TA.... I have since I joined this site appreciated a bunch of information that you and others have shared with member that are fighting this terrible situation. I have as Iam sure many others have...
Lets face it Cancer sucks right? I have been on a emotional roller coaster for 4 years, but I grab hold and hanging on and it levels out for me. I watch funny movies and read my Bible and I feel ok....
I have been eating differently for four years, but yep I have cheated I love ice cream and pizza, but no more. Breakfast mixture of cooked red quinoa and two small eggs for protein. The mixture is,...
Thanks for the information Charles. I saw the risk there but 2% with major issues is not to bad. Start my first infusion on the 15th. Each month for total of six. The RO said it might help or do...
Mark I had the same thought about just getting away for a while and I am thinking there was negative as you call it vibs. We all have issues some more than others but, yep cancer sucks. But sometimes...
It has been a few months since I posted but Iam guessing you could say things are declining. My PSA was 7 in September 2016, 14 in January, 21 in May and in June 23.6 My CT last week is clear which...
I believe stress and anxiety play a major roll in how we feel. Our bodies are fighting this terrible beast why add something else to the fight. I have stopped watching the news, for the most part....
I was told many years ago that "God gave you two ears to listen and one mouth to talk." Politicians are the worst, they are shaking your hand and looking at the next guy. Most people to day have no...
I have often thought what I might have done differently once I got out of college in May '73? I did think about the military oh man all we thought about was rice paddies, no thanks. Totally respect...
Naples, I have been on lupron since 2/2014 every three months. The side effects really stink, hot flashes especially right after I get the shot. Joint pain from either the lupron or zytiga or cancer....
tommyc, I hear you brother. I ask that you do not leave this forum, please we need all the thoughts and advise we all can get and each of us to make our own decisions what we are going to do. I for...
I played alto then tenor sax for about 12 years had private lessons for about 5 years. I got pretty darn good. Then college came and the saxes got put away and never played again. Now "Walk on the...
Pratoman, I hear you loud and clear and that is why I take what I take and have cleared everything with my euro. I agree totally with TA when he says; "With doctors agreement, I think you should do...
Joelantman, Welcome to a forum no one wants to be at. I dont run but I walk as much as I possibly can and carefully down our country road, 1.1 miles out and 1.1 back. My docs all say to "be careful"...
"But if found early there is a 98.9% survival rate." That is why even on facebook I tell every person I know If your a man over 40 or if you know a guy over 40 please tell them to get a quick blood...
Very sorry to hear this about your Mom. I lost my folks 7 years ago. After my Mom passed 6/2010 I moved in with Dad to take care of him his last few months until a stroke took him at 92. I think of...
Tony, I had provenge last summer. I have good veins. So I got the needles. I understand they are 18 gauge and do give a pretty good sting going in and coming out. Yea I had to be still for about 3...
Supplements...... Gosh there are so many. Here is my few cents. On 10/2014 when I was taking 10-12 oxy a day, gabapentin 600mg 3x a day, lidocaine 5% and using fentanyl pateches 50mcg/hr and...
Donna, Welcome to this site probably one of the best for advise and thoughts about prostate cancer. All the folks above have given you a ton of information to digest. My suggestion to take a moment...
ISU, Excellent thread as most are with assisting others. I have been on zytiga since February this year. It has not work so well for me. Sept 2016 my psa was 7 then January 14 and now 20. I have...
Todd, Gosh I thought you were taller? Very well done and I watched your anniversary also I hear you loud and clear, brother Live life out loud!! Thank you for your strength...
thank you guys for your words. And you In the shop!!! Bang your words are perfect "This kind of thing is why we're here, to support each other in difficult times"...
jaxum, I have been on lupron since 2/2014 every three months. I get hot flashes every night, have bone joint pain, up every 2-3 hours at night and fatigue a bunch. Some of that fatigue might be from...
Calijr, Iam so sorry for the loss of your friend thank you for sharing this. I posted yesterday that I lost a good friend a few weeks ago prostate stage four. As ISU said we are all happy that you...
This afternoon I post the now closed topic about venting and Jim, Mr. Moderator sir, I understand why you locked it down. Here is a case in point why I mentioned the word frustration in that post...
This am I read the post that Pratoman started and very nicely did with links about Zytiga which Iam on right now and my psa is going up, ok no big deal. Then as I read down and as the moderator put...
Todd, You remind me of the movie "Lone survivor" where Murphy says to Marcus, "Your never out of the fight." I can quote others but you get the idea. You are truly an inspiration to all of us to...
logoslidat, I must say I read this post above and I really like your signature. "eyes wide open...no sand...Gonna live until I die...not the reverse forgive my virtues as well as my sins......." Gosh...
Artist mark, Wow I read your post this am and thought about it all day. Yea I remember that call and the two meetings with my euro. First one said "Tom I hate to hit you with a ton of bricks but you...
Tee Emm, It is wonderful when one of us figures out something. I for one am very happy for you Tim, I really am. Tom...
kmclark1, Yep your right on with the short term goals I love them. As Murphy said to Marcus in the movie "Lone Survivor" Marcus Never out of the fight!!" And as Jimmy Valvano famous North Carolina...
Neil79, Thank you for your reply. Some drugs work for some and not for others. I am sorry he went through his issues with xofigo. Its almost like a crap shoot. You just keep on trying to find what...
fairwind, Thanks for the reply. I do realize an RO will need to infuse. I wanted to know if anyone had experience with xofigo. I have another lupron next week and I with my wife have a good talk with...
Ok Iam kind of at a lose here. I know I have seen some signatures with xofigo is there anyone here that has taken this radium infusion? If so please let me know your thought about this drugs. I truly...
I had Provenge June -July 2016. My veins were and are very good so no picc line. I did not like the 18 gauge needles, laying still for three hours was trying but got through the three sessions of...
I am looking for a few opinions on Xofigo, the radium injection for cancer that has spread to the bones. I had a psa test in September 2016 my psa was 7 in January it jumped to 13 then jumped to 20...
Wow these are great so far. Now when you have a few minutes go on you tube and look them up. I watched Johnny Carson the other day and he had on Mel Brooks wow I have not laughed that much in a long...
Pratoman you just made me smile big time Thank you my friend. Seinfeld was a great one for sure....
Thank you for sharing this TED talk. I will watch this several more times. "To help each other", prefect....
jliggett69, Keep us informed about how your doing with the CBD oil. What state do you live in? Iam in North Carolina would love to try some oil. My oxy does take the edge off my bone pain but. Maybe...
This site has tons of information about everything involving prostate cancer from surgery, doctors and drugs. I truly believe that our mental well being is as important as the physical. We often talk...
Jack, I hope you do well. I have a question why eligard and not lupron? My docs just shot me with lupron did not know about eligard. Not a big deal they are very similar just made by different...
Beth, I believe I understand your concern about things not being appropriate, but we are all involved with a terrible disease that takes life. Maybe as you write it will help you to vent. All of us...
Teamchris, Our thoughts and comfort prayers are with you your family and of course Chris. The folks that work at hospice are truly amazing human being. You are a very strong and caring person and...
Purgatory, I have read things that you have posted and the one above. First of all Iam guessing your a veteran for that alone I thank you for your service to our country. Second there are times I...
Lupron I got my first injection 2/2014 and every three months since so I guess you could say I have had my share. I dont like them. My biggest se is hot flashes, big time. especially at night. One...
Boy I hear you all. I have been on zytiga with 5mg prednisone for three months. I all the time feel like I was in a fist fight with a 600 pound gorilla, and I lost. Spine, ribs, pelvis even the back...
goatts, I was read this thread and read your post, WOW can I get an amen here. Your so right. I guess Iam dummy number 2. I did not know what a psa test was, when someone said psa I remember in LA...
Philco, Biggest thing these smart guys specifically Tall Allen can help you with is where specifically are you? state or country? He knows excellent docs and facilities around the country to maybe...
Philco, Welcome to a site none of us wanted to be at for sure. First things try and calm yourself, we all know what you just got hit with. There are a bunch of very smart knowledgeable folks on here...