hi there, we met with both doctors b4hand, but we chose ahlering! very happy with this decision. feel free to email for more info (and the reason we chose one over the other)! best of luck!...
thanks so much for sharing your experience. really appreciate it. makes sense that it would be a gradual climb as your body adjusts to the T....
just seeing these responses now... it's been a long couple of weeks. paxton, thanks for your response. reading morgentaler's book now & it's all very eye opening & interesting! tall allen & roblee- i...
so incredibly sorry for your loss....
paxton, that is so interesting that you stayed on T the whole time! but then again, you had favorable intermediate cancer, right? your doctors may have been against it if you had a more aggressive...
thanks for the input, my husband and i really appreciate it. lots to think on....
hey all- we just got our 2nd PSA test back following RALP, and we're still undetectable at <0.02. we're thanking our lucky stars for these scores & also for minimal side effects from surgery. having...
thinking of you, upforthefight! lots of thoughtful responses here, as per usual. so sorry you're going through this, but it sounds like you're a assembling a great team! keep us posted on everything....
randrball1 -- hope you see this, i saw your post on my thread & noticed your signature. looks like your first PSA post-op was also undetectable. are you doing adj radiation just in case, or did your...
ugh!!! so sorry you're going through this... i think TA (above) gives the best advice in re: to radiation, especially b/c it could still be curative at this point! as much as we trust our mutual...
thank you all, we truly appreciate each & every response! halbert, side effects are at a bare minimum, and i'm not sure if that's due to his young age (42) or our skilled surgeon, but we'll take it....
thanks all! my husband wept in my arms (and he is not a crier)! first one down...many more to go. love & prayers for all of you. truly....
we're in total shock over here, tears of joy. first post-op PSA is <0.02 we'll continue to be vigilant, we know how easily these numbers can change, but omg... tears! love to all of you!...
just my opinion only... i'd give anything if my husband would have caught this beast early. you just never know if you're going to be one of the lucky ones. what is your family history like? any...
thanks for sharing the great news! congrats congrats congrats...
dear beth, i just got caught up reading your words, and once again, i'm blown away by your grace and compassion. thank you, thank you, thank you for sharing these deeply personal moments with us. i...
yes, i'm sure the ultra sensitive test causes more anxiety, but the way i understand it is that it also has the ability to detect minuscule rises (the onset of BCR), so therefore you'd be able to...
yes, this is exactly why! thanks cspivak!...
his_so, my husband's pathology report also indicated intraductal carcinoma. i've done a ton of research & emailed back/forth with a lot of doctors. i was told that there isn't any specific management...
thank you for taking the time to walk me through this, tall allen. i like the idea of thinking about it in terms of unfavorable uPSA b/c that's why i've written this post in the first place. with my...
thank you for all of your responses! greatly appreciate it. i've always understood the greater & less than signs, but i didn't realize they had to be printed on the actual lab form in order to be...
hey all- my husband is going in for his 1st PSA test tomorrow following surgery in june (via Quest) -- what's the turn around time on these tests? a full week? a few days? what has your experience...
sorry to hear you're dealing w/this & sorry to jump into your thread, but i have a question about this as well. everyone is telling you to look for an RO at this point, but what about a medical...
yes dr. king or dr. demanes at ucla for radiation. for surgery, i can highly recommend dr. thomas ahlering at uc irvine in orange, ca. you're a thoughtful co-worker....
interesting thread -- many of the doctors we asked about this along the way said inflammation. i want to say genetics played a strong role in my husband's diagnosis b/c his dad died very young from...
you might want to contact dr. kim at cedars-sinai here in los angeles: http://bio.csmc.edu/view/6274/Hyung-L-Kim.aspx he's currently enrolling people for a clinical trial involving PETÂMRI and HIFU....
no, it wasn't my doctor who suggested it. it was emmanuel antonarakis from johns hopkins who responded to one of my queries. we're doing the decipher test & the color test, but i had never heard of...
hi there, we were just advised to do tumor DNA sequencing using the foundation medicine platform - has anyone else done this? if so, how does it work? did you ask your team to order it for you? which...
hi, welcome, we're a young family too. it sucks. so sorry. i know everything feels very heavy right now, but soon enough you'll come up for air & you'll be able to feel some sense of normalcy again....
up4thefight- please keep us posted on your follow-up 2 week test. such a bummer about your first test, but maybe it's just taking its time going down? been thinking about you guys so much. our first...
dr WHO -- my husband has intraductal carcinoma. i wonder if it also migrates to the same places as ductal? have you read much about intraductal along the way? i've read the same research articles...
honestly, there will be naysayers, but don't listen to them... it's such a personal decision & one that you ALONE will have to live with... we too chose surgery & our numbers were very similar to...
love hearing good news. thank you so much for sharing....
thank you for all the warm welcomes & informative responses. really appreciate this site & find myself combing through the archives on a daily basis. i find myself wanting to know every little thing...
hi there, we're a young family as well. it sucks, it really does. but you're in the right place, and you'll get lots of great advice here. keep posting & reading through the archives. get walsh's...
thanks allen for your input - i haven't read anything about DNA repair mutations, so i'll look into that now. up4thefight- thanks for checking in. glad to hear that your husband is doing well. my...
thanks all- appreciate your responses & will look into another reading especially bc of how close we came on the left side (epe in 2 places). tall allen- any thoughts on path report as a whole? the...
hey all- first off- we're spinning a little bit & looking for some feedback. my husband had surgery last week & we got the results last night. he was upgraded to 4+3 with tertiary 5 (65% pattern 4)...
hi all- love reading all of your responses. and i agree, surgery is such a huge decision. maybe i'm in the minority on this, but i don't think most people take it lightly, especially the kind of...
i know you're scared, we've been there too...but it could be ANYTHING... inflammation, enlarged prostate etc. please try to go out & enjoy the next few days! do anything to get your mind off of...
hi there! welcome! not sure if anyone else has mentioned this or not, but get patrick walsh's guide to surviving prostate cancer - explains so much (including a lot that is actively discussed on this...
hi charles! much welcome perspective over here reading your story... looking forward to learning more (from all of you) xx...
thank you for sharing your WHOLE story here. my husband and i just lost his father to this terrible disease a handful of months ago, and now my husband is beginning his own PCa journey. i appreciate...
good luck on your search, water under the bridge. side note - tall allen, you are amazing. how do you retain all of this valuable information? and do you specifically work in the prostate cancer...
any updates on the path report? i'm thinking you might be getting them back today. we're following closely in your footsteps as we're leaning toward surgery with dr. ahlering as well. good...
great news! congrats all around. we have been trying to get in with demanes at ucla! sounds like he's the best of the best....
hi all! sometimes the signature doesn't show up in the original post, but it shows up in responses -- do you know how to fix this issue?...
thanks for all of your responses. allen, the two nomograms above gave us very different probabilities, so which one do you suggest going by? for reference, the MSKCC nomogram put his risk at 5%, and...
nikki, thinking of you & keeping your family in our prayers....
thank you all- allen, the link from your site isn't working- i keep getting an error message when i click on the "europeanurology" site. do you have another link bc i've never tried that nomagram...