Hello to everyone. It has taken a few weeks to be able to type these words, but my husband Chris, of 35 years passed away on September 18 at home at the young age of 59 years old. His courage and...
Dearest Beth, Reading your last post just rejuvenated my energy and courage to continue on the journey you just went through. I admire you and your courage and you have no idea how much you have...
Everytime I write a post on this forum I think twice about all the sadness and details of my husbands journey, but it is real and something that no one should ever have to go through. BUT for every...
Mary, I am so very sorry to hear the news about Dan. My thoughts and prayers go out to you and your family. Sue...
Hi everyone, it has been a while since I have updated on how things are going with Chris. We are now about 2 1/2 months into hospice. It took a while but his pain is relatively under control with...
Hi Beth, Your words are not only inspirational, they are also comforting. It helps that we are not on this journey alone and we must take things day by day. I'm so glad you were able to have some...
Our experience with The Urology Center of Colorado has been amazing. It is located off of I-25 next to Invesco Field. The doctors we worked with could not have been more compassionate and they are...
Beth! That is such exciting news and what a joy for your family. Congratulations! So glad to hear everyone is doing fine. Sue...
Thank you so much, Beth. I really hesitated posting my recent post about the hospice journey Chris and I have begun. I cannot tell you how much it helps to know that we are not alone in this...
Hi everyone, I tried to write this post in the caregivers corner thread but for some reason I can't find it. If someone can put this post there also I would appreciate it. As a caregiver it would be...
Hi everyone, it's been a while since I have updated on Chris. Things are not good. His PSA is up to 209 and his alkaline phophatase are 933. His last labs showed that his bone marrow is being...
Chris's PSA rose to 75 from 39 last month. His alkaline phosphatase rose to 510. He will start xofigo the middle of next month and they have taken him off the Zytiga. We are staying positive and...
Our personal experience regarding the Claritin was very clear that it does work for some. A few days after my husbands first infusion of Taxotere the oncologist called to tell us he was neutropenic...
Beth- I forgot to ask if they know why Gary is having a hard time breathing sometimes? Is it something that happens with all of this? I really don't know what to look for at this point of Chris's...
Beth, you are truly an inspiration. You give me strength and courage to help me help my husband. All of the caregivers on this forum are truly amazing and your strength and courage are admirable....
Wow! Thank you all so very much for your kind words and support. I really don't know what I would do without this forum. It is such a comfort when you are talking to people that have and are fighting...
Hello everyone, The last few months have been a very challenging time for my husband. After only 3 months on Zytiga he has progressed again. His PSA went from 19 to 39 in one month. His alkaline...
Happy birthday!...
Hi Beth and Gary, That is such great news and we are so happy he is feeling so good. You both deserve to have the most amazing holiday season. Thank you for always sharing and giving us hope. Happy...
He does have widespread mets. Could it mean progression with the elevated Alkaline Phosphate? I read somewhere they use this value as an indicator? This is something new that has happened and I just...
Good morning, I hope everyone is having a happy holiday season. My husband is feeling pretty good these days. I think the steroids he is taking is really helping him. Since he can no longer...
Hi Beth, Great news about the PSA being lower. I'm glad he is feeling better and that you had a good vacation. I think about you and Gary often. Love and good thoughts to both of you. Sue and Chris...
Beth, Even though you are going through one thing after another you and Gary stay positive and strong and sometimes that's not easy to do. Good for you both that you fight on through no matter what...
Todd, I think that is what forums are for. The GOOD success of some and the not so good. Everyone is fighting a different fight. I think that is what makes this forum so special because people can...
Hello everyone, I really struggled on how I should write this post. The first thing I want to say is that I am not writing this to discourage any of the brave men that are fighting this disease. What...
Update on my husband of the last insane week. I am just heartbroken for him and hoping he can catch a break SOON! He finished his radiation last Friday and had some diarrhea that was a "normal" side...
Hi kitty19, I am so sorry for your struggles. This has been the hardest journey for us, but we will stay strong and fight the fight. Please know that the doctor never told us the PSA was no longer an...
Thank you for the kind words. Maryanddan, He will be on every 3 week cycles like the first time he had it. The radiation oncologist said they can't do radiation at the same time as chemo. He will...
Hello! Just wanted to give an update on my husband. The CAT scan came back negative for ANY organ involvement! Great news! We are so thankful. They are doing 10 sessions of radiation on the vertbrae...
I can't believe how mean and brutal this disease can be. My husband started Xtandi in March because of progression of multiple new lesions. It dropped the PSA as low as .8 the first couple months. By...
Hi Beth, I think of you often and hope things are going as well as they can for you and Gary. I admire your courage and strength. My heart goes out to both of you. I appreciate your support and...
I also wanted to thank Tall Allen for taking the time to read and answer my posts. You have helped me so much with knowledge and encouragement at times when I had almost lost hope and in a panic. I...
Hello, I have a question regarding Xtandi which my husband has been taking since March. He became castrate resistant 4 months after completing 6 cycles of Taxotere. With a PSA of only 3.74 which...
Thank you for the replies. I appreciate every one of you. What does the Xofigo do to help the bone mets? Does it take them away or help with the pain? The medonc has never even mentioned this to us....
Hello everyone, I have a question to ask. How is it determined if Xtandi is still working or not? I know they go off of PSA levels rising but does it depend on how fast or how many times it goes up?...
Barb, I am so sorry for the loss of your husband. I hope you can find comfort and peace at this most difficult time. You both showed such courage and strength and although we do not know each other...
I need to learn from you. You are always so positive and I admire your strength. I am praying for you and Gary. You are traveling a challenging journey with so much courage and I have gained so much...
Hello! In my last post I stated that my husbands PSA had risen since completing Taxotere in October. It went up from 0.09 to 3.74 in 3 months. Even though it had risen and he became "castrate...
Thank you for the very encouraging replies. Yes, the Taxotere did bring down his PSA amazingly well. We were so happy about that. I think we were just shocked that he became castrate resistant so...
Hello all, it has been a very emotional few weeks. After finding out my husbands chemo didn't work the way we hoped we are now starting the Xtandi road. The uro and oncologist said he does not...
Thank you to every one of you for taking the time to post a reply and give us such hope and so much information. Because of all of you we now feel armed and prepared to go to the medonc appt in...
Thank you all for your replies...her is the update on my husband. We went to the doctor again because they wanted another PSA test before their panel meeting about his rising PSA. The results came...
You are all so knowledgable and supportive and I really appreciate it. Sometimes a little encouragement goes a long way. We should hear from the doctor next week after the case management meeting...
Hello everyone. Discouraging very scary news from my husbands doc today. Seems his PSA has jumped from 0.09 to 0.86 and now 1.6 in 3 months. He just finished Docetaxel the end of October and has...
Thank you so much for your replies and well wishes. jpenn44- his alkaline phosphate was elevated back at the end of July and first week in August. Around 160? It has been in normal limits other than...
Hello everyone. I am wondering if anyone on here has had an issue with increased pain with a lower PSA? My husband finished 6 cycles of chemo 3 weeks ago and has been having increased pain over the...
I hope I am in the right place now. Sorry, I was confused. Hello, My husband was diagnosed May 2015. The journey has been a complete roller coaster as all of you know. We just finished chemo today...
I am still learning the ropes to this site. I tried to copy and paste my above post to where you requested and I don't think it worked. Not even sure I was at the right place? Can someone help me...
Hello, My husband was diagnosed May 2015. The journey has been a complete roller coaster as all of you know. We just finished chemo today after 6 treatments of Taxotere. His PSA was at 112 when we...
Thank you all so very much for your responses and opinions. They always check his blood before he has his treatment, but no PSA. We were told yesterday that the PSA will be checked at his next/last...