Husband is on Xtandi and Onc's office has worked with drug company and pharmacy so that we have $0 out of pocket....
Tarhoosier: Since you brought up the training/athletic aspect, have you attempted any workouts while on Xtandi monotherapy? My husband's doc said he would not be to build any muscle while on the med,...
Thanks Fairwind. Based on your signature -- are you on Xtandi now?...
Hi all, As you'll see from signature below, my husband is a G9 who was diagnosed 3+ years ago. After doing early chemo, radiation and Lupron, he took a break for a year. During that year his PSA went...
Spouse21: First of all I'm sorry to hear about your husband's progression. It's a worry we all have. My thoughts and prayers go out to you both. Regarding the scan, I am very surprised that they were...
Thanks Fairwind. Good point about the T. I wonder if a very short bout of Lupron would be in order to get the T back in line and then switch to mono Xtandi. How has your Xtandi experience been so...
I noticed that you are a G8. Hubby is a G9 and only stayed on 16 months. Now I wish he would have stayed on it an additional year. Yesterday Oncologist told us once you get PSA to zero you should...
Hi After a visit to the oncologist for the first time in a year, husband will be starting Xtandi monotherapy. After his last shot of Lupron expired last February, his PSA had been inching up every 3...
Thanks! I feel better....
Hello all, My G9 husband has experienced 3 successive increases in PSA. He finished radiation in 12/15 and his last Lupron shot ran out in 2/17. Can you tell me if you think the following indicates a...
Hi all, Just picked up hubby's Trimix prescription. They charged me $125 . . . up from $100 last time. What are you other users paying? Is Trimix available online?...
Mattamx and Carattop My husband, a G9, was diagnosed in Spring of 2015. His treatment was unusual, but really by accident. The thought was to do chemo then surgery based upon a groundbreaking study...
Vitamin D Tumeric Ginger CBD (off and on)...
Hi all Celebrating tonight! Received news today that hubby's PSA has fallen to .33 from .44 three months ago. AND his T is up to 477 from 366 three months ago. As you'll see in my signature, he is a...
This is incredible Carolyn! Do you know if there are others here on the site that are also doing Keytruda?...
Mary, May your dear husband rest in peace. I hope you take great comfort in knowing that you were able to spend the last year and half giving him such wonderful love and care. I wish you blessings as...
Hmmm. Can you tell me if "not taking any biopsy tissue from area near prostate" would mean not removing any polyps in that area as well? I hear that removing polyps during the procedure is pretty...
Hi all, My husband is having his first ever colonoscopy next week. Should we ask any special PC-related questions? Will the doc perform a DRE? Also does anyone know how long it usually takes to get...
Reporting in as promised on our CBD oil experiment. Husband started taking a tincture (with no THC) around mid March. Of course, it's very hard to say what effect it's had with a large degree of...
Annie, The chemo was done with the thought that my husband would follow it with surgery to mirror the good results of the Chaartered Study. But, with just weeks to go before the surgery, my husband...
Hi all Regarding testosterone he has always run high, except for the time on Lupron of course. When he was first diagnosed he had a T level that was almost 1000. MO even asked if he was on T-shots....
Hi everyone, Just thought I'd check in. My husband, who is a G9, just got his first round of test results since his last Lupron shot ran its course in February. He did chemo and IMRT and ADT for his...
WifeofPie, Thank you for this thread. First, I should point out that husband has almost exactly the same stats as yours. He is now 61 and was diagnosed two years ago in March 2015. It feels like a...
Wife of a G9 chiming in: My husband just completed nearly 2 years of primary treatment. As you'll read below, he did chemo, ADT and radiation. His Onc is now allowing his Lupron to wear off to see...
My thoughts are prayers are with Mel for a speedy recovery! I know he has contributed a lot to this forum....
10drum Just to make it interesting, we will join you and compare notes back here in two months. Husband's CBD (no THC) oil will be arriving in a couple of days. His PSA is .33. He is on no other...
Hi Hilander My husband has had many of the same treatments. Just finished 16 months of ADT after RT. Onc says he wants to see husband back if he goes above .5. He's at .33 right now. Your pattern...
Great points by all. Sr Sailor -- Have you been off Lupron since 12/14? If so has your doc mentioned at what point they would consider putting you back on?...
Hi Husband just saw Onc today (vs Urologist) for first time since last March. The Onc ok'd Lupron/ADT vacation considering husband has been on ADT for approximately 18 months. He said let's clear the...
I'm confused. It said he had initial RT and now he's having RT again? I didn't know that was possible. Can someone please explain?...
Inthistogether, Please let us know when you get the PSA results! You asked how hubby has tolerated treatment . . . chemo was fairly tough, radiation was pretty easy. The most challenging part has...
Hello all of you wonderful folks! Hubby had his PSA done last week and we were pleasantly surprised to learn it was .19, which is the lowest it's been post primary treatment!! Hooray In October it...
Inthistogether, I'm glad you found this forum. It's been a godsend for me. What was your husband's PSA at diagnosis? Have they mentioned anything about Lupron and salvage radiation? I think his path...
Do you know what his original Gleason score was? Also, next step might be a short bout of Lupron and then radiation. Or wait, maybe that's what you meant by "RADS 7/13"?...
Thank you all so much. I'm emailing PCP through the portal. She's always very responsive and I'm sure will order a blood test. I will let you know what I find out. Don't know what I'd do without this...
Got an email back from the Med Onc. He was short and sweet and said "no issue from a cancer standpoint." I guess we'll see next week when the blood tests are run at his appointment. I am still...
In the last couple of days my husband is looking very jaundice. Especially his eye lids. They're almost bright yellow. We are one week away from visiting med onc. Is this something that can wait or...
Thanks for the input guys. This will be a tough challenge to get him to agree to getting the sleep study done. Just like I've still never convinced him to do a colonoscopy either. I think he thinks...
My husband did have 6 sessions 3 weeks apart. It was shortly after diagnosis and before RT (originally it was going to be before surgery). In hindsight, not sure it did anything. His PSA did go down...
Hi all, My husband has always snored; something I've gotten used to over the years. By way of some recent sleeplessness on my part, I've noticed that he has a regular pattern of around 10 seconds of...
Mark How are you defining a chemo boost? Would it be a series of docetaxel infusions or what?...
Hi Gunner34, My thoughts are with you! You have certainly been aggressive in your treatment plan. I was wondering if you would mind answering some questions. BTW, my husband has similar stats. 1) Do...
I'm somewhat in disbelief that a surgeon in this day and age would recommend surgery on this report! As stated above by some very knowledge folks (that have no financial stake in your treatment),...
tmichael Please share what your new biopsy and psa results are! Chances are you still do not have to be in any rush to decide. If husband and I were in your position we would probably never have it...
Welcome Naples My hubby (age 60) has similar stats but never had RALP. Radiation was pretty easy. No pain. It's the Lupron that the toughest. He has gained weight as a result. We still manage sex...
This is a good question Compiler! I have wondered about this too. But with a rising PSA while on Lupron, IHT may never be an option for husband....
Best wishes to you Redwing. I've followed you for some time now. I've always been so impressed that your ADT has kept things in check for so long. I can certainly relate (along with hubby) to your...
Hey guys, we are just exploring this. In actuality my husband is probably on the cusp of recurrence right now. And two docs told us right from the beginning he only has five years. Well we're two...
All of the bipolar androgen therapy (BAT) research has really created a strong desire in my husband to explore it further. We know he might be a risky case. But we at least want to talk to an...
I'm intrigued too Compiler. It makes me wonder how many docs would be willing to try this? We are back to visit the Onco next month for the first time in a while and we will be bringing it up . . ....