I tried to grow one last year. However, because of the wonders of ADT, no one could tell......
There is one very good reason to get a CT and bone scan even if you think it will be negative. They can use it as a control for future scans. That is what happened to me. My first bone scan picked up...
So sorry. The loss of one of us effects us all. Please know that our hearts and prayers are with you....
Every time I either get bloodwork done or have a scan I initially feel that it is no big thing. Then about a day before I start to get nervous. While waiting for the results I am positive that this...
That may be a hard thing to quantify as in my mind you can not put people with low grade prostate cancer in the same study as those with advanced cancer and/or one of the more aggressive subtypes...
I am in a similar situation, perhaps a bit worse as in addition to being on Lupron since June 2016 they added Zytiga to the mix. I will be on this cocktail till at least a July 2019. I sleep at least...
The oral cancer fairness act is a state by state law requiring insurance companies to cover pill treatments that you can take at home and not just the shots, etc., that you get in the doctors office....
Welcome to the group! Yes there are side effects, but remember it has one great side effect- still being here! Side effects are muscle loss (and fat gain), joint pain, bone density loss, hot flashes...
Dear Tim. Welcome to the group of G8! Did you have any scans done? With a G 5+3 there is a great chance that the cancer may have spread. If you choose surgery please discuss with your surgeon what...
Good luck with the surgery and recovery. What I found made the biggest improvement for my bladder control was riding a bike. Of course I could not ride a bike until about six weeks after surgery. I...
Glad to know that you like your MO. Please check with your insurance company. Some insurance companies do pay for The Lupron/Zytiga mixture. I have been on Lupron for a little less than 14 months. My...
I am a bit worried about the tone of some of the comments. Of course you should weight heavily the advice the doctors give. That does not mean you should not ask others for their opinion as well as...
Sorry you are here. There is good news. Based on your numbers there is every reason to believe that you can be totally cured. As already stated, both chooses are good. I can only talk about surgery....
Please let us know what the doctor says. Wishing you the best!...
You should discuss with your medical oncologist the results from the Stampede and Latitude trials that were published just this June. In short, they found that using a mixture of Lupron with Zytiga...
You may want to consider adding Zytiga to the Lupron. Some studies just published show there is beneficial results for both life expectancy and PSA increasing using them both. Generally they want you...
I don't have IDC-P (or at least I do not think so), but I have its cousin, Ductal prostate cancer (DPC). I am still not sure of the difference between the two. Sometimes I think that that doctors...
I know how much fun getting a biopsy is, but another choice may be to get a second biopsy (once you have healed). Please remember that a biopsy only gets a small amount of the total prostate. There...
There are two studies that just came out this June. One is the Stampede trial and the other the Latitude trial. Both show that taking Zytiga with Lupron can dramatically improve life expectancy. Even...
So sorry the it turned into small cell. I can not offer any advice but I hope the the below articles will be of help. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4339095/...
Hope you can keep on repeating those results!...
No issues with getting a second opinion, but I were you I would get the PSA. There is a good chance that it is not cancer, but I do not tank it is worth the risk. Perhaps my story may help you make...
I find that adding a small amount of water, stirring and then drinking it as a slurry works best for me. I get mine from Amazon which costs about $70.@...
Dear pwallace; Yes the intraductal/Ductal club is very exclusive. Wish no one had to be a member. That said, there is some very good news with your husband's pathology report. First, it was caught...
Dear DebbieMH Yes, you can start Zytiga before chemo. That was the case for me. I have been on Lupron. My MO added Zytiga to the mix based on the results of the U.K. Stampede trial that was published...
Dear Akan; The insurance company was not an issue. They pay all but $22.00. Then again I am paying over a thousand dollars a month for the insurance. My drugs come from Caremark-CVS....
I just started Zytiga a week ago. I have been on Lupron for a year. My medical oncologist came back from a conference where they covered the results from the U.K. Stampede trial which showed very...
I have been on Lupron for a year. Based the the results from the Stampede trial my medical oncologist has added Zytiga to the mix. So far no major side effects, but I am getting weird dreams and...
Here is my information: Started digital exams when 40 Started PSA when 50 At around 53 digital exam showed enlarged prostate. Told it was normal. At 57 (last year before diagnoses) PSA 3.3, digital...
annie88; Yes, I will be getting Abiraterone along with Lupron. Yes this will burn my bridge for using it again when the PSA starts to climb. However, the time it takes for the combination to raise...
I guess I made the correct decision a year ago. I had to argue with my surgeon to operate since the cancer moved to the lymph nodes. That was about 14 months ago. Started Lupron about one year ago...
It was about 18 months ago that I was told I had Stage four cancer. Turns out that about 30% of it (as of 14 months ago) does not produce PSA. What makes it better is that it is more aggressive....
Know what you mean about options. The medical oncologist wants me on Lupron for the rest of my life. She points to showing the best survival rate. The urologist wants me on Lupron for two years. More...
I am 100% in favor for testing lymph nodes during surgery. If small enough, CT scans can miss growing tumors. The one proviso is that you have a good discussion with the surgeon beforehand under what...
Sorry that you are still leaking. Please know that for some men it may take six months to a year or more to regain control. Stay strong! It may be worth the effort to find a physical therapist who...
I have been on Lupron since last June. I have gone through all the great side effects, bone and muscle loss, fat gain, major fatigue and loss of physical intimacy. Perhaps the worce is Lupron brain....
I would still get the biopsies. While rare, there are some forms of prostate cancer that do not raise your PSA. There are men here with Gleason scores of eight or higher but have PSA of less than 4....
Sorry that you are here. I would recommend you get scans (CT/bone). The reason for that is to establish a baseline. I have a lot of arthritis and other issues with my bones from being stupid in my...
Either decision you makes comes with negatives and positives. While no one can tell you what to do they can share their experiences. My Gleason score at 8 was better than yours, and they did remove a...
Dear Tall Allen and others; Boy I have a lot of reading to catch up on. Here is what I know, and more importantly, what I do not know. 1) I do not know if it is 100% Ductal or a mixture.The pathology...
Sorry for the length of this message.. I know there have been discussions on the best length of time to be on Lupron, with many favoring shorter times. That said, I would appreciate people's...
Please continue to have your PSA checked at least once a year. While not stated, it appears that you do not have one of the forms that give off little to no PSA (like small cell or Ductal). That...
The reason you did not get an appointment may simply be do to your insurance. Mayo is on record saying that they give priority to those with private insurance over Medicare. Nice to know....
Well this may seem weird... I have been on Lupron since last June (still on it). Started to have knee pain last September. The pain only occurred when I went up or down the stairs, or getting up from...
I am someone who's advanced cancer was found in my late 50's through PSA and digital tests (even though I was getting tested since I was 40). It is almost with intense hatred my feelings for who...
Sorry that you are here. May I suggest a third option: surgery, radiation and hormonal treatment. That is what I had for my agressive cancer. I started on Lupron about two months after surgery and...
Please encourage your friend to get a CT and bone scan. It will help identify if the cancer migrated. Also, if he goes ahead with his surgery he should have a discussion with his surgeon on what to...
I know it is not the most important thing to post about... I have been on Lupron since last June. Have the usual side effects, muscle loss, fat gain, joints that really hurt, a bit of a foggy brain...
Way to go! Love great stories like yours!...
I would recommend starting hormonal therapy sooner than later. All you are doing by waiting is allowing the cancer to get a better foothold. Please note that you should not just focus on PSA. I had...