Hello e.noont - you sound like you are headed in the right direction. My husband had SBRT at a similar age as you with very similar biopsy reports and was and still is a health/exercise nut. All...
Bob in Elkridge -may I ask the name of the doctor you found at Hopkins. My husband is considering Testosterone supplementation. Thank you....
Thanks for the wealth of info here regarding supplemental Trt....
Thank you Paxton for your informative post. As you may recall my husband had SBRT 3 yrs ago with wonderful success at MSKCC and he is now thinking of trying to get supplemental Testosterone. He feels...
My husband and I second this. Very true indeed from all the medical journal abstracts we have read....
I know I am responding to an older thread but I just want to thank the members for their info here. It sounds like this is what my husband has. He did not have surgery but SBRT....
Actually he is having some occasional ED and he is reluctant to take any medication for it. Also interestingly he has developed a tight 'curve' which he never had before. I told him he should ask his...
Hello, just wanted to tell everyone my Hubby had his final fusion biopsy that he wasn't sure he would do at MSKCC and we have the results. He had his SBRT at MSKCC in Aug of 2016. All the 15 biopsies...
Very, very nice 0311!! Glad to see you here! Love seeing that number go down. Hubby goes this week for his next post/SBRT PSA, fingers crossed....
Thank you for the input, I am going to discuss this with my husband. Do you think it has anything to do with that PIRADS 5 on the MRI he had?...
No clinical trial. Dr. Zelefsky just stated that after one year of good results a followup fusion biopsy will be done to rule out any more cancer. I would like to hear from others what their...
Hello everyone it's been awhile since I've been here and my husband and I did visit Dr Zelefsky at MSKCC back in September for his 1 year post SBRT checkup. He is still without any side affects and...
Hello Bird8- I am sorry that you have to deal with this at this time but you have found the most wonderful group of people young and old who have gone through or are going through a similar situation...
Best of luck 19tarpon47. My husband had SBRT with the SpaceOar gel last August and has had very few SE's. He is very pleased with the entire SBRT process. So many options I know but you will feel...
Enrico-you have found the Holy Grail when it comes to Prostate Cancer Info. Read, read and read some more on this site along with suggested journal and studies published. My husband was in the same...
Congrats to you Paxton. So happy to see things are on downward path. I know those SE's will get less and less every day....
Hi 0311- had been wondering how things were going with you. Your PSA?-It's an itty bitty change, no worries. Cannot believe it's almost a year wow! I hope life is treating you well....
We are SOOO happy for you Bosco!!! YEAH!! Piece of cake right? We also will be interested to see if you have any side affects; I bet you don't... You are home free! :yeah: :yeah: :yeah:...
My hubby had Spaceoar rectal spacer with his SBRT and his Federal BCBS covered it in full. Just an FYI....
Bosco- you will do great and will be so happy when it's over which is really only a few short weeks away. 2017 will be a wonderful year for you. Please keep us posted on your progress. We'll be...
I too am all for a HW-SBRT group to help others. We all have a little something different to add to the pot....
Kilgore Trout - as the wife of a PCa member here I would just like to say 'Thank You' for being the wonderful wife you are. I am sure your husband appreciates all you are doing. The time you are...
tennisplayer - thank you for that great piece of information. Hope4all - I do hope you seek out your hard copy biopsy results from your doctor. I really does make good sense to have that in your...
sheepguy- I understand what you mean by Paralysis by Analysis and that almost happened to us. After we had a bunch of info in front of us I said ok now what shall I look into the West Coast where...
steveinErie - My hubby had long standing BPH to contend with along with his PCa. At each of the different cancer center consults we attended they had his record of his BPH and had his IPSS number...
Hubby was 65 at diagnosis. Favorable intermediate....
steveinErie- you have a few great choices in front of you from a great and reputable institution. Whichever you choose you will most certainly have a great outcome. I guess you really have to look at...
compiler- so true. Our health insurance initially rejected it and our RO got involved and got it approved....
compiler-we found out that it depends where you go for an opinion. We went to a reputable Cancer Center in Rochester, NY and they told us it was experimental. We then went to a new Cancer Center in...
and thank you Gemlin and JackH, very interesting...
Thank you Fairwind, teddy9 and compiler. Very good information. I kinda thought the same thing but didn't want to sound ridiculous....
Hello steveinErie, my hubby was in a similar situation as you and picked SBRT at MSKCC. We did alot of investigation here and we found tremendous support on HealingWell. We were put in contact with a...
We have 2 sons aged 31 and 28. My husband was diagnosed with PCa and treated this past year. When should our sons start having the PSA conversation with their PCP? On a different but maybe connected...
Bosco- my husband and I are so glad for you. It will go by very quickly. We wish you tremendous success. Like my husband said, he fasted before each treatment and he told Dr. Z. this and his response...
SchoolPsych-our thoughts go out to you. Best of luck on your journey. Keep a positive outlook, stay strong. You will do well....
Oops, forgot to say, the SpaceOAR was injected at the same time he had his fiducials placed and this was under sedation (like colonoscopy sedation only a bit stronger they said) not general...
Bui-welcome to our club. You will find tremendous support here. I am the wife of a post-treatment PCa hubby. We went through SBRT as did many others here in August of this year at MSKCC in NYC. My...
My hubby like Paxton had SBRT and he chose to have them in the late afternoon. We were staying in NYC for this. We were free to do what we wish during the day and then had to do the enema 2 hrs prior...
Hello all, I would like to share with you our visit this past week with Dr. Zelefsky at MSKCC. As you may remember my husband had SBRT there in August and this is our first return visit. We had to...
So glad to hear things went well for you. Wow, only 4 more treatments to go! My best to you Paxton....
Bosco-glad to hear you are seeking out several specialists; that's that best thing to do. My husband chose Dr. Zelefsky for his PCa treatment and had SBRT which he completed in mid August. We are...
JamesE - thank you for such a great post!...
Wow that is a shocker to read. I too am hoping for lab error. Hoping for the best....
Yes, this site led us to possibilities we did not know existed before. There are fantastic doctors across our country but it's true that sometimes you need a little direction from those who have...
True Story- as a Respiratory Therapist working in the same hospital for over 30 years I was well acquainted with our ER. One afternoon I was called to the ER to assist. There was a 60ish looking man...
You mean my hubby's PSA? The highest it ever got was 7.79 and then just before he started Lupron shots the doctor checked it again and it was 7.66. He happened to get one checked while at Sloan...
0311- well, there ya go. Congrats big time to you. I guess you can just add those numbers to your home medical file and continue on towards your 'nadir' value. (Did I use that word right?) It is...
Tall Allen- that is wonderful news! Makes us feel even better we chose SBRT for DH fav. intermediate PCa. I too look forward to reading the write-up of the "Outcomes of hypofractionated SBRT boost...
My DH was in a similar situation and we sought out RT (more specifically SBRT) for his Gleason 7. We met with several cancer specialists and followed the advice posted on this forum which eventually...
I was just reading an interesting set of articles that suggested all of the above (weightlifting, caffeine and alcohol) should not be done/consumed for up to 48 hours before PSA testing. While my DH...