BTW: I had to strart 6 month injections of Prolia last December due to ADT related osteoporosis ..As of September 12, 2019 still <0.02 PSA...
Hi Battle Brothers It has been a while since I posted but I am still on the ZERO club 5 years after dismal DX. An outlier perhaps. All I know is that I cannot believe that I am still here on 1st line...
Wings: I am intrigued that you added Zytiga but now off Lupron and still undetectable...Are you still on Zytiga but not Lupron? Or completely off HT altogether? I sure would love a HT holiday for a...
Hi Battle Brothers: As my title states, it has been 4 years + 2 months since a miserable initial DX of 209 PSA and bone mets (November 2014) and here I am today still undetectable with all good labs...
I know. It is amazing that someone is going on 11 years on first line HT. I am happy to be 4 years and holding steady...
Hi all: I never imagined that I would be writing this almost 4 years after my dreadful PC DX (2014) with a PSA of 209 and bone mets on pelvis to boot. I have been on Degalirix (Firmagon) injections...
For me personally Firmagon has worked like a miracle keeping my PSA levels to undetectable <0.02 going on 44 months now after stage 4 dx with 209 PSA and bone mets. The trick I and my Nurse have...
Hi All: It has been a while since I posted but I am still here and so very thankful that I am still riding the Casodex train at 40+ months after a devastating initial DX . All other labs look great...
with distant mets like you have chemo +ADT is the way to go in most cases. My original urologist told me to keep my port in afterwards because I would need it soon afterwards. My Oncologist told me...
Okay first of all take a deep breath and do not freak out. Ironically I was diagnosed around 3 1/2 years ago with the same PSA reading as you of 209 with bone mets etc. Yeah, the idiot Urologist I...
Regardless of why and how he died. He was an amazing musician and a Battle Brother and his passing is a huge loss to the world of Prog Rock. Way too many losses during the past few years. A part of...
Regardless of why and how he died. He was an amazing musician and a Battle Brother and is a huge loss to the world of Prog Rock. May he R.I.P...
It is true...This is from his website posted in 2013 Thomas retired from the Moody Blues in 2002 after suffering from a series of health issues. In 2013, Thomas revealed that he was suffering from...
Hello Battle Brothers and caretakers. AS you can see from my signature, I was dx way back in 2014 w/ stage 4 w/ bone mets and a 209 PSA. My response to Firmagon and Casodex has been keeping my psa at...
Yeah Todd that's what I understand also. I have been lucky so far that Firmagon and Casodex has been able to keep me undetectable for 3 years. I know that I will also have to go to Zytiga eventually....
PHEW and Hoooorayyyy!! on the PSA results Todd...Any possibility on a HT vacation considering your psa results?...
Most likely not Prostate cancer but you better get on it son and stay on top of it. Do not let fear and denial overtake you. Act before it's too late...The End of the story Stay diligent and you will...
From one stage V survivor to another congratulations and may the next 5 and the 5 after that be as successful geop...
Hi JkorourkeRN The good news is that your husband has more than likely caught the PC time and may achieve a cure or at the least a long term survival with proper and precise treatments. Your story...
Bentnotbroken: You may want to question his dr why he is also not on Casodex or Zytiga to try to get his PSA down further to hopefully undetectable. Sometimes Lupron alone will not do the trick and...
Bentnotbroken Yes indeed this %$#^&% disease sucks and does indeed take a lot from a man and his partner. Please hang in there as he may go through HT and cancer related mood swings, as I do, that he...
Cyclone So good to hear from you as you are also truly an inspiration to me and others fighting the beast. Also very impressive and encouraging that you ran a 5K event. I used to run before...
Bentnotbroken It is so heartbreaking to see that in spite of your husband getting timely PSA blood work his PCP totally ignored his high PSA until it was too late. I also had a high PSA (for my Age)...
Hi Dan: I am intrigued that you are on a 9 month Lupron vacation. Does your Doctor feel that Zytiga alone can control the beast? I ask because a Firmagon vacation would be very welcomed by me. I...
Ron I wish that I had found out about mine early as you have and had your options. Just look at my signature. Enough said Stay strong and do not put off treatment for one minute...
Hi Battle Bros. It has been a while since I have I have posted but I am still checking up on all of you and wish you all well. Here I am almost 3 years into my stage 4 metastatic PC battle and based...
I have stage 4 with mets and would trade you for your stage 3 any day. Keep your head up dude and shake off the depression the best you can. I have bad days but mostly good. Keep your head up soldier...
I have been on Firmagon and Casodex Bicalutamide) (for 2 1/2 years now with a PSA of <0.02. I mentioned Zytiga do my Dr. last week and he wondered why I would want to rock the boat after having such...
I don't understand why he would not want to hit it hard with ADT to knock the PSA down. Especially with a possible bone met. I would personally take a more proactive approach and not wait for more...
Hi Beth My sorrow is profound. Know that Gary will always be with you. Tears...
Spoke to Doc. He basically said that since Casodex is working beautifully for me so far we stay on it until it fails and then we can talk about Zytiga etc.. One thing for sure is that Casodex is easy...
Interesting. I am currently on Firmagon which is similar to Lupron and Casodex. My PSA at 2 1/2 years is still undetectable <0.02 on the current meds. Should I ditch Casodex and go on Zytiga or stay...
Todd: Have you asked the "am I cured" question. A miracle could be in the making here my brother....
Wow what a great post....
Amazing response to treatment..Keep it up...
Please excuse the stinking typo on the previous post "Stop Correcting" Not sure what that was all about urghhh...
Amazing PSA drop !! If the PSA goes up even a tad, please have his Doc to get him on Casodex Stop correcting "immediately". With the tremendous initial PSA drop that he has, I can foresee Casodex...
I will be meeting with my oncologist and will insist on pursuing this treatment. As far as I am concerned I have nothing to lose. I was dx'd w/ stage IV metastatic PC 2.5 years ago and given 6 years...
Hi CC Wow what an amazing response and resilience you have had considering the insanely high PSA at DX. As you can see from my signature we are in a very similar situation albeit you had a much...
Gary lives on in his new born granddaughter and will for decades...I truly believe that. Congratulations to you all and may you be blessed. Gary is a hero...
Thank you to all for this information. I will pursue radiation from this point on as I have nothing to lose and feel to be somewhat of an outlier having been able to maintain an undetectable psa...
Hi All: I am so relieved to report that 30 months into my stage 4 metastatic prostate cancer with an original DX psa of 209 and bone mets, I remain undetectable <0.02 at 30 months with ongoing HD...
You will be just fine with that DX but yes a lifetime of treatment may be in store. however, you still have a chance for a cure or at least a very long remission period. My DX is stage 4 albeit not a...
Thank you all for your encouraging posts. I am so happy to see you brothers hanging in there in positive optimism and strength. This is what we have armed ourselves with to battle the cancer beast...
Ron: If you have only 1 spot on the spine I have read that spot radiation may in fact eradicated it. Tall Allen may be of further help on this?...
Rest in peace my battle brother...
Hi All: It has been a few months since I posted but so far 27 months into this PC trip all is going well. I had my PSA results today and still undetectable at <0.02 of which I am grateful for....
I would advise that he gets a shot of Firmagon (Degalarix) first and then go onto Lupron afterwards. Reason being that Firmagon lowers the T level to castrate levels within 48 hours or so vs. a...
Hi SandyMilo So sorry to hear about your dad's DX but as you can see from many of us on this forum, we were also given a grim DX and we are still here many years later doing just fine. You mention...
I concur with Todd. 2 years ago I got my DX and as you can see from my signature it was bleak. I feel great now and can routinely hike 10+ miles a day and enjoy an almost normal life. Lots of hope...