Thank you for starting this thread. My husband's just coming off Xtandi now and we are considering next options. So helpful and encouraging to hear your great progress on Lu-177. This is really the...
Hi everyone, after almost 3 good years on Xtandi (for which we are grateful!) it looks like we might need another line of treatment. Would love to hear thoughts from this group on options you've...
Hi all, just checking in after a long while. After a nice long period of lull on lupron with some radiation thrown in, we had some recurrent lung Mets show up on a scan earlier this year. So with...
Thanks so much everyone! Really helpful...
Hi everyone, After almost 3.5 years on lupron interspersed with 17 sessions of IMRT, we are now at a point where we are deciding which 2nd line hormone to go on. My husband's PSA has slowly crept up...
Hi Everyone, Haven't updated in a while but thought i would post today since it's been almost exactly 3 years (and a bit) since my husband was diagnosed. We just got our latest pet scan results and...
:cry: dear Beth, I'm so sorry to hear this - you and Gary have been such an inspiration to us all and thank you for your courage in documenting his last days. You have touched so many by your...
Dear Beth, was so sorry to read your last post. Thoughts and prayers are with you and hoping that Gary will rally and get his strength back soon. Take care and stay strong....
Hi Beth and Gary, you are both an inspiration! Glad to hear that Gary is feeling well and i'm sure the coming years will bring even more new drugs to help control this awful disease! take care and...
Just dropped you a note! My husband had same situation and it actually didn't turn out to be a met after all but a misalignment of the hip that was fixed with some physiotherapy.......
Thanks both. The doctor did tell us the radiation path was controversial but I think the proposal was because the so-called Mets in lungs were never really proven ( the doc at the time couldn't tell...
Hi Tamara, just wanted to share that my husband also had a pain in his hip that the doctors initially attributed to the cancer or a casodex flare (even though it didn't seem exactly the same area as...
Hi Sallyyy, congrats on the sharp drop in PSA! my husband's did not drop as much (but it also didn't start as high to begin with). We've also known friends who were in a similar situation whose PSA...
Our doc is recommending adding on radiation to our current HT plan. He's even mentioned the hopeful words "possibly curative intent"... Am from Singapore and SBRT is the latest available here but we...
Hi fuunit, I see. Sorry to hear that your father's mets are quite widespread... My husband is doing okay so far. PSA plummetted but the latest one was a slight rise -- we don't know if that's...
Hello fuunit, my husband and I are from Singapore too. We see Dr Toh Chee Keong at national cancer centre. You can see our progression in the signature line. Have you done any of the more advanced...
Thanks Faustmann. Doctor is recommending that if there's a rise we should go straight on chemo, but I'm wondering if zytiga or sbrt might be better interim options... In parallel just hope it keeps...
Hi everyone, We just went for our 3monthly checkup and in the past 3 months since 28 July, the PSA has gone from 0.46 to 0.4. This is a pretty measley drop and the doctor did not seem particularly...
My husband's lost a bit of weight (6 pounds) since we started Lupron but I think that's more diet (meatless, Mediterranean) than anything else. He does get hot flushes but other than that no other...
Thanks Peter, the cursed black spot sounds much cooler than the cursed motel bar of soap, take heart in that!...
Thank you everybody for your help, this board is great! We stopped the heatpack and we emailed our doctor and he said: the subcutaneous lump is a bruise from the injection. It can happen if the site...
Thanks Sue! We read somewhere that heat helps shrink it, so we got a little heatpack and have been working with that...at the moment seems more soothing than anything but will let you know how it...
Yes it was a different nurse. The first one was done by the urologist himself and the second by a nurse in the hospital, perhaps technique really makes a difference here! It's reassuring to know...
Hello, My husband just went for his second Lupron injection (Lupron Depot) and unlike the first time, has experienced a swelling and a lump at the lupron injection site. It's about the size of a...
@Rangertug -- that is an amazing, inspirational story. I have just shared it with my husband to encourage him. Congratulations on 5th year anniversary!...
Hi Beth! Thanks for asking about us! I keep missing messages on this forum for some reason, even though I always tick the option to be notified about reply postings. So I try to check every few days...
Hi Mel, thanks for sharing, he was on CAsodex for a month but he stopped 3 weeks ago, and the blood tests that he did while on CAsodex seemed normal at the time. I don't know if there's a delayed...
Hi all, appreciate some advice. My husband's ALT numbers are elevated - 113 vs norm of 50+. His ALP is normal though ( in fact has steadily decreased from 131 to 70 since starting oin Lupron) and...
I'm sorry for your husband's diagnosis, but on the bright side- at Gleason 9 with no mets, he still has a chance for a curative approach to treatment! There are many success stories with worse...
Thanks everybody for the very helpful advice. Have emailed the folks at msk and will try to get an appt with Dr scher or Dr morris....
Hi all, my husband and i are based in Singapore but are travelling to NY mid-August for work. I thought this would be a good chance for us to see some of the top doctors in US for a second opinion...
Lisa, first PSA test result back and we've gone frm 15.6 on 7 May to 4.2 as on 12 Jun. That seems like a good thing -- is that a good rate of change? It also strikes me that this is the first of many...
Hi Sweetjoy, one thing i've realised in this is the high degree of variance in the prostate biopsy results. We sent my husband's biopsy tissue to THREE pathologists (the first came back with "ductal...
Thanks Dan and Lisa! Lisa - makes sense on waiting for prostate to shrink and thanks again for the helpful advice. I think i am a "doer" by nature so the fact that we have done everything we can, and...
Congrats Chas, what an uplifting story! Hope you have many more good years to come!...
Good morning Lisa! Yes - there's a 14 hour time difference between Idaho and Singapore (we are ahead) so it's 11am our time on Weds when it is 9am Weds your time. :) We have never been to Idaho --...
Hi Lisa, Thanks so much for this. We haven't done a bone biopsy yet -- it's a really valid point to raise because the first oncologist we saw looked at the scan results and said it might not really...
Hi Lisa! I managed to speak with a new oncologist and he too recommended us to start chemo early in treatment based on the results of the chaarted study. We now plan to begin this in ～2 months time....
I know what you mean...we insisted on a second opinion as well, done by the best person who specialises in prostate pathology and our urologist thought we were crazy. At the end of the day, my view...
Hi Lisa, Thanks for your advice. We actually asked to be considered for early chemo but were told: 1) we should wait first to see how well he responds to Lupron 2) that early chemo might not be...
I came across this thread and it's really a great message of hope. Need this as husband just diagnosed as G9, t4 with one metastases to pelvic bone and some suspicious nodules in lungs......
Thanks so much Beth for the words of support and i hope that Gary is doing well too. We decided to take ourselves off to a beach holiday in Thailand to take our minds off the stress of the diagnosis...
Hi all, i'm new to this thread and HW forum but posting on behalf of my husband who just got a diagnosis of G9. This came as a real shock to us because he had a large, obviously weird nodule that was...