Well I see you had similar pathology to me...after surgery results but then your PSA started rising again after 2 years. That sucks! I read your story just now and hope your current treatment...
Long time since I have checked in - no news is good news as they say. As of July 5 PSA still undetectable. Surgery was 05/01/17. Some details in my sig. Minor complaints: pain upon orgasm....
I am sorry for the late reply but wanted to thank everyone for their comments, suggestions and shared experiences. The point about non-linear recovery is a good one. Sometimes it's a bit up and down....
My wife and I have cut out meat and poultry. I don't eat eggs and rarely have cheese. I have tried to cut down on sugar - but this has been tough due to addiction to same. There has been improvement...
Mainly this four month update for those curious about recovery after surgery. Of course your mileage may (and probably will) vary. I consider myself lucky given the range of recoveries I've read...
Just had my first test too. Mine at 3 months. Got it back in one day. I think at 8 wks you may have residual psa. Could very well go down. I had epe like your husband but also negative margins. Not...
I have to say the JH folks have not been super hands on. I live in Charlottesville about 3 hours away so I basically arranged with my primary care doc to get the test once the date was coming up -...
So far the only meaningful or long lasting negative of all this is the fact that due to a heart condition (congenital) my doc won't let me take Viagra, Cialis, et al. And the flag is not yet able to...
That's a good point. I will do that. I wonder - given the sensitivity of the test - how much of a number could just be 'noise' so to speak. And I gather PSA can come (in very small amounts) from...
Well, since my wife has curtailed my eating of meats, dairy and sugar :mad: - you can bring all those goodies! I've continued drinking beer and wine pretty much as before surgery - can't cut out the...
Got my first PSA back today after surgery - 3 months. The number is .006. I am guessing that is pretty good? Didn't specifically ask for the ultrasensitive test but it seems that's what I got and...
Awesome on your PSA free duration! I would guess effectively cured? Sorry about the ED. Was your surgery nerve sparing? And no success with meds or other aids?...
Blood in semen was the reason I got diagnosed with prostate cancer and I am thankful it happened. Multiple episodes of blood in semen - some more some less - and some without the blood. But mainly it...
I will. An additional finding today is some red blood along the side of stools and some in the toilet paper...but I was straining a bit I guess. Just have to remember that this is a long haul deal....
Thanks guys! No recurrence so it could well have been a one off. But I will take it easy and try to slowly get back into the exercise. It is tough holding back when you feel okay....
On treadmill. Probably nothing right? Just a shake out maybe. Little pain in perenium area but kind of had that earlier in day anyway. Incontinence still a bit of a problem with this kind of...
I am one of the recently diagnosed (and operated on) that freaked out when I found I had cancer. Stories like yours and others on this forum quickly put my situation in perspective. I count myself...
Well I will certainly do recommendation 1. As for No. 2 - might offend my wife - she loves these beets. And we can do a better job of recording what we eat so this doesn't happen again....
Just realized I ate beets a couple days ago - that's what is causing it 😱 Sorry for the false alarm and waste of bandwidth....
Today noticed a small amount of red blood in my stool. Had RALP on 5/1. I've had some tenderness or aching in perineum and surrounding areas. Some difficulty passing stools - meaning a bit of...
My biopsy kind of sucked - during he says he nicked my bladder and he also had to do one more needle than he would have. Pain was tolerable during procedure - i think there was maybe a local...
Thanks for the info on this....
Revived thread...for MK1965 it has been 6 months since his RALP - what is the likelihood there will still be some natural recovery over the next year or so? For me - though I was aware of the risks...
Just had mine out too. Tell him to take breaks and put his feet up for some time. Sitting at a desk for long periods wouldn't be so great at this point. Feet up and walking minimize clot risk. And...
I believe the desire to have it out at this point overrides our anxiety! With the nerve sparing you stand a good chance of recovering pretty well from initial ED. And as you note there are aids as...
Sounds good to me :yeah:...
Congrats on all the negatives in your pathology! Seems like you should be pretty confident of getting it all. You and I may have crossed paths at JH while walking the halls. I had mine this past...
So I can likely wait to see what psa does now and base RT off that. I know my pre surgery psa is a mitigating factor but maybe that can be cancelled out by some good (zero) PSA numbers going forward....
I've seen my Path report on MyChart. No conversation with Dr. Han as yet. Overall it looks good to my amateur eyes. The only negative being EPE but margins are negative. No nodes. No SV. Here is some...
Thank you for all the encouragement and suggestions! Things have improved quickly. The only real annoyance is peeing around the catheter while on the toilet trying to do a bm. Seems hard to avoid....
Thanks for the link to an interesting and useful read. Guess I might get one of these depending in large part on my upcoming path report. Had surgery 05/01...
"Yes, blaming Timmy was a smooth move. I've blamed my dog for years when I fart and someone comments about the smell or sound for that matter. My dog doesn't care since I give her a T-bone for...
Oh also consented to having bit of bone drawn out of hip during surgery for some kind of study by Dr. Allaf. I wasn't quite with it when described to me - has anyone heard of this? I think it has...
Thanks for tips and support guys! Things already seem a little better today. I will be taking it easy for sure and walking regularly. BTW, has anyone ever had any numbness anywhere due to swelling...
Had my RALP on Mon. Dr Han said it went well and didn't see any overt sign of spread but of course we're really anxious to hear the pathology report. Folks at Johns Hopkins were excellent. Everyone...
Thanks for this - it is helpful....
Pretty red lately but has varied from brownish tinged ejaculate to bright red. Currently more on the red side and a good bit of it. I do have some MRI evidence of chronic prostatitis. Guess I'm also...
You did great! Perfect. Couldn't have said it better myself :tongue: You must have been (are) an education professional who has had to interpret a lot of badly written papers....
I must be a really poor communicator. :mad:...
No. I have had hematospermia for months. Before, during, and well after biopsy. I have had a pretty constant PSA over that same time - around 20. What I am asking is: for those who have combination...
Sorry, maybe I'm not making sense...what I was asking was for those who had high psa + hematospermia prior to surgery...how often was it found post surgery that they had extracapsular extension....
Any findings on this post surgery that members could share? I have two symptoms - psa at 20 (fairly consistent) and blood in the semen and have a biopsy grade of 3+4=7 much of the left side. Are...
Your post sounds a bit like an ad. But I thank you for the info....
MDNative, thank you for sharing your experience! Will look into my insurance and coverage for JH and the doc. The doc I am meeting with is Dr. Han but not sure he's an 'open' guy. I would rather...
I have an appointment with Dr. Han at JH at end of month. He is getting all my docs, cds of scans, biopsy results and so forth. When I told my RO friend (who had recommended ADT + RT) that I was...
No I hadn't heard of the book. I will get it. Thank you very much....
Guys, thanks for all the great responses and insights! This has been a big help. I know I've been on the hampster wheel about what treatment but I've finally made a decision. It will be surgery. Some...
Hi, I'm considering going to Johns Hopkins for surgery. Wondering about folks experience at this hospital and if specific surgeons are recommended. I live in Charlottesville Va and would also...
For Tall Allen - just found my MRI without contrast and with contrast using a phased array surface coil. Among other things..."there is loss of the normal high T2 signal in the peripheral zone...
You are right! Sure wish this could have been a slam dunk decision. Probably I've also been swaying in the wind with these different doc opinions....