Wasn’t even offered or mentioned .they just did an mri with contrast on a 3 Tesla ,but I’ll ask !...
Shall I ask for a second opinion on the pathology?! I’ve done that with my first biopsy ,sending it to John Hopkins ,where they actually found another discontinuously core....
Well ,first of all thank you for your reply! Now ,when it comes to the placebo aspect of the trial,I’m pretty much sure I got the real vaccine ,because the bad reaction (flu like symptoms etc) I just...
Apparently is just psa followed by doctor visit ,after 6 months ! No more biopsies per prostvac trial! Should I be worried ,do I need another biopsy just to be on the safe side?!...
Update on my prostvac trial. So my trial started 9/11/17 ,ended 2/6/18 In between I had several blood work (psa ,blood count,some research markers etc ) Psa : 1.15 ,1.08, 1.36 , 1.36 Last shot...
I'm officially enrolled into the prostvac trial for ac at ucsd,with dr Parsons ! So they run some test and my psa is 1.15 ?! everything else within the normal limits ,WBC a little low ,glucose a...
Doctor Parsons,who's the main guy at ucsd ,never give me this option.he went based on dr bahn dx and admitted me into the ac program and trial!! And again that was before JH pathology report!!...
I've chosen cdus after some research rather than going with a biopsy done by the local urologist ,than thinks evolved and I end up doing more research ,thanks to this website,and this is how I...
Ucsd happened after Ventura that happened after a visit to the local urologist,who started everything with a positive DRE!!! Trust me if ucsd offers me the rsi-MRI ,I'll take it not thinking twice...
I am! I just saw dr Parsons(about 3 weeks ago ,right after my first dx) who's in charge with the prostvac clinical trial and I'm his patient too! He enrolled me into AC there at ucsd Meanwhile ,last...
First of all ,thanks for taking your time and give me a thorough explanation Allan !! Secondly ,in regards of me being admitted into a trial ,I just wanna add that was done before getting the results...
Actually he said ,and I'm quoting :"you are know ,pathologically ,t2b,intermedient ,but clinically more like low risk !!!...
I mean,I've already seen dr Parsons at ucsd who enrolled me in ac and prostvac clinical trial ,but that was based on the dx before JH pathology report !...
Ok,so what to do ...look for another dr that can diagnose me right ??!...
All due respect Allen ,I'm quoting dr bahn! Anyway that I can post his dx letters ??!...
Initially I was t1c/t2a,cause one positive core ,but now ,per JH pathology, is two cores and according to dr bahn ,pathologicaly I'm t2b,even so ,clinically ,he thinks I'm at low risk too. What...
So ,now that dr bahn upgraded me to t2b ,based on John Hopkins pathology ,although ,clinically he thinks I'm still low risk , I'm thinking to schedule an appointment with a surgeon and radiologist....
So ,I just got a new dx from dr bahn based on John Hopkins second opinion and I'm quoting dr bahn here: Pathologically is t2b rather than t2a ,that was the original dx. Even though it should be...
Actually ,no!! The first dx was one core ,17%,now is 2 cores and 30%. Still low ,but the question that rises here is,what if I'm being underdiagnosed?! Obviously they messed up from the get go,they...
The easiest way is to contact the pathology lab/hospital, who looked at your slices , and let them know that you want your slices/blocks sent to John Hopkins for a second opinion ,most likely they've...
No I m not ,but first they told me my pc is in the apex ,than after 2 weeks ,they said it's in the mid section ,that's dr bahn diagnosis ,than now John Hopkins says both ...so yes I'm gonna have my...
Now I wonder what else was overlooked ,cause basically the pc was found not in the nodule found at dre but above ... Makes me thing what if is more to it ..in the nodule?!...
John Hopkins second opinion report: Pc now in two cores ,Gleason 3+3=6 involving 30%,that's in the mid section core and now in the apex core too,same Gleason 3+3=6 with only discontinuosly involving...
Next door to the east!...
So do you think I should go for it?!...
Thank you for the reply Tall Allen! What's your take on the prostvac (psa-tricom) though?!...
Doctor bahn just called,letting me know that the cancer is not at the apex but rather at the mid-section and according to him is better cause at the apex would be closer to the neuro-vascular bundle?!...
👍...
Update : Enrolled in an active surveillance program with dr Parsons at ucsd and admitted into the prostvac(psa -tricom) clinical trial ,same doctor !...
I'm sold,any good AS program in Southern California ?! Thanks!...
Thank you for all your reply fellows !!!...
Thanks John T! I'll have those slides send over John Hopkins asap!...
Thanks for your reply fiddle canoe! Question is what if I miss that window of opportunity by waiting to long ?! Now ,on a funny note ,even my lower back pain seems suspicious :))...
Thanks "we can do this" ! I know I'm into the low risk category ,unless I've been under diagnosed ... I read all kinds of stories where low risk patients after surgery turned out to be into a diff...
I'm located in Southern California ,any good doctors/prostate cancer centers ? Thanks !...
64 /36 doesn't look to good ,does it !!!...
So I took that pre-radical prostatectomy nomogram test and these are the result: Primary Treatment Outcomes PROBABILITY OF CANCER-SPECIFIC SURVIVAL AFTER RADICAL PROSTATECTOMY 10 YR9915 YR99 10 year...
The actual nodule ,felt at dre was benign... ironically ,cause this is how all this ordeal started ! And yes,his pushing his focal cryotherapy ,but he said active surveillance is fine for now...
What's the diff between t1a b or c ? I'm t1c...
Doctor Bahn took only 6 cores though ,is this like being underdiagnose or something ?!...
Biopsy results in: The nodule turned out to be chronic inflammation ,but the other dark spot that dr bahn found on the right apex is cancer and I'm quoting him: adenocarcinoma Gleason score 3+3 =6...
Seen dr duke bahn on tue 5/9 ! He saw a darker area on my prostate ! Waiting on the biopsy results ! Ps doctor wasn't too concerned though ! Prostate 26 cc Biopsy was my option...
Thanks InTheShop!!...
Actually he told me ,most likely cancer right after the dre ,without the psa result on hand ,that was done after a week . Just bluntly in my face . Couldn't sleep for 2 days .......
Thank you for your reply ,it's comforting ... I'm lucky enough ,I guess ,to live in Southern California ,and actually scheduled an appnt with doctor Duke Bahn in Ventura ,that's next week,just by...
No prostate cancer in my immediate family members .father died at 48 hard attack though. Thanks!!!...
Taking some "natural supplements over the years ,like: togkat ali,5000 mg vit d,vit k2,zinc,boron,creatine ,working out supplements etc,just to boost my testosterone that's in the 400! Some of those...
Almost 49 in June . Having symptoms for over 15 years now,urinating frequently ,pressures in my bladder etc ,prostate ultrasound,flomax,antibiotics (that was done in 2010 though) Psa 2006,2007 0.8...