Sue, I was very sorry to read about Chris' passing. Wishing strength and comfort for you and your family. You will all be in my prayers. Chris...
Billybob, I don't have Dave's last numbers but know they were all pretty good. He has never had cholesterol problems even when on his fatty, dairy diet but his scores in that area have improved now...
When my husband was diagnosed I researched all information like crazy. Diet came up fairly often. My husband was the poster boy for a PCa feeding diet. He drank milk by the gallon, ate cheese by the...
My husband's MO at Hopkins told him that nothing my husband eats will feed the cancer and nothing he doesn't eat will starve the cancer as prostate cancer is fed by testosterone. That said, he...
Thanks to all for your responses. It will help me try to ignore them as much as possible. No new meds, don't need new side effects. David...
Has anyone had a mild first year on Lupron and then felt worsening hot flashes and sweats? Is this an indicator of change in cancer's response to ADT? Thanks, David...
So encouraging and uplifting to read. Great reminder. Thank you! Chris...
So happy for you! Chris...
Redwing, I guess you could say I'm a crispy one! I've been burned a few times, as have most of us, I'd guess. Every time I tried to use Chrisp as a user name it was taken but chrisp1 seems to work...
Redwing, Please add my husband, too. Dx 12/15 Gl 4+5 Last PSA 7/17 = <.1 We met with his MO at Hopkins last month to go over future treatment as my husband has the PALB2 gene. Dr. A. explained that...
I agree with Bohemond's approach as a (former) fellow (grant) writer who approaches and responds to information posted here and on other PCa forums in much the same way that he does. I am also on...
I am so, so sorry to read this, Beth. Praying for peace and comfort in your memories. Thank you for sharing with us. You have been an inspiration and a wonderful example of love in action. You have...
My husband is a GL 9. He just had his third four-month Lupron shot and is on Casodex and Proscar. He last PSA test came back at <.1 for the third time. It's not 18 months but we are grateful for the...
I think my husband's gene is a genetic repair defect gene. I will know more next week and update after meeting Dr. A. Chris...
My husband's MO at Hopkins recommended the Color test as my husband's maternal grandfather, great-grandfather and uncle died of PCa. Another uncle was also diagnosed but caught early. The test showed...
I'm so very sorry, Mary. You and your family will be in my thoughts and prayers. Wishing you comfort and peace. Chris...
Welcome! You've found a great source of encouragement and support here. Another wife of a G9. Since initial tests showed my husband's cancer had not metastasized he had his prostate removed. His PSA...
Beth, It's very kind and thoughtful of you to consider sharing this part of your lives with us. For those of us who would appreciate knowing what we might be facing sooner or later, your updates will...
I am so sorry. Thank you for sharing. We are praying for you both and wishing you continued strength. Chris and Dave...
Beth, I am so very sorry to read this. I don't post often but do read almost daily and I have appreciated how encouraging and informative your posts always are. You and Gary are in our prayers....
I posted here a few months ago about my husband, who has GL9. He had his RP at Johns Hopkins and also had salvage radiation at Dattoli since his PSA was persistent. He was able to have the trial...
One sister and her husband live in Mt. Pleasant on Shem Creek outside Charleston SC. Not evacuating. My 89 year old dad is in Jupiter, refused to leave when my brother and partner were forced to...
My husband is also GL 9 who failed surgery. He had the F18 PET/PSMA test in a test trial at Hopkins that showed micro mets in the bones a week or so after a bone scan only showed two. So if you could...
Jacky, My husband is a Gleason 9 also. I'm sorry you have to be here. This is a great place for information and support. The main thing is to educate yourselves as much as you can and to get a good...
We had no problem getting set up with the surgeon at Hopkins - we found them very quick to respond. And the overall staff is wonderful - if you even look like you're lost someone will stop and either...
I think it was on his calf. I will mention the compression stockings, that's a good idea. Thank you, Peter. Andrew, you are right. It was not fun. But he's seemed fine every time I talked to him...
No, my husband has not called directly yet. He didn't want to step on any toes and the timeframe was very tight. I spoke with him this morning and he said he was going to finish what he is doing now...
Thank you and I agree with you as far as my limited knowledge goes. It seemed to fall apart for us at Hopkins after my husband met with the RO after surgery failed him, the bone scans came back after...
I am very happy for you that there is no organ involvement. Wishing you the best and praying that the radiation and chemo are effective. I have learned from your posts and am grateful you are willing...
I wanted to update, as many of you have been so helpful. We went to Florida to meet with the radiation oncologist at Dattoli two weeks ago. The Sand Lake scans showed two suspicious lymph nodes in...
ASAdvocate, I agree with you 100% about Dr. Ross and his incredible knowledge and skill. More importantly, so does my husband. He has already been in touch with Dr. Ross this morning and the doctor's...
Thank you. My husband will email Dr. Ross tomorrow as he would like to be considered for that trial. Dr. Ross has been amazing in his response every time my husband has reached out to him. We live in...
Dr. Ross mentioned Dr. Antonarakis at one point but somehow that went by the wayside in lieu of the RO. I will have Dave call Dr. Ross to see about an appointment with Dr. A tomorrow. Dave still...
We had hoped to radiate the six bone mets. Can you recommend a med onc my husband should see who treats prostate cancer only? He is willing and able to travel. Or the trial that would offer the best...
I posted several weeks ago looking for advice as surgery in mid-February failed my husband and his first post-op PSA was.86 in late May. Tall Allen suggested we see a radiation oncologist. We were...
Please seriously consider what Tall Allen and the other high risk people are telling you about radiation as primary treatment. My husband is a GL 9 and opted for RP at Johns Hopkins. He had an...
Like John 16 I'm fairly new here, and like Montanan my husband is a Gleason 9 with depressing statistics. I've been reading several PCa forums since his December diagnosis, and find Tall Allen's...
Just an update that my husband was accepted and we will be heading to Hopkins for tests scheduled for next Friday and to meet with a radiation oncologist. Thank you for all your support. Chris...
Thank you, Bob. My husband has been in touch with Dattoli and we do plan to get an opinion from them once all the testing is complete. He spoke with his surgeon today. The surgeon mentioned possible...
Dr. Busch just called tonight. He and Dr. Ross agreed on one positive lymph node on the 3t mp MRI scan. Unfortunately, it is above the navel. Dr. Busch feels there are probably several more. My...
Tall Allen, from the path report: lymph node, right pelvic (dissection) 17 lymph nodes and associated fibroadipose tissue, negative for tumor lymph node , left pelvic (dissection) 36 lymph nodes and...
My husband had his 3t MRI on Thursday of last week with Dr. Busch. On Friday Dr. Busch met with us for over an hour. He identified two very tiny suspicious lymph nodes. Because of a hip replacement,...
Octorobo, thank you and so glad you are doing well with your treatment. Praying for the same outcome. I don't understand how it's been 43 years since I am holding at 39!...
I think I messed up and didn't log in, but I wish you a wonderful anniversary. I would suggest you do something out of the ordinary and completely unexpected for your wife. We need that to keep us...
Instead of going out for our usual anniversary dinner, my husband came home from his pt3 mp MRI with a blinding headache. Thank goodness he called yesterday and found out he needed to do a fleet...
Octorobo, thank you for your thoughts on Dattoli. They are definitely on our list for consideration. We will wait to see who Dr. Busch recommends and probably talk with them as well as follow up with...
Thank you, Tall Allen - this is most helpful! Chris...
Bobby Mac, thank you for the information on Sylvester. I will look into it. My husband has already contacted Dattoli and I'm going to spend next week looking at options in case radiation is viable. I...
They are in the Jupiter and Hobe Sound areas. I haven't really asked any of them about treatment options in the immediate area as we were researching Dattoli Cancer Center as well as options in the...
Thank you, Joe and Newton, for your well-wishes and we hope things go well for both of you in your treatments, as well as everyone else facing this disease. Tall Allen, thank you so much for the...