Hi there: I was diagnosed nearly 11 years ago with Stage IV Gleason 9. I had mets in bones. Initially I was told that there was nothing to be done except to take Lupron until that ceased to work. I...
Aloha Gunner: Thanks for the recent post. I am in somewhat of a similar situation with my psa rising about .1 per month for the last several months. It is now .9 so my MO has scheduled me for a PET...
Aloha Gunner: Great to hear you are still going strong. Since I was diagnosed just before you with similar stats, it is great to have you provide this update. Simon...
I am on intermittent HT. I was diagnosed over 6 years ago with gl9/4 and had a DaVinci, IMRT and Lupron/Casodex. I was on the HT for 18 months thru May 2014. So I have been on an HT holiday for over...
I was diagnosed a G9 Stage 4 just over 6 years ago. I have been on an HT holiday for over 4 1/2 years and my psa is now .6. It was undetectable for the first 2 years and since then has gradually...
My experience is limited. I was on HT from November 2012 thru May 2014 and have since been on a holiday for about 4.5 years. My psa has gradually increased from < .1 to .6 over a period of about 2...
Congratulations Jerry. I follow you often because my own numbers (G9,T4) are pretty close to yours. I was diagnosed almost exactly 6 years ago. I have been on a holiday for 4.5 years now although my...
Hi there Bob: Sorry to hear of your diagnosis but its not the end of the world. I was diagnosed with Gleason 9, Stage 4 prostate cancer (spread to the bones) nearly 6 years ago. After a lot of...
I was on Lupron from November 2012 thru May 2014 - about 18 months. Side Effects I experienced were: Constant hot flushes where I was sweating uncontrollably; Significant Weight Gain; Memory Issues -...
I haven't been here for a while so thought I would post an encouraging note for other high risk brothers. I was diagnosed in November, 2012 with Stage IV, gleason 9. I went straight onto HT and, 6...
Way to go Todd. Maybe we'll see you out here in Hawaii soon. Simon...
Sue: I am so sorry to hear of your loss. You are in our thoughts and prayers. Simon...
Fantastic. I am totally happy for you. Simon...
Great news Todd. Lets hope it stays that way for good. Aloha Simon...
JR: Congratulations on finishing your primary therapy. Hopefully, you are now done with it forever. Now you can start recovering from HT etc. which will really improve your QOL. Simon...
geop: I was in a quite similar situation to yours. Ultimately, my docs at MD Anderson had me go through an RP and IMRT after my psa went undetectable. I have now been on holiday from all treatment...
Aloha Paul: I am sorry about your diagnosis but glad you have found this site. Try not to read into your own experience the experience (especially negative) of others. As others have pointed out,...
Aloha Teamchris: So very sorry that you have reached this point but think you have made a very wise decision to involve hospice. My thoughts and prayers are with you and your family. Simon...
Congratulations Redwing. That is great news. I passed my 4 year anniversary last November and so I know this is a big one. I wish you many, many more anniversaries in the future. And thanks for all...
This is a very sad day. We have lost someone who was a generous contributor to our community. May he rest in peace....
Michael: This is a really important question for anyone who is or may become castrate resistant. The issue was examined by the recently concluded PLATO Trial. This was a well powered, double blind,...
Congratulations Redwing, that is a really significant milestone and I speak from experience. No doubt you are feeling better and better the further out from your last HT you get. Enjoy and celebrate...
That is great news and a great sign I think. Simon...
As some of you will know, I was diagnosed with Gleason 9, Stage 4 (mets to bones) just over 4 years ago. After a very pessimistic prognosis from my local urologist/RO/MO, I moved my care to MDA in...
I am also a GL 9 treated at MDA. Dr. Corn is my MO and has been for 4 years. Feel free to shoot me an e-mail if you would like to talk. Simon...
My thoughts and prayers are with you Mel. Hoping for a full recovery....
Bill: My situation was, in many respects, similar to your predicament except I had a couple of bone mets. Before moving my case to MD Anderson, I was told that there was nothing to do except HT....
My latest psa was also .2. I have been on "holiday" since May 2014 after 18 months of treatment including HT + IMRT + RP. My latest psa scores were <.1, .1, .2, .1, .1, .1, and .2. Psas are done...
Hi Redwing: I was on HT from 11/12 thru 5/14 or 18 months. My testosterone came back very slowly reaching about 290 in 9 months. It stayed there for quite a few months and actually fell a little at...
Good Luck. I have been on an HT vacation for nearly 2.5 years and get tested every month. This is still early in your vacation so you can expect, I hope and pray, a great psa....
I am very sorry to hear this sad news and offer you my condolences at this difficult time for you. He certainly put up a very long and brave fight which is an inspiration to many of us....
Aloha Gunner: Sorry to hear you didn't get more out of your holiday. However, it looks like you and your medical team have isolated the problem so I'm hoping the SBRT will do the trick. I will keep...
Jordan: Sorry to see the increase in your psa but hoping your scans will help pinpoint a specific site that is responsible and can then be zapped. Will keep you in my thoughts and prayers especially...
Great going Gunner. I know you have been looking forward to this day for a long time so you must be elated that it is finally arriving. The plan sounds exceptionally well thought out and designed for...
You are very young to be told you are incurable at this stage. I would definitely be seeking another opinion from an MO at another one of the major cancer centers. You really don't need this guy...
Jordan: Hope your scans go well and if the psa increase is real that you can find the source and deal with it. You have done amazingly so hopefully this is just a minor bump in the road. Will keep...
Hi There: Sorry for the delay in getting back to you. I totally agree with Cyclone that Eugene Kwon at Mayo would be a great person for you to get a second opinion (and potentially treatment) from....
Hi There: I read you story with a sense of real sorrow because you're obviously feeling pretty low. Most of the guys on this site knows what that feels like. However, from reading your story, its way...
Sincere condolences on the passing of your Father. Simon...
Aloha Todd: My prayers and thoughts are with you and your family. Simon...
Cyclone: Thanks for a great post. I absolutely agree with Jordan that you are doing the best and smartest thing by adding Mayo/Kwon into you medical team. I look forward to hearing about your...
Madagascar, You're welcome. I have confirmed the e-mail you used. Look forward to hearing from you....
I completed 18 months of HT in May 2014. At 12 months it got up to 289 but at 15 months it had fallen back to 249. I am starting to feel it may never get that high again. Worse things can happen....
Aloha Jpenn: We crossed on another post. I want to tell you, though, that your response to first line HT is incredible more than 99% in less than 2 months. That alone should be giving you a lot of...
ipenn: Fair enough. In that context OK. I hate to see any high risk guy give up or lower their expectations especially guys with a lot of life still to go. The treatment of advanced pca at centers of...
I am not aware of any statistics out there for high risk guys that are treated with aggressive, multi-modal therapy (in a variety of permutations and combinations). The statistic being quoted is next...
Aloha Madagascar: I was originally diagnosed with Stage IV - with mets on a couple of adjacent ribs. By the time I moved my care to MD Anderson in Texas(6 months after my diagnosis), and the scans...
I am a Gleason 9, Stage IV having been diagnosed in November, 2012. My initial team of doctors in Hawaii told me HT was all that would work for me. I moved my care to MDA where my Medical Oncologist...
Aloha CLDCR: I disagree with the notion that you should not bring a Medical Oncologist onto your team even at this early stage. There is certainly no medical basis for this opinion. A multi...
aloha peanut: I was diagnosed in 2012 with G9 and Stage iv and was treated with HT, daVinci surgery and radiation therapy. I have been off the HT now for about 16 months and my psa (as of to-day) is...