So sorry Todd. Way too young. This disease sucks....
Yes...
Yes but biopsy was yesterday. No reaukts yet. Last biopsy showed no genetic defects....
I haven’t posted in a while but wanted to update everyone on my latest treatment plan. My PSA has been slowly climbing and is now around 23. Latest Bone Scan is clean but CT Scan shows lesions in...
Has anyone faced the dilemma of continuing to work while treating or going on disability or leave of absence to focus on treatment. I know that decision involves many factors..insurance, income,...
I thought I would give everyone a brief update on my weird treatment situation. I finished Radiation in February and was feeling good. Unfortunately in March my PSA shot up to 14 so we did scans....
Sorry to hear about your friend. We have a close family friend and neighbor struggling with metastatic breast cancer and we fear she may lose the battle soon. Like you, I am going to struggle with...
Vent away. I've had a rough week myself that may have a happy ending. Will know shortly. It's truly a roller coaster. Glad you are doing well. We all need to just stay strong and fight. That's all...
I did have genomic testing done but that wasn't why they did carboplatin. At the time they wanted to do a "cocktail". I only ended up having one carboplatin infusion due to liver enzyme issues. I...
I just rang the bell at MDA. 39 IMRT treatments to Prostate and Pelvis. Feeling very good and tolerated it well. Will probably have some scans and blood work done in the near future. Hoping we get...
I hadn't posted in a while so wanted to keep everyone updated. My PSA had crept up to 4 although scans remain clean. Team at MDA felt a couple of pelvic nodes and one seminal vesicle looked...
That is just awesome. Keep fighting!...
Hello everyone. My PSA has been creeping up and now stands at 2.3. Latest Scans show no evidence of bone or organ involvement although there is evidence of a small area of activity inside the...
TA: What about the reverse? How effective is Zytiga after Xtandi has failed?...
I am so sorry to hear about your loss. Too young and such a loss. We are all a family hear and it breaks our heart for you. Will pray for your family and your healing....
Good thoughts Charles. I am at MD Anderson so I'm sure we will discuss possible trials. Beth: Thanks for the encouragement. I think of you often and hope you are doing well. Tall Allen: Any thoughts...
Well I had my 6 month CT Scan and Bone scans last week which all were very good, and my MO even said improved as all evidence of past tumors are gone. However, my PSA rose again to 1.1 from .6 so we...
I think they like it to be <20....
Just a quick update as I haven't posted in a while. My latest PSA on 8-25 is up to .6. So we have gone from <.10 to .3 in 60 days to .6 in 90 days. However, my Testosterone levels have gone to 29 so...
Way to go Jack!!...
Dearest Beth- We are deeply saddened by Gary's passing. Like others, this rocked us to our very core. May you find some comfort knowing he is in peace, without pain, and in God's loving embrace. We...
Beth - This is John16's #1 fan. He has been keeping me up to date with your posts and I finally got the courage to read them myself. Although I am deeply saddened, I am also comforted by the...
Such a great story. The definition of HOPE. All the best to you and Mandy....
Great news. I know you are relieved....
Interesting question. I am in my 4th month of Xtandi and my last Testosterone check was slightly above 20 for the first time. I am getting a PSA check this Friday and I will let you know the numbers....
So sorry for your loss. Your family will be in our prayers....
LOML: Hoping for negative scans. But even if not, there are plenty of treatments that will keep you managing the disease for many years. Keep us posted. Praying for good results....
I started Xtandi in March of 2017. At my last PSA check in May I was <.10 so it has been working for me. The side effects I have noticed are increased hot flashes, some mild bone aches and pains, and...
That's awesome. Punch it in the mouth. Keep fighting!...
Awesome Todd. Congrats. I got your message and will try to connect with you soon. Enjoy this milestone!...
I've been on Xtandi for 2 months and latest PSA check on 5-25-17 showed >.1. That is the lowest my PSA has been since I began treatment a little over a year ago. Feeling very blessed and a good start...
Starfinder: I went through the elevated ALT and AST liver enzyme issues during my chemo. I would encourage your doctor to press on. Those numbers do not look nearly as bad as mine during chemo. I had...
Paul: I was diagnosed around the same time as you and you can see my Gleason scores and treatment history. I'm still here and doing well. Side effects suck and can bring me down, but life goes on. I...
Bird8: I should have replied sooner. We will all be following your progress. Lots of great advice and information here. I just passed the 1 year post d/x milestone and there is a lot of hope. Hang in...
I sent this article to my MO and he was very intrigued. He knows the group that has done the study very well. His concerns right now are no clinical trials in humans, but we are going to give it...
Beth: So sorry to hear about the setback. We live in Houston. If you go forward with the trial here, please let us know if there is anything we can do for you. Will be praying for you....
Gunner34: The only side effects thus far for me seem to be an slight increase in fatigue and a more noticeable feeling of loss of testosterone. Otherwise, I am doing well. No change in day to day...
I got some good news today so I wanted to share it. After completing Provenge and after 1 month on Xtandi my PSA is at .20, down from 3.9. Liver tests were good so I am tolerating the Xtandi well....
Very inspiring Beth. Glad Gary is feeling well. Keep fighting. John...
You are not alone. We will keep prayers going for you. Keep fighting....
Tn. Lee: I recently completed my last round of Provenge. The worst part of the procedure is sitting still for 3.5 hours on "extraction" day. Be prepared for some bathroom issues. I generally felt a...
I plan to be there. My wife is working on her schedule and will try to make it....
Just an update for everyone as my treatment plan has been changed again. As you can see from my signature, my PSA has been doubling over the last few months. This has been very disappointing after a...
Ron: I am in the Chapin trial at MDA. I did not get the treatment arm. If I had, I would have elected surgery. I think either option (surgery or radiation) is fine. Much of the decision to me had to...
Happy to Todd....
WUTB: Welcome to the forum. We share similar numbers and I would like to contact you off line sometime. If you would like to make contact, I can send you my e mail address. Hang in there....
Hope: Plenty of support here. I, like you, am relatively young, athletic, active and a G9 (with a few 10s). I am 9 months into the battle and had advanced disease at DX. Once you get over the shock...
Mary: I guess you live in St. Louis? I grew up there. I miss the Cardinals and the Italian food. My MO has always been pretty positive. When I asked the dreaded question he told me it's not even on...
Hi Mary. For what is worth. I have found myself having to urinate more frequently lately. However, all my recent scans were good and my Prostate is not enlarged, so I am attributing it to the hormone...
I just wanted to update everyone on my status. My MRI, CT Scan and Bone Scan were all clean and showed no disease progression. They actually looked improved from last time. The labs were also good....