8 years out. Still use guards or shields during the daytime. Was doing great until had followup radiation which undid the progress i had made. Don't need anything at night or just sitting around the...
Makes me appreciate my family Dr. even more. Always had my PSA twice a year as part of wellnes and was always below 1 so the Dr. I did see was not concerned. He left and I went to a new Dr. durng a...
I had 39 treatments after surgery and the radiation was a breeze. appointment at 8:30 I would leave work at 8:15, get to center and usually walk right in, hop on table drop pants, and back at work...
I too thought it would never stop. took 2 months until I graduated to a shield, then was able to go without. BUT then I had preventative radiation which went fine. but about 5 months after radiation...
I had RT about 5 months after surgery. Had the incontinence problem licked and thought all was OK, then about 4 months after radiation I started leaking again. now am wearing a shield every day....
My PSA was .8 and scores of 3+4. Had the da vinci surgery, seminal vesicales involved. PSA went to zero after surgery but am still undergoing adjunct radiation as preventive....
Great ad Jack. The DREs are just not my idea of a good time! But I should have had them more often. It was about 5 years between my diagnosis one and my previous one....
67 at diagnosis. I am an example of make sure you don't just rely on PSA also have the DRE. It was just fortunate that my Dr. insisted on DRE because I thought with a PSA of .8 I was all good. Would...
I have been on lipitor and now atorvastatin for about 8 years and do fine, no muscle problems. My wife however had problems with the lipitor and is now doing fine on Crestor. both at 10mg....
Small victories. Am now able to sleep at night without having to use a shield or anything. Daytime does seem to be getting better but am still having to wear pads. Since I had no nerves spared I am...
Let us know how things are progressing and what you found out at his Dr. appointment. Also don't forget to ask questions on here also. Lots of good info here when people know you are still looking...
Since he is fiance he may be embarrassed over wearing pads and and the incontinence issues after surgery if that is still a problem. surgery can also leave him impotent for awhile (I am hoping for...
Goose, I am new to the process but certainly plan to continue having psa test. I had a Genetic Dechipher test done which put me at a high risk (44%) of mets in 5 years so will start radiation soon to...
Hi Acegolfer, glad you found this forum and hate to hear of your problems. My surgery went well and no real problems other than still getting past the incontinence and of course sex. You may consider...
Thanks PDA, good idea on icepack. Have not tried a full 20mg dose of cialis yet to see if it actually would do anything. But probably not the way things look right now....
thanks Misty, I may actually try them a little later on. Want to get the bladder under control first and probably the radiation behind me. Definitly need to take on our next cruise!!...
Thanks, in reality I think the shots are really no big deal on the pain level, much less than giving blood which I have done for years up until now. They say I now have to wait 1 year past last...
THanks, and you are correct on the adjuvant I could only think of salvage at the time. and yes they do have me on a Kegel exercise regimen. Also on 5mg cialis/day. He has not mentioned any hormone...
OK, had the follow up visit and results from my Genetic Decipher test. Turns out I am a "high risk" for metastasis within 5 years (43.9%) which is 7.3 times the average. Recommended starting early...
Hi Halbert, little redsea is peeking out a little more but certainly not his robust sefl!! thanks....
Thanks guys. Really tired of pads and wetness so glad to hear there is hope....
How long did your incontinence last after the surgery? I am over 3 weeks out and still have to wear a Maxi-pad during the day. lying or sitting I am ok but standing just drains whenever it wants to....
Thanks, may get started then, tired of him looking like a turtle trying to decide if he wants to come out or not. Amazing how short 6-7 inches becomes ( at least that is what I remember). 6 inches is...
Have not started the cialis yet. not sure if I should start right away or wait until stuff heals a little more. Only had the cath out for 3 days. How soon after surgery should one start the cialis?...
Well new to the whole process. Just had my Da Vinci Surgery at UAB on 12/3/15. Margins clear, but seminal vesicles involved, Lymph nodes negative. Did say they got it all but am having the Mayo...
On the other hand I think my "john thomas" has almost gone into hiding!!! Sometimes have to look just to find it!...
Thanks I am hoping everything continues so well. Almost feel guilty because I never felt bad and all seems to going so well. Will probably go back in to work on Monday....
Ok, had my surgery last week. Initial follow up today seemed good. Said cancer had penetrated the prostate wall in one place but all margins were clear. Did have some in seminal visicals but they...
Thanks for all the suggestions. They have asked for the slides at UAB to have someone else look at them also. Dr Tully did say I was just barely an 8 in 2 cells. He also was using what he said was a...
Thanks Allen, this surgeon is one of the pioneers of robotic surgery for prostate and is the one that the other drs. go to to learn the procedure. He does 8-10 a week and is probably up to about 5000...
Thanks met with Dr. And decided on surgery which he felt was best choice. For mine. Said would try to save nerve on one side. Said cannot do surgery if do radiation first. Sends lymph samples to ab...
Thanks guys. talked to two friends of mine at Church this morning. both of whom had the surgery at UAB with good results. One that was all he needed and the other had to still do some radiation a...
Thanks guys. Treat prostate cancer is all Dr. Tully does. I will know more after my visit. Dr. Anderson at the cancer center here is well known for his radiation prowess if I go that route. Just...
Well got results from my bone scan and they were normal. Have an Apt with Dr. Tully at UAB to see about getting the prostate removed. that is what my Dr. recommended and is what he elected to do when...
Thanks guys. Am in Meridian, Mississippi. I suppose I could be confused on Gleason there were a few areas on the printout that had only about 20% red color....
Thanks Tall Allen. 2s was the correct number. What about complete removal of the prostate? Guess we won't know that until after the bone scan....
For me just part of regular physical when I changed Drs. PSA of .8 so had never worried about PC. She felt something during DRE and referred me to Urologist and biopsy confirmed 2 sections with a...
Had always felt good about PC since my PSA was always below 1. however my Dr. felt something on a digital exam and sent me to urologist who agread and did a biopsy. Had two areas with a Gleason of 8,...