the huge difference between between outcomes...
Hello everyone Is anyone able to point me towards current figures for this? Many of the figures I have found seem to be very historical and also seem to vary hugely. My lovely husband has advanced...
Really useful - thank you....
Let's hope so Akai...
Thank you everyone for all the info. So does this mean that with a Gleason of 9 - made up of 4+5.... The cells that are 5 are unlikely to be responsive to hormone treatment (or even if they are they...
Thank you JFN for the quick reply. For some reason my profile signature doesnt appear to be showing on this thread but basically my husband has Gleason 9 with spread to bones and lymph nodes so he...
Sorry *Fairwind* - I have only just seen this reply. My husband was diagnosed on the 11th October. He is 62 and the Gleason score is 9 (4+5). Initial PSA was 6000 then 6700 only a week later. He is...
Hi everyone - I have just been trying to find the answer to this. There are many terrible cancers. For example a dear family friend was diagnosed with oesophagus cancer. Sadly he didnt make it but...
Thank you :-)...
Sorry !! I've just read back and realised that I had already posted. Sorry - ignore me !!...
Hello everyone. I meant to post on this Gleason 9 thread to introduce myself but now can't remember if I did in the blur if my husbands diagnosis. We are in the UK and his diagnosis is : T3b N4 M1b...
Thank you Gemlin...
Thank you so much for the replies and information. (I feel like I am studying for a medical degree that I never applied for ! and you are helping so much.) One phrase I found related to N4 was Juxta...
Apologies for a second question this week but would appreciate input. The nurse originally said my husbands staging as T3b N1 M1. However we have had a letter today which confirms it as T3b N4 M1b....
Thank you so much cyclone fan - that first hand experience is invaluable for my husband. And again George thank you very much for the info and links which we will both read....
Thank you George that is incredibly useful and I will look into all of that....
Thank you George for the info re chemo. We are hoping he can start docetaxel in the next few days. The issue is that he has s hereditary low white blood cell count of 3.6 (should be 4-11) so we just...
Thank you for all the thoughtful responses - they are very much appreciated. I have gained so much insight from this site and will continue to read and post x...
Thank you for the very useful and supportive answers x...
Hello everyone. My husband took his last biculatamide tablet yesterday after 1 month (taken to prevent tumour flare.) It is 3 weeks since his first Zolodex injection. He was diagnosed with T3B m1 n1...
Thank you for the ongoing support - reading this site is really helping me and in turn my husband x...
It seems strange to say thank you for adding me to a group that I really really don't want to be in :-) but thank you. It is useful to read all your stories on behalf of my husband. He has just had...
I do have a query re chemo. My husband has always had a low white blood count (quite common in Afro Caribbean community apparently ?) This has never caused him any problems and never been a concern...