Pratoman, I share your pain. My last Eligard hormone deprivation treatment was Sep 2017. I was supposed to be a 3 month treatment. I thought my body would have recovered by Jan 2018. Naive. Eligard...
Pratoman, I had hot flashes during the night for about 6 - 9 months. They stopped after that.. I will be 77 this week. Yes, part of the fatigue is from age. But, the testosterone injection that I did...
Pratoman, What are the bad side effects you are experiencing with low testosterone level? I am in a similar place. Last 3 month Eligard Sept 2017. I was on it for 9 months. April 2018 (7 months after...
Prato, I took Eligard for 9 months as recommended by my CyberKnife doctor. My last 3 month treatment was Sept 2017. Like you, my recovery from the Eligard was very, very slow. I thought recovery...
Here is an update I saw my urologist today. Testosterone is in low normal range. But, I am seeing only a little improvement in physical stamina or sex life. Clomid for 4 months, Testosterone...
Here is a discouraging update. I waited 6 weeks and got another testosterone test. No change!! This was the recent tests 04/11/2018 @Quest Diagnostics PSA=.1ng /ml Testosterone =104 ng/DL 6/12/2018...
A new blood test update. PSA is great. Testosterone is improving. But very low. 6/12/2018 Testosterone: 211 ng/DL -- Reference Range: 250-827 ng/dL PSA = .2 ng/ml It is now 9 months after last...
Bob656. You said it has been 1 year since your last Lupron shot and that you were to be on Lupron for 24 months starting 3/16. Can you clarify that? Was the last Lupron shot supposed to last 1 year?...
It is probably too late, but SBRT/CyberKnife has similar positive outcomes as proton therapy. But, it is 5 sessions over 5 days....
I had a consultation with Dr Susan Slovin in 2017, but I decided to go with SBRT/CyberKnife at NYU/Winthrop. Similar positive outcomes, but only 5 radiation treatments in 5 days instead of 40 - 50...
Explorer, I would definitely encourage you to keep up the exercise. I was not able to do that, to my regrets....
Sr Sailor, Thanks for the encouragement. I was thinking along the same lines that other medical factors might be part of the fatigue problem. I made an appointment with my primary card physician for...
Explorer, Welcome to my world. I was Gleason 9 with a PSA of 10. I completed CyberKnife treatment June 2017. As a precaution, the plan was to have HDT using Eligard for 2 months before radiation and...
I just had a blood test performed a few days ago. PSA=.1ng /ml Testosterone =104 ng/DL 2 months ago, Testosterone was 13 ng/DL This is finally some positive news. Recovery has started. There is still...
PeterDisAbelard. Thanks again for the information & advice. I may be discouraged. But, I am not depressed. I know the difference. Years ago I was taking antidepressants. I stopped those after I...
PeterDisAbelard, Thanks for the detailed history. Very interesting, but not exactly encouraging. I wish I had done a testosterone level test before starting Eligard. I also wish I had only done the...
Thanks everyone. I have been discussing the problem with my urologist. Right now he is advising me to do nothing and to be patient. He suggested the next testosterone level test in about 8 weeks. My...
Tall Allen, Thanks very much. I am reading that study now and will research clomid & HCG. Are there any negatives using them? My urologist is essentially saying to be patient and wait. How common is...
My last Eligard 3 month treatment was 5 months ago. I am having problems with my body's resumption of testosterone production. Does anyone have any thoughts or suggestions? I had CyberKnife treatment...
Thanks everyone, My physical therapy is starting to feel good. I am basically doing leg strengthening exercises with ankle weights. Also balance exercises and some aerobics. George, Thanks for those...
I think that Siddhartha Mukherjee is saying that we don't yet know what to do. But, he is also suggesting a new way of thinking about the problem that may lead to a different mode of research and...
I have experienced serious and discouraging stamina/fatigue problems with HT therapy and am now seeing a physical therapist for help. He has searched literature and has not found anything specific....
ardeee, Thanks for posting that link. I plan to listen to those topics. I notice that the Answer Cancer Foundation who posted that page also has a youtube channel....
I was treated with SBRT/CyberKnife. 5 radiation sessions. Gleason 9 at age 74. My RO recommended 2 months HT before radiation and 6 months after. As far as I know, a recently published 8 year studies...
https://www.newyorker.com/magazine/2017/09/11/cancers-invasion-equation This article appeared in the New Yorker just a few days ago and is fascinating to read....
johncc, I finished SBRT/CyberKnife at Winthrop Hospital's NYC location on 26 May 2017. 5 days. Zero side effects. Absolutely no scaring of skin. Because I was Gleason 9, Winthrop thought my...
Notam, I had CyberKnife at Winthrop Hospital in their Manhattan location. 66th St. & Amsterdam Avenue. I would highly recommend them. Dr. Haas, head of CyberKnife at Winthrop, said he could do the...
I am on the G9 list. Nothing showed up as spreading outside prostate in MRI and bone scan. I had SBRT/CyberKnife that finished 26 May 2017. The plan is 2 months ADT before and 6 months after. 3 more...
Apparently everyone is different when it comes to side effects from ADT. I have a friend who is 4 years older and since his prostate cancer was not discovered until it had spread to his bones. PSA =...
I completed SBRT/CyberKnife 26 May 2017. Since I was a Gleason 9, the RO at Winthrop Hospital recommended 2 months HT before and 6 months after. I have been on Eligard for almost 6 months now. The...
Tall Allen, I looked at your blog abstract of the paper. Very interesting. I tried to look at the paper but could not see the entire paper without a subscription log-in to asco.org. The study says it...
The other difficulty with Dr. Katz's study is that it combined 2 types of high risk prostate cancer to increase the number of participants. High PSA ( >20) with high Gleason (8+). Those are both high...
Tall Allen, That communication about Amifostine is definitely interesting. I suspect there is no downside to using it. The issue is that it may not improve outcomes. In any case, Winthrop & Dr. Haas...
Tall Allen, Did Dr. Katz publish anything about the use of Amifostine? I got the impression that Dr. Haas and Dr. Katz still actively communicate with each other. I met and compared notes with...
My last CyberKnife treatment at Winthrop Hospital in NYC was May 26. I will be taking hormone deprivation therapy (Eligard) for another 6 months. What should I expect in the next 6 months to 1 year?...
I completed the CyberKnife yesterday at Winthrop in their Manhattan facility. I will be taking hormone deprivation therapy (Eligard) for another 6 months. Does anyone have any suggestions about what...
Good luck with your new email. In general most computer geeks think that gmail is reliable but that aol and yahoo have many problems. I have a gmail account as a backup. But, I also have my own...
I have gleason 9. PSA about 10. Bone scan suggests no spread. After 4 consultations, I decided to go with SBRT / CyberKnife (5 sessions in 1 week) + hormone deprivation (2 months before SBRT followed...
I had the Eligard injection about 3 weeks ago. So far so good. The only side effect at this point is a slight weight gain. Less than 5 lbs. I started going to the gym on a regular basis. 3 times a...
I got the Eligard. Let's see what happens. I asked the urologist about testosterone flare and Casodex and he did not recommend it in my case....
Tall Allen, Thanks for the clarification about how Elogard works and why Casodex is sometimes added. You also said: For better or worse, at this point in time, that seems to be true about many...
Important question about Eligard. I expect to start treatment in the next day or so. I think, in this forum, that some people said they were taking Casonex at the same time they got Eligard or Lupon....
Max Vision, It is complicated. Did your doctor supply the Lupron and administer it? That might explain why it did not go through part D. Did your doctor give you a prescript for Casonex that ou...
Sr Sailor, You are correct about the cost being higher if the hospital bills for it. Apparently it will be a 20% Medicare copay of an estimate $1500 for the Eligard as opposed to a maximum of $90...
JNF, I reread this thread and just noticed your post about Eligard. It did not register earlier since I was trying not to think about the hormone deprivation addition that I have now decided to do....
You might try for SBRT. 5 treatments in 1 week. Similar positive outcomes to IMRT and other radiation treatments. I was told by Winthrop / Cyberknife that in their experience, Medicare would not pay...
Here is the angry insurance rant concerning Lupron payment. Have other people had this type of problem? My urologist sent in an electronic prescription for Lupron to Express Scripts last Friday. We...
Is there a difference between Lupron and Eligard? What about side effects and other patient issues? Supposedly they contain the same ingredient. But mode of injection is different. I am running into...
Tall Allen, Thanks for the study link. Always interesting. That study has not started yet. It is at Memorial Sloan Kettering Cancer Center for intermediate risk prostate cancer. Last Monday I saw an...
Tall Allen, You asked: No pelvic radiation. I should have asked about the dose and the margin but did not. I will ask that question and find out the answer....