Dear Beth, Your posts to share your thoughts as you and Gary walked along this final path have touched so many of us . I woke up this morning and found your sad message on HW thread. I know there are...
Thanks TA, We have a monthly appt. with MO today. Will learn PSA although MO says that is not as important now..especially since he was diagnosed with PSA 5.3 and always had low PSA until doubling in...
Forum use question: I just posted on the regular prostate cancer forum this morning. Should I also post on this thread since my question is certainly a GL 9 advanced prostate cancer inquiry? PLUS ??:...
Beth, Thanks so much for continuing to post and you always manage to include some gentle humor as well. Example...your experience as as Candy Stripe volunteer! I admire the medical professionals and...
Should husband try chemo? He was very fit at diagnosis. Still minimal bone pain but now major fatigue ,and recently short of breath and dizzy . My 82 yr old husband was DXed 5 years ago. 10 months...
Dear Beth, I want to let you know that you and Gary are in my thoughts and prayers each day. All of your postings have been invaluable to me as my husband and I navigate our own path along the...
Dear Beth, I am so appreciative of you sharing your thoughts in the many posts to encourage other people with their prostate cancer. And of course I cannot begin to tell you how your posts about...
Dear Gary and Beth, You are both inspirations to me. I don't post often but find your thoughts so worthwhile as my husband and I struggle with DH's prostate cancer and metastasis. You are in my daily...
Thanks for your reply, Andrew. I like to read your posts in the various threads on different topics. Very helpful AND encouraging! My husband has always been active including track in hs and college....
Greetings, Beth and gibson, Thanks for your help. DH is actually feeling less fatigue , maybe because his glucose had been 63 or less and doctor said to have more frequent small meals and fruit...
Greetings, My husband has had worse fatigue for past 2-3 weeks. Is it ok to take B12 pills, if so how much, and did it help to give energy? Would you recommend pills or a shot? Can you get comparable...
Hi Beth , So glad you and Gary had wonderful road trip and caught glimpses of spring as you traveled. We too love walking/looking for spring around our Seattle garden even though it snowed lightly...
Gleason Score/PSA before treatment ;5.3 • Pathology Outcome ; no RP- • Positive Margin ; -- • Nodes Involvement ; Y • Bladder Involvement ;N) • Mets ; (N) • Others ; seminal vesicles Y Follow-up &...
Hi Redwing, Thanks for your reply about G9 list Roster. I had looked before in the G9 crew part 2 thread but now realize I needed to go down 4 POSTINGS AND THEN (Hurray! ) I found the lists you have...
Hello Carol, My husband is 82 now...dx 4 1/2 years ago. His signature below shows his info. I like this HW site but also have a challenge searching for advanced mcrpc posters. I do use the caregivers...
Hello TA, Thanks for your information.I will ask tomorrow about the 2 tests you mention. We have the monthly medical oncologist appt. tomorrow. Last month we asked about any genetic test that could...
. My husband has a history of always LOW PSA and now metastasized to bone including Zytiga failure last fall. ---Also we are specifically looking for genetic testing information--what and where is...
Hi ed, I have been reading Healingwell and other advanced prostate cancer forums for several months. Your photos are a good reminder to "stop and smell the roses" as well as take in all the beauty...
Jim, thanks for your good suggestions. Have used them now. I am still looking for "Is there 1 posting that is kept current with JUST THE NAMES of G9 posters ? Maybe as a sticky note or perhaps I...
Thanks Jim, You answered quickly and I found the G9 summary forum and also my individual (12) posts. One other question??. I thought you -- or someone --had compiled a list of G9 posters in one post...
I have posted before. But I would like for my postings about my husband to be included on the "official" G9 list and the long G9 thread. I don't think we are included and it would help me find the...
I have posted before. But I would like for my postings about my husband to be included on the G9 list and the long G9 thread. I don't think we are included and it would help me find the continuing...
Greetings Beth and Bolo .....and thanks for the bumps from you both. Yes, Bolo, you guessed a Seattle wahine who would like to have some Hawaiian weather. I will try a new posting since now new tests...
Should DH continue Zytiga now? Always had low psa but increasing after IADT. 2/16- .67 –restart Lupron 3/23/16 .31 4/23 .24 5/17/16 .21 6/15/16 .32 7/13/16 .44 8/16/16 .81 9/16/16 1.08—start ZYTIGA...
Thanks for your suggestions above. I have subscribed and started following relevant threads you posted...as well as other discussions that prove to be helpful for this G9 mCRPC diagnosis. I will...
Thanks JackH for your help in using this forum. (I followed your hint and deleted 2nd thread and edited this initial thread by adding the subject line.) Also have started reading The "New" Prostate...
:smhair: \Greetings, I follow and find helpful 2 website forums that are good for advanced prostrate cancer. They are this HealingWell and the HealthUnlocked site. My husband is G9 with bone mets and...
Thanks for your responses. Helpful for hubby. I will reply after his weekend and response to Xgeva.. Anisee...
My husband had 1st Zometa Nov. 16 with terrible side effects afterwards for 36 hours. Tomorrow he will change to Xgeva instead of Zometa. What is your experience with these 2 treatments. His...
My first post was a few days ago.....Many Thanks to those who replied. NOW I have New ??? MO and RO are saying use all the drugs shown in subject line together. Who has used XOFIGO? Who has used...
Allen: Thx for excellent advice. Tia is at our US2 mting tomorrow. We saw Evan Yu 8/12 for 2nd op & avail. clinical studies.. So husband will be probably reach out to them thx to you . I have printed...
Greetings, This is my first post regarding my husband;however I have done extensive reading on this website and your insights are so helpful. So I want to share our current status which as of August...