Hi Cyclone, I remember in 2016 you told me about Dr Kwon and I tried to get an appointment but it was a 7 month wait. I needed treatment as soon as possible so I got into MD Anderson - now I'm at...
I really like Dr. Kwon, he answered all of our questions including my wife and daughter. We agreed that Dr. K was the Dr. we've been needing. Overall Mayo was very organized all appointments on time...
I am back from Mayo and after psma scan with labs; From Dr. Kwon: "PSMA PET scan shows abnormal radiotracer uptake by the prostate gland with SUV max 44.1 with seminal vesicle involvement. No...
I now have an appointment with Labs, PSMA scan and follow up with Dr Kwon in Feb - step 2 is to get it approved with my insurance. I will be driving up with my Wife and Daughter. Any advise or...
Cyclone-ISU, With one 5mm spot of cancer now visible only on MRI scans - my doctor in Houston does not want to radiate it? I ask about a PSMA scan and he told me I don't need PSMA scan because we...
I have only had Lupron, which has been an oversight I need to be more involved in my treatment. Larry E...
Yes Mumbo out of the box, I will try to get in Mayo to see Dr. Kwon - I watched his most recent PCRI lecture and learned that I am missing out on a bunch of new stuff. As always, I would like to get...
Thanks Pratoman, I recently had a spike in psa and need outside the box treatments. Larry E...
I'm considering going to Mayo Clinic any advice or help is appreciated. Larry E....
I'm getting in a new randomized clinical trial at md anderson... My oncologist told me it is testing parachutes? He He...
Thanks much Mumbo, I will see if there are any openings. Larry E ...
Thanks, Cyclone-ISU, I will be contacting my insurance to see what it would cost to change over to Mayo, and get a remote consultation. I first heard about Dr Kwon from you in 2016 but he had a...
That's what I was considering Duck2; thanks for the reinforcing. I will be checking into that today. ...
Thanks Jim, l am making an appointment for today or as soon as possible. ...
Hello All! Recently my psa has jumped to 15.1 quickly a very high doubling time. Have you heard of any clinical trials that are promising - I currently have a June appointment at MD Anderson in...
Thanks Cyclone, Larry...
Excellent...
Always funny, and a little truth. Larry E...
You have a good plan. Larry E...
I had a psa check yesterday at 8am and had results at 11am. The doctors some time sit on results because they are busy - you need to call them and bother them they will get back with you sooner. The...
You are at a good place (Healing well) where you can research and find out what the possibilities are - There are many new treatments that can truly help all of us. If you're able go to a major...
Denis, Good reminder of what is important, I'm totally in agreement. Larry E...
I got Lupron shot for 2 years at my Urologist office and the nurse tech gave it to me in my arm cold and gave it super fast it was always painful and very sore. When I changed to Cancer Research...
Thanks Wings, I want to get off lupron and this could be my chance. Lupron is slowly killing me, I know everyone knows of the side effects, but it was hard to imagine consequences from treatments...
Went for PSA test this morning and it came back as 2.4; So I will be talking with Md Anderson soon about the trial. I hope things go well and feel like this will be a good chance for me. I am very...
Hi randyd, I will be possibly going to Md Anderson for the same clinical trial. I have a PSA check a week from Friday and if it is above 2 I will head down there. I will let you know next week what...
Yes I just started seeing the commercial also, the doctor told me several in the trial have had a durable response. I might be able to get off Lupron. Larry E...
Thanks Cyclone, I am still teaching everyday even though I could have retired 10 years ago, if I stop teaching I would have no place to hang out in the mornings - also they give me free coffee and a...
Thanks Djin, I'm in cohort 2, and the results look like small advantage with adverse events high. I may look for other trials. Grade 3–4 treatment-related adverse events occurred in 39% and 51% of...
NM BONE SCAN WHOLE BODY FINDINGS: Comparison: CT scan of the chest, abdomen and pelvis on the same day. Osteoarthritic-type activity noted in the bilateral knees and joints of the feet and ankle. No...
Thanks Jerry, Yes that is very much like my situation, I have called my insurance company and the phone number on my bill from the clinic. With no help yet. But I will keep trying. Larry...
JNF, I will ask about eligard, thanks Do you think they should have told me about the cost of lupron before giving? I had no choice. Larry...
The clinic is asking me for $2000 to cover my out of pocket on this bill. I might call state insurance commissioner, Or call an attorney, maybe call tv station. If they would have told me the cost I...
Thanks cointoss I did not know this was going on to that extent, it should be against the law. I'm not the only one getting cheated. Larry...
Hi John, Hope all is going well for you. I switched clinics to get in network pricing. Now I have switched back to my old clinic and the hmo has decided to give me in network pricing with them (...
I changed to a new cancer clinic and got my 3 month Lupron shot $19,090 + $259 for giving my the shot all together = $20,816 . At my old clinic it was $1,900 total for all. I have talked with billing...
Mattam, That's funny now that I think about it, Yes it was the buttocks however the nurse told me the shot was in my hip. (I guess it sounds better for the nurse) just another thing to laugh about. I...
Thanks for the replies, I feel like I got my first Lupron vacation, even if it was only 3 weeks, I will go in Monday after work and get the injection. And it is concerning that they don't know what I...
My Urologist nurse gave the shot in my arm (2015) for the first 2 years, and it was pulled out of the fridge and injected cold. When I went to Tulsa Cancer Institute they told me they only gave it in...
In July I had to change clinics and see a new MO in Tulsa so I scheduled. October 29 was my first appointment. They were not ready to give me Lupron which I told them in July I needed, Also told me I...
10drum, If you bike before test or stressed out and many other things can effect your psa. May be it is one of thoes and I don't know all posible things that have an effect on psa. I fast the night...
Way to go Jerry, Sound like you have a good team of doctors. Where do you get treated? I am seen in Tulsa and also MD Anderson, Larry E Part of the G9 crew......
Which is the best place for the 3mo lupron shot? Any had good or bad experience? Larry E...
Nytingale, I never feel great about testing time, but it does get a little better over time. The worst time is 3am when my mind goes over and over the different possibilities. But with the sunrise...
Jason See both doctors - be sure to record appointment on your phone. It is hard to write down everything your told. Larry E...
My friend at work is 58 years old with a PSA of 5 and his Urologist wants to do a biopsy, he doesn't want to. I ask him to get his entire history of psa scores and check his doubling time. Is there...
You have great insight into our PC and what it brings. I read the poem and for each line I could say yes - I have my own individual examples. Really enjoy your timely post always the right words....
I'm checking in my psa is still low but kind of going up slowly over the last year.. Larry E...
That is great news -prayers sent; keep going Todd you're always a leader. Over time since I joined this forum your posts have always given me hope. Thanks for sharing your story here. Larry E...
I did not go to the ortho dr. I'm going to try PT first. I don't drink rum so I am not going with with wooden knee replacement at this time, maybe later. Larry E...