My brother (G9) is on his fourth chemo treatment, but we are looking for a next step. I first learned of Lu177 not long after I had my prostate removed. At this point we are thinking it might be the...
Well, I don't know what worked , but I discontinued the two drugs last night and this morning, took 100mg of viagra and waited about 3hrs for it to work (instead of 1-1/2hrs) and I (we) had success...
I'll be 68 in Sept. I had orgasms until Lupron. I'm still taking Gabapentin although I suspect the doc will discontinue that when I see him later this month. I also take bupropion anti-depressant. It...
I had open surgery 10/2013. Not nerve sparing but we got along ok with injections. But it came back so I did proton radiation and Lupron for 18 months. I had zero interest in sex. Lupron started...
I'm coming back from 18mo of Lupron. Interest has definitely returned, but orgasm has not, nor has continence. I'm wondering about becoming more bionic, but I don't know if the pumps or other stuff...
Trailguy, I was able to open the second link on the pituitary gland impacts but I'm not able to open the first link. Can you help with that one?...
Redwing, I think you're right. Still, who am I to argue with another "giant" in the PCa world? Jim...
I was on Casodex for a while and asked Myers about Tamoxifen but he was very opposed to it because "It's a known cancer causing drug". So I got man boobs now too. The tenderness subsided but I'm not...
Catalona may be a giant in the field but my results with him were far from ideal. His nerve-sparing technique wasn't. Cancer returned in about 9 months. Continence issues plagued me until I got PT...
Ask your doctor for a referral to a physical therapist who specializes in male incontinence issues. She or he will teach you how to do kegel exercises properly and add challenges to the exercise...
I can't email you through the HW site for some reason. I get an error about a WLDCore.dll missing. Can you email me so I send you my info in regular email? Thanks, Jim...
How often do they test PSA after radiation is done? If the hormone therapy is stopped, is there a rule for when it should be restarted? My new RO is in favor of the intermittent plan, saying...
My surgery was Oct 2013. I could easily stop the stream before. I finally got to the point where I only used a Tena 0 pad days and had few drips. I finally discovered physical therapy is available...
Sorry I never replied to this. My brother was negative so I never had the test done. Odds were slim I would have it if he didn't. It's a blood test....
RE: coverage, I'm on Medicare with BCBS supplemental plan F. I had the scan at Loyola (thanks TA for the tip) and it seems to be fully covered. My results? They didn't find anything that would be...
TA, Are you referring to the Guardant360 test? That's the one I had that found two defects, and changed my treatment plan. First step is to do Axumin scan (today) then decide on hormone and or...
I had open surgery with Catalona. A friend of mine had Davinci with Zagaja. If I had it to do over, I'd go to Zagaja if, after consulting with Moran, surgery was the best choice. But I'd start with...
Thanks Beth, You can go to Guardanthealth.com to learn about that test. They have a video under the Lunar tab on the website that helped clarify it for me. https://vimeo.com/168134646/6efa56003d...
My post surgery PSA has been putting along with about a 7 yr doubling time since starting treatment with Myers. But in October last year it jumped up 50% in a month to 0.27. I saw Myers in December...
Call Xtandi maker directly. They have some $ help available depending on insurance type and income. https://www.xtandi.com/support-solutions...
I'm in Chicago area. Is it available near me, or where?...
Well it seems the MTX is starting to work, at last. I was able to hold a coffee cup by the handle without pain for the first time last Friday. So it "only" took 5 weeks for it to start working...
The extensor tendon is the worst of it - sharp stabbing pain like I'd imagine cutting there without anesthetic. Just touching the skin is bad. I guess I'll ask what I can take along with meloxicam....
Thanks for the reply. It woke me up multiple times last night. I could move my finger into a position without pain, basically loosely resting on the edge of the mattress, and I was ok until I moved...
I have lots of pain associated with the pointer finger of my right hand. I don't really feel pain in the joint but touching the ligaments that run from the wrist up into my finger is very painful....
Beth, Thanks for the encouragement. SED rate was 2. I looked up tnf inhibitors and the side effects list is pretty scary too! No sense worrying about now though. I don't have redness in the one...
I had a lot of pain in my hands after doing very strenuous work on a deck last May. But the pain didn't go away as you would expect from over doing it. My oncologist thought it was myopathy due a...
For what it's worth, my brother tried a Chinese traditional supplement called Great Yin Da Bu Yin from Heath Concerns after talking to his acupuncture guy. He said his hot flashes disappeared after a...
Very helpful. They will give me three permanent markings on the skin. They say the planning calculations are complex so it usually takes 7-10 days. The treatment is on a linear accelerator but I...
Hmmm. The RO I just visited said my chance of dying of it in 15 yrs was 15%, but would be about half that if I do RT now. Seemed like a really high number to me when he said it....
TA, thanks, Here's the link to his paper that he gave me on RT SE's in their practice. "Quality of Life after Post-Prostatectomy Intensity Modulated Radiation Therapy: Pelvic Nodal Irradiation Is Not...
It was a good visit with the RO. Yes I am still taking casodex. My doubling time increased dramatically in the first six months of Myers regimen, but psa wasn't dropping. Adding it at that point has...
I cancelled the tests but I'm going to keep the consult with the RO. Thanks all....
From March to July of 2014 my psa went from .03 to .1. I was still struggling with continence and complete ED. I didn't want to add radiation damage to the mix so I went to Myers for an alternative...
The short video from MSKCC might be just what I'm looking for, assuming their trials work out. Thanks...
I've been going to Myers since psa rise post surgery. The psa history is in my sig, but basically it's gone from 0.132 to 0.17 over the past 17 months. Doubling time is 4.7 years since starting his...
My psa has crept back up to about where it was this time last year. It's a long and expensive trip to continue to see Dr Myers, especially with his new schedule leaving most of the cost with his NP....
Myers described a pre-publication paper on a clinical trial olaparib when I saw him a few weeks ago. 15 of 16 essentially done with cancer. He also described one patient who was in hospice with...
I'm not yet but my brother and I gathered our family cancer history. He spoke with his local MO about it. She thinks there's enough history to convince insurance to pay for the next step, which...
ksk, I'm pretty close to the same as you, except I had open surgery, then went to Myers when my psa hit .13 after about 9mo. You can see in my profile it has been as high as 0.199 and as low as 0.124...
Quest doesn't have an "ultrasensitive" test like LabCorp. Their sensitive test (two decimal places, down to 0.02) is their "post-prostatectomy" test. Maybe your doc didn't ask for that one so you got...
Neither am I (diabetic, overweight nor does he have high cholesterol) but Myers has me taking Metformin and Crestor. My primary care doc told me he would trade cholesterol numbers with me before I...
It would be interesting to see your psa history along with annotations of diet changes. The Ornish paper is about 10 yrs old but the diet you are on is very similar to what Myers advocates. He also...
Yes. All the .xxx values in my profile are from LabCorp. All the .xx values are from Quest. An issue with getting tests at different labs is they say they can't be compared. So that always raises the...
I went back to LabCorp because my EOB's and bills from BCBS appeared to be covering costs at the in-network rate. May bill for testosterone, Free+Total LC/MS $379, PSA Ultra W/Serial Monitor...
Catalona had done more than 6000 well before he did mine, and he's a pioneer in the procedure after all. Figured my chances were better than anyone's. I'm still a zero after 23 months. I'm probably...
This is from Catalona's website: 1. Q: Is the treatment of prostate cancer going to destroy a man's sex life? A: Certainly, some of the current treatments for prostate cancer can affect the sex life,...
I don't know if it's generally accepted but Meyers says the faster it drops, the better. Yours seems pretty encouraging to me based on just one sample comparison (my brother). But I'm just a regular...
So I did some more reading and found a Samadi article from 2012 that said high free T is prostate cancer risk for older men. I don't know if that means risky for men who already have cancer too, or...
Does it also fix climacturia?...