Daughter Jenni who has RA has started a chronic illness resource/podcast/blog website called. Her podcast episodes are 30-60 minute interviews with other sisters that have chronic pain, I have...
Daughter Jenni who has RA has started a chronic illness resource/podcast/blog website called. Her podcast episodes are 30-60 minute interviews with other sisters that have chronic pain, I have edit...
Jcm60... Congrats on taking the steps to greatly improve the quality of your life! You will do great and when the valve is "turned on", you will be amazed... :-) pasayten...
CG, PCa can be a pesky beast... Simiar DX at 59... You are a ways from action levels yet... Try to put the worry/anxiety on the back burner and live life as you want to... I have had complications...
I also added naps curled up on the floor in front of the fireplace... The heat on my back felt good... :-) pasayten...
Temporary problem for me after SRT... Cleared up quickly and normalacy returned... You also have to learn "Never Trust A Fart".... :-) pasayten...
Congratulations!!! Also 14 years since RRP... Not cancer free, but holding PCA at bay... Living a full life with no anxieties... :-)...
I hike/backpack a lot... The AUS (AMS 800) changed the ballgame for the better for me! Total change in quality of life not having to worry about excessive leakage. A small pouch pad (Coloplast 4200B)...
Ron... Know the feeling.... I went for the AMS 800 AUS and it returned my quality of life... I still wear a pad (actually a pouch) to catch an occasional drip, but a pad will usually last for 2 or 3...
Thanks for posting Mal! I am also at 14 years! We can outlive this dang PCa and have a great life. :-) pasayten...
Congrats Zen!!! I am at 14 years and although not undetectible, I am holding steady at an acceptable number. Turning 74 this year and expecting more than a few more... :-) pasayten...
David, Thanks for the update... Sorry to hear about the Parkinson's... Terrible disease to try to live with. I have been here since March 2007 and have always followed your posts. Take care and God...
Good to hear from you Pontiac! I joined in early 2007... Bluebird was the moderator... At 14 years and doing fine... pasayten...
Mel, Avis and I have had both Pfizer shots... No signifucant side effects with either one except for the slightly sore arm the following day... All in all, a Seinfield for us... :-) pasayten...
I live in Washington State, but on the rural east side of the state in Winthrop... Wife and I filled out the forms on the Department Of Health site... accepted and given 3 locations for our county......
Not undetectable, but 14 years out and PSA seems stable at the .2 -> .4 range for the last couple of years. Possible benign tissue left over... pasayten...
No hummingbirds here in Winthrop with cold temps and 30 inches of snow... But we do have a nice population of Flickers that come and feed on the suet we have out for them... :-) pasayten...
My wife and I have had both our Phizer vaccinations w/o any significant side effects except maybe arm a little sore the next day. Cheers, Pasayten...
I tried for a couple of days... very uncomfortable with a 'backed up" feeling... pasayten...
I found pouches better than pads... https://www.amazon.com/Coloplast-Manhood-Absorbent-Pouch-MEN4200B_pk/dp/B002ZUK2JM Cheers pasayten...
After 2007 RALP for a G6 and 2010 SRT, my PSA started to rise again but has leveled off in the .20 -> .36 range... I really do not worry about it anymore as it is most likely benign tissue or a very...
pT3a and Gleason 6... 13 years ago in 2007... SRT 2010... PSA has since rose to .20-.30 range but steady last few years Cheers, pasayten...
At Cancer Care Alliance in Seattle, I have a 7am blood draw and results available for the 9:30 doctor appointment. Pretty good system as I travel 5 hours from Winthrop to Seattle for the appt... :-)...
Not undetectable, but stable at 0.20 to 0.30 and 13 years out... pasayten...
Congrats on successfully still being below detection!!! We do need to hear about more success stories... 13 years for me also... Have had a few setbacks, but PSA now seems to currently remain steady...
I was happily with Dr. Celestia (Tia) Higano until recently. She has separated ways with Seattle Cancer Care Alliance and is in the process of setting up a new practice. I switched over to Dr. Evan...
I was a G6 and when my post 2007 RRP PSA started to rise, the RO recommended SRT w/o ADT in 2010... because of the G6... I also had an AMS 800 installed 7 years after the SRT... The G6 again turned...
Mark... For the particular method/machine used the <0.014 would indicate non-detectable to that level. pasayten...
I was a G6 and when my post 2007 RRP PSA started to rise, the RO recommended SRT w/o ADT in 2010... because of the G6... The G6 has turned out to be pesky since the SRT also, but PSA has now...
TooYoung, Sorry to see your numbers rise... I was in a similar situation, but with a pesky G6... RRP and SRT and then a post SRT rise in PSA after a few year time period... Thought I was going to...
Just saw this on a news feed... Had not heard of it before... "PROSTATE CANCER Men with advanced prostate cancer often are treated with medicines to suppress male hormones that can help the cancer...
Some interesting things to consider concerning Gilead from an article that was passed on to me... Curb Your Enthusiasm on Gilead Buying stocks on anecdotal Covid-19 patient data is a bad idea. A...
Some interesting things to consider concerning Gilead from an article that was pssed on to me... Curb Your Enthusiasm on Gilead Buying stocks on anecdotal Covid-19 patient data is a bad idea. A...
I am 13 years out and have had quite a journey with a pesky G6... I always ask for the uPSA as I like to chart and graph... :-) Bouncing between 0.20 and 0.30 right now... actually kind of "stable"...
Only have U.S. travel plans car camping with our trailer to Utah, so we are not really worried about Covid 19... Not changing going to our local events either... but there are also no confirmed cases...
They used a threshold value of 0.20 out here at the Seattle Cancer Care Alliance to perform the Axumin scan in my case... It came back clear... pasayten...
Billy Bob... The ride can be a roller coaster but hang in there... Technology has improved greatly for treatments and still getting better every day... My ride is now 13 years out with a dang pesky...
That's a good number... Engage and enjoy life each day... :-) pasayten...
Sounds like my stats at the beginning... Proved to be very pesky after RRP and SRT... pasayten...
Mal, Great news for the results and break... Like you, I am celebrating 13 years since RRP... :-) pasayten...
Also watch for the lab "units"... Some labs like mine report as ng/ml (milliliters)... others the more standard ng/dl (deciliters) Example... my typical low base testosterone is reported as 0.8 ng/ml...
Yeah... The new Auxium scans are really drilling down to finding metastasis. I had one post SRT when my PSA went back up to over 0.20 which is the level at which they authorize it. Insurance was not...
I would have qualified for AS with my original G6 dx... Glad I went the treatment route as it has been a very tough and pesky G6 to corral... :-) pasayten...
Be interesting to know his stats... pasayten...
Since 2012, I have Medicare plus a federal BCBS plan I pay for... They have paid for everything. $0 costs to me since 2012... pasayten...
Agree with the others... you are a long way from below 2 + Nadir PSA... Hang in there and you will probably end up getting quarterly PSA's to benchmark what's going on. Don't let this detract from...
I like the lightweight "pouches" to catch the occasional stress drip... Depending on activity, a single pouch can last for a few days... https://mms.mckesson.com/product/670511/Coloplast-4200-B Shop...
Sunshine, I agree with the previous poster about you having a quiet one on one with your father... That being said, I am 72 and we are now realizing the importance of end of life planning documents...
Just like to mention that even a low indication of G6 can turn out to be very pesky... Biopsy Screening -12 points 3/13/2007 Left Core OK -- Right Core Gleason 3+3 Consisting of a single less than...
Seatlle has a great place... Seattle Cancer Care Alliance... Hooked up with the University of Washington pasayten...